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Author Topic: Not a happy time  (Read 3162 times)
cariad
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What's past is prologue
« on: April 24, 2011, 12:23:34 PM »
My original donor is flying in in a few days for us to go get a blood draw and check if I am going to need a nephrectomy. For some bizarre reason, he decided to invite others along so my parents and brother will be here. This is a tad annoying, but not why I am on here feeling emotionally drained.

My uncle who lives in town had a stroke last week. Luckily, he was at home with his wife and they live within steps of a hospital. So everything that could be done was done as quickly as possible.

He is in a medically induced coma right now. I had my kids make him cards and we drove out there to see his wife (my aunt who adores children) yesterday and she told us there were many positive signs - that he was able to open one eye and wiggle his toes when asked. Today, those signs have all evaporated. I am sad and scared for my aunt and their daughter. The doctors cannot find the source of the bleeding on his brain.

Please keep a good thought for him. He has literally hundreds of friends - he has always had a huge heart, and is generous beyond belief - people just love him I am indifferent to most of my relatives, but Jeff is a special person and I continue to hope that he will somehow miraculously recover and go on to live many more happy, productive years.








EDITED: Moved to transplant threads- kitkatz, Moderator
« Last Edit: April 24, 2011, 12:30:33 PM by kitkatz » Logged
Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: April 24, 2011, 12:25:40 PM »
 :grouphug; So sorry about your uncle.  :'(
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #2 on: April 24, 2011, 01:04:49 PM »
 :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #3 on: April 24, 2011, 01:10:10 PM »
Strokes can happen to any of us and that is scary.  I too hope your Uncle pulls through for more quality years.

              :bunny:
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bette1
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My dear daughter
« Reply #4 on: April 24, 2011, 01:12:07 PM »
I'm sorry that you are going through this trying time.  My thoughts are with you and your family.   :grouphug;
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
jbeany
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Cattitude
« Reply #5 on: April 24, 2011, 02:05:13 PM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: April 24, 2011, 02:52:55 PM »
 :grouphug;

Cariad, I'm so very sorry.  :cuddle;

I hope that even though your uncle's positive signs are gone, it is just a temporary setback. I'll be thinking about you, your uncle,  and your aunt.

I hope you can emotionally brace yourself for the onslaught of family.  :cuddle;

 :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"
« Reply #7 on: April 24, 2011, 05:36:00 PM »
Praying for your uncle and you! 

lmunchkin :pray;     :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
YLGuy
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« Reply #8 on: April 24, 2011, 08:47:18 PM »
I am very sorry cariad.   :grouphug;
He of course is in my prayers.
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natnnnat
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« Reply #9 on: May 28, 2011, 06:51:53 AM »
Cariad - where have you gone?  I miss you.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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