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Author Topic: Starting my "new" life  (Read 2554 times)
JLM
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« on: April 12, 2011, 07:48:08 AM »

I had the catheter inserted on 2-25.  After a couple of weeks, the weekly flushing started.  The supplies are to be delivered today.  Fifty boxes!  We have a living room that we don't use much and that's where they are going.  Training starts next week Tuesday. 

The question that is laying on my mind IS  at the end of next month we are going to NE WI for the summer.   I figure that the supplies that was ordered for me will take me to the first part of June.  I trust the center in Abi will inform me how to get more supplies.  I don't know if I will be on the daily exchanges or the night time machine when we go.

Note to self -  Don't sweat it, God's got yer back!

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I'm just where God wants me to be, not one step ahead nor one step behind.
Rerun
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Going through life tied to a chair!

« Reply #1 on: April 12, 2011, 07:54:03 AM »

Yes, God does have your back.  Just see where you are at then and order appropriately.

Best of luck.  I hope summer gets hers soon. 
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paul.karen
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« Reply #2 on: April 12, 2011, 07:56:26 AM »

Your doing PD it sounds like.

When you go on vacation let your nurse know when you are going.  Either she or preferably you should contact (baxter if thats who your using) and let them know when and where you will be vacationing at.  The people at baxter are very helpful by most accounts and can have your vacation supplies shipped to where ever you will be staying.  All you will have to bring is your machine.  And your PD clinic will likely have a case you can use for packaging your machine..

PS>  Please give them as much notice as you can....
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
JLM
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« Reply #3 on: April 12, 2011, 02:15:25 PM »

I have already let the nurse know.  Although I haven't started yet, my training, I have check out several website looking at PD training videos.  I see my neph tomorrow, the first time since before having the piping (cath.) installed.  I'm pretty much mechanically inclined, so I don't think I'll have a problem learning the new routine.  One thing that concerns me is that if I have a contamination will I have to travel 60 miles or can my PCP be able to change the Link tubing between the cath and the fill tubing.  I forgot what it is called.  She is 20 minutes away.
« Last Edit: April 12, 2011, 02:18:08 PM by JLM » Logged

I'm just where God wants me to be, not one step ahead nor one step behind.
Cordelia
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« Reply #4 on: April 12, 2011, 02:54:00 PM »

Best of luck to you! :2thumbsup;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
JLM
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« Reply #5 on: April 15, 2011, 09:29:20 PM »

I had a scare last night.  I took the end of the fill tube from the elastic strap that cradles the end and part of the end was missing.  Oh oh, contamination!  I clamped the tube and headed for Abilene early this morning (an hour + drive)   After all was said and done there was no breach, just part of the end came off .  I was given some antibiotics just to be on the safe side.  We got back home in time to eat at the Senior Center and then I went to volunteer at the local hospital's gift shop. :flower;
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I'm just where God wants me to be, not one step ahead nor one step behind.
boswife
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us and fam easter 2013

« Reply #6 on: April 15, 2011, 09:45:36 PM »

whew!!  i'd say quite a scare!! glad (  :pray; ) all is ok... and  :2thumbsup; on your volunteer work  :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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