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Author Topic: Kidney Donor Found Via Social Media  (Read 1304 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: April 10, 2011, 01:48:55 PM »

Kidney Donor Found Via Social Media
Posted on April 6, 2011 by makalajohnson
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Most people think of Facebook and Twitter as fun, engaging social media sites, used to make friends and connect with those sharing common interests. Kirti D. sheds a new light on the power of social media as she tells us an amazing story of how it led her mother, Anuradha D., to an incredible gift—a second chance to lead a healthy life.
In 2002, after suffering from symptoms for years, Anuradha was diagnosed with chronic kidney disease. With a kidney function of less than 50 percent, she was given less than seven years to live. Since then, she and her husband have committed themselves to her health and living well. Anuradha has controlled her disease and symptoms through diet, medication, yoga and homeopathy.
Despite all of Anuradha’s efforts, by October 2010, her kidney function reached less than 20 percent and she was placed on the transplant waiting list. Unless she found a donor match, she faced a long wait of about six years.
Her daughter, Kirti, knew that her mother would not have six years to wait on the transplant list, so she did what she knew best–she turned to social media and started a Facebook page.
Kirti started the page to help her mother find a kidney–she provided regular updates and information on organ donation and kidney disease. Even if she did not find a match for her mother, Kirti believed she might be able to help someone else.
In January 2011, Kirti posted a link to her mother’s Facebook page on her status update—“Mom is having a particularly hard week, and her situation is getting a little more desperate”. That evening on Twitter, she began receiving tweets from a Twitter follower, Amy D. inquiring about her mother’s health and questioning what they needed regarding a donor match.
At the time, Amy and Kirti had been following each other on Twitter for a little over a year and had met at dinner over the summer. Amy tweeted that she was interested in learning more and asked that Kirti call her. She shared that she was a B- blood type (an initial match) and would be interested in seeing if she was a match for her mother. Amy explained, “I have two kidneys, but you only have one mom.”  When Kirti hung up the phone, she said she “cried her eyes out.”
Amy pursued the blood test match process on January 26 and by February 24 received the news that she was a preliminary blood match. She then went through rigorous physical testing over the course of four weeks, including laboratory tests, electrocardiogram, CT scan, mammogram, a psychological evaluation and numerous consultations with specialists from the Transplant Center.
On March 15, they received the long-awaited news: Amy was a match for Anuradha! Surgery is now scheduled for April 19, 2011.  In preparation for the surgery and the expected costs, Anuradha’s family and Amy are together organizing fund-raising events to defray expenses.
Kirti explains, “Amazing to think that, without Twitter, she and I may have never met or even made a connection.”
You can continue following this incredible story on Facebook: http://www.facebook.com/KidneyDisease and on Twitter at: #TinyFabKidney.

http://sharing.mayoclinic.org/2011/04/06/kidney-donor-found-via-social-media/?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+SharingMayoClinic+%28Sharing+Mayo+Clinic%29
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #1 on: April 10, 2011, 02:21:48 PM »

 :thumbup;   :2thumbsup;
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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