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Author Topic: Limbo???  (Read 3098 times)
gaelicdevil
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« on: April 06, 2011, 01:08:41 PM »
Since we all know life is finite where do you think you are headed??? Heaven or Hell? Hey also a good Dio song. I personally feel trapped, stuck in the inbetween.
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Type 1 diabetic, fistula October 2010, Hemodialysis January 2011, triple by-pass heart surgery November 2011, hoping for transplant, O negative, universal donor, still breathing.
Sugarlump
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10 years on and off dialysis
« Reply #1 on: April 06, 2011, 01:15:21 PM »
Hong Kong (I want to be random)  :urcrazy;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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10 years on and off dialysis
« Reply #2 on: April 06, 2011, 01:27:49 PM »
One of my 101 places to see BEFORE you die!!!!  >:(  >:(  >:(
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #3 on: April 06, 2011, 04:43:45 PM »
I love that game!!! lol just kidding friend....

Hhhmmm....I really do think I may go to heaven. Even though God and I are having a little bit of a beef right now...I do try to pray and hold onto faith. I have been very blessed in my life and the first time I got a transplant I really did feel like God or maybe an angel was there...I just wish I wasn't so scared of dying. my whole life I have had an intense fear about what happens when we die...I envy people who have such complete solid faith...I continue to search for reassurance and answers.

I heard once, That the more Einstein studied the universe, the more he was sure there was a God..

xo,
R
« Last Edit: April 07, 2011, 11:26:26 PM by rsudock » Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Stoday
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« Reply #4 on: April 10, 2011, 08:18:08 AM »
Dunno about limbo. Right now I feel like I'm in Groundhog Day.

Taxi always arrives at 1800; Pass the same people as I go to my chair; torture session for four hours. Every Mon, Wed and Fri, NO days off. When will it end? I know but I don't think about it.
« Last Edit: April 10, 2011, 08:20:07 AM by Stoday » Logged
Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Rerun
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Going through life tied to a chair!
« Reply #5 on: April 10, 2011, 09:07:53 AM »
I'm a born again Christian.  What that means is I'm not perfect.... just "forgiven".  I still sin everyday.... I try not to, but someone in traffic cuts me off and I'm a sinner real fast.  I have asked Jesus into my heart and asked Him to forgive my sins.  I know I have a place in heaven.  But, what I'm learning now through a Bible Study that I attend, is that my choices now will determine what my rewards will be.  It makes me think twice..... when someone cuts me off.  Sometimes, now, I just wave and go along my way.   :pray;

Once saved Always saved.
« Last Edit: April 10, 2011, 09:09:39 AM by Rerun » Logged
Riki
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« Reply #6 on: April 19, 2011, 11:55:46 PM »
I wrote a short story a couple of years ago about a priest jerking off in one side of the confessional while a young couple had sex in the other..

I'm totally going to Hell for that.. *LOL*

I really don't care where I go, just as long as when I get there, my friends Tyler and Chrystal are there waiting for me.  I think it'll be fun to play referee for the two of them again
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Bruno
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« Reply #7 on: April 20, 2011, 02:31:36 AM »
back where I started
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Sugarlump
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10 years on and off dialysis
« Reply #8 on: May 10, 2011, 10:30:23 AM »
Chicago
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
willowtreewren
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My two beautifull granddaughters

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« Reply #9 on: May 10, 2011, 01:19:41 PM »
Just living this life to the fullest, because I strongly doubt there is another one.

 :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Darthvadar
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« Reply #10 on: May 10, 2011, 02:21:01 PM »
I've a friend who's a priest who tells me that I'll live forever, because and I quote "Heaven doesn't want me, and Hell can't handle me!"...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cath-hater
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« Reply #11 on: May 10, 2011, 03:08:14 PM »
I'm more Atheist than anything, so I guess when I die I'm going nowhere.  ???
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Currently on PD using Fresenius.
PD for 9 years.
1 failed transplant in 2010 due to FSGS - donor kidney still inside and still producing urine (weird), but spilling alot of protein.
Off all immunosuppressants.
Currently not active on any list (by choice).
HouseOfDialysis
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« Reply #12 on: May 10, 2011, 03:23:14 PM »
If any faith is correct, I'm likely going to Hell. And I'm fine with that. I won't be able to sway any god's mind.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
HouseOfDialysis
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« Reply #13 on: May 10, 2011, 03:28:37 PM »
Quote from: rsudock on April 06, 2011, 04:43:45 PM
I love that game!!! lol just kidding friend....

Hhhmmm....I really do think I may go to heaven. Even though God and I are having a little bit of a beef right now...I do try to pray and hold onto faith. I have been very blessed in my life and the first time I got a transplant I really did feel like God or maybe an angel was there...I just wish I wasn't so scared of dying. my whole life I have had an intense fear about what happens when we die...I envy people who have such complete solid faith...I continue to search for reassurance and answers.

I heard once, That the more Einstein studied the universe, the more he was sure there was a God..

xo,
R

I have a friend who is a Lutheran minister, hell, my mother is a Carmelite nun. They are sure of their gods and path. I've never felt anything outside of my five senses. I don't think there is a god per se, but definitely a force of nature that started the Universe and all elements descended from hydrogen... But I have no connection to this world but the people I love and the songs in my heart. That's how I'll die. Loving them and singing as I go.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
Poppylicious
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« Reply #14 on: May 11, 2011, 06:28:28 AM »
So, what if we're all already dead and the 'life' we're 'living' is our hell?  (I would have said heaven, but it's more likely to be hell, eh?!)

 :angel;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
cath-hater
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« Reply #15 on: May 11, 2011, 09:15:29 AM »
Poppy -

I sometimes wonder the exact same thing!  I sometimes imagine that all us dialysis-stricken people were once "bad" in a previous life and now we are paying our dues in this lifetime.
Logged
Currently on PD using Fresenius.
PD for 9 years.
1 failed transplant in 2010 due to FSGS - donor kidney still inside and still producing urine (weird), but spilling alot of protein.
Off all immunosuppressants.
Currently not active on any list (by choice).
HouseOfDialysis
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« Reply #16 on: May 11, 2011, 01:05:52 PM »
So, that means I have to be a dialysis patient in the NEXT life, too?
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
willowtreewren
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My two beautifull granddaughters

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« Reply #17 on: May 11, 2011, 01:18:42 PM »
Quote
I heard once, That the more Einstein studied the universe, the more he was sure there was a God..

Actually, Einstein was not religious in the typical sense. He had an abiding respect for the beauty of the order within the Universe, but he did not attribute it to any god. Here is a quote from him:

"I do not believe in a personal God and I have never denied this but have expressed it clearly. If something is in me which can be called religious then it is the unbounded admiration for the structure of the world so far as our science can reveal it." (Albert Einstein, 1954)

Living a life without holding out hope that there is another life after this one makes this life all the more precious. For me it also means that I only have this one chance to do all the good that I can.

 :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
glitter
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« Reply #18 on: May 11, 2011, 03:59:58 PM »
I think when I die I will cease to exist. i wish i could believe there was 'more' with all my heart, but my mind just will not allow me to believe it. and that does suck for me, when people die and leave me its ridiculously final.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
HouseOfDialysis
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« Reply #19 on: May 11, 2011, 04:01:40 PM »
I'm right there with you, cat.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
Stoday
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« Reply #20 on: May 12, 2011, 10:44:10 PM »
Some for the Glories of This World;
and some Sigh for the Prophet's Paradise to come;
Ah, take the Cash and let the Credit go,
Nor heed the rumble of a distant Drum!
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
willowtreewren
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My two beautifull granddaughters

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« Reply #21 on: May 13, 2011, 06:02:25 AM »
Quote from: Stoday on May 12, 2011, 10:44:10 PM
Some for the Glories of This World;
and some Sigh for the Prophet's Paradise to come;
Ah, take the Cash and let the Credit go,
Nor heed the rumble of a distant Drum!

I like this thought! Thanks.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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