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Author Topic: What's the best thing that's happened to you today?  (Read 57660 times)
MooseMom
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« Reply #200 on: June 26, 2011, 07:23:56 PM »
I just want everyone to know that Chris drove to the ends of the Earth and back just to pick up Sugarlump from her hotel, drive her all the way out to my neck of the woods so that we could all meet for lunch, and then take her shopping at the Outlet Mall.  I am really grateful that they would both take so much time to come see me; THAT's the best thing that happened to me today!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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"There Is No Place Like Home!"
« Reply #201 on: June 26, 2011, 07:51:06 PM »
Awe, MM, that is GREAT!!!!  Way to go Chris and Sugarlump!  Thanks for the Pix's!

lmunchkin     :flower;  :cheer:
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
MooseMom
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« Reply #202 on: June 26, 2011, 07:59:14 PM »
There should be another pic posted soon of Sugarlump eating an enormous hot fudge sundae at Denny's.  It's priceless!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
boswife
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us and fam easter 2013
« Reply #203 on: June 26, 2011, 08:29:01 PM »
wow! best things happenen today is wathchen yaalll get together and haven fun..  LOVE it!.......  well, i can add that both my kidos also had great days today too.  Im kinda liven high off everyones great day today..hehe
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
RichardMEL
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« Reply #204 on: June 27, 2011, 02:32:19 AM »
I think it's fantastic that SL is having a lovely holiday in Chicago, and has got to spend time with great people like Chris and MM!! It's great when groups of us can get together for real. That's why vegas will be awesome :)

Thanks Chris for being SL's driver. Of course she's worth it  :rofl; :rofl; :rofl; :rofl;

I can just imagine her digging into a choccy fudge sundae! What a tease for all the dialysis folks!!! lol

hey it's living life, and it's awesome.

Hmm, I want one now!!!!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
natnnnat
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« Reply #205 on: June 27, 2011, 02:44:27 AM »
Quote from: Sugarlump on June 22, 2011, 06:57:31 PM
CHRIS and SUGARLUMP get to enjoy real Chicago Town pizza at the hottest pizza joint in town!!!!

I always wondered if Chris looks like his profile pic.  Answer:  he does!  Same haircut, and the potential to look that dapper in a morning suit.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Poppylicious
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« Reply #206 on: June 27, 2011, 07:07:31 AM »
Quote from: MooseMom on June 26, 2011, 07:23:56 PM
I just want everyone to know that Chris drove to the ends of the Earth and back just to pick up Sugarlump from her hotel, drive her all the way out to my neck of the woods so that we could all meet for lunch, and then take her shopping at the Outlet Mall.  I am really grateful that they would both take so much time to come see me; THAT's the best thing that happened to me today!
Yay!  How lovely!  I only live about an hour from Sugar and I still haven't met her.  D'oh!

Quote from: natnnnat on June 27, 2011, 02:44:27 AM
I always wondered if Chris looks like his profile pic.  Answer:  he does!  Same haircut, and the potential to look that dapper in a morning suit.
He does, doesn't he?  Exactly the same!  It made me laugh when I first realised.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Chris
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« Reply #207 on: June 27, 2011, 12:32:49 PM »
For Sugarlump, she finally got to go to an American Diner.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #208 on: June 27, 2011, 12:51:10 PM »
And what a delicious Sundae she is having!  :clap;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sugarlump
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10 years on and off dialysis
« Reply #209 on: June 27, 2011, 12:54:16 PM »
I Just want to say a precious thank you firstly to my donor family and my doctors for making this special trip possible.
I cannot tell you how amazing it is to have the freedom to travel to the States finally...I love it and everything American... I can't wait to come back!
Thank you Chris for being my driver (even if the freeway did scare the hell out of me!!!) and tourguide and meeting Moosemom and hubby Mike was fantastic in an
all American diner something I dreamt about ... eating a Western burger and a hot fudge sundae with the endlesss cups of coffee and have a nice days...could stay forever.
Even when it rained today did an Art museum and some more shopping ...fantastic!
Sadly i fly home tomorrow but what a time I have had. Been great to share it with you folks, knowing after 7 years of difficulties you folks really understand how it feels
Hopefully back Sept/Oct to NY and Vegas??? if I can tie it in, then California next spring...

LONG LIVE SIDNEY THE KIDNEY  :bandance;  :bandance;  :bandance;

PS. More pics to follow!!!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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10 years on and off dialysis
« Reply #210 on: June 27, 2011, 12:56:07 PM »
Quote from: Poppylicious on June 27, 2011, 07:07:31 AM
Quote from: MooseMom on June 26, 2011, 07:23:56 PM
I just want everyone to know that Chris drove to the ends of the Earth and back just to pick up Sugarlump from her hotel, drive her all the way out to my neck of the woods so that we could all meet for lunch, and then take her shopping at the Outlet Mall.  I am really grateful that they would both take so much time to come see me; THAT's the best thing that happened to me today!
Yay!  How lovely!  I only live about an hour from Sugar and I still haven't met her.  D'oh!

Quote from: natnnnat on June 27, 2011, 02:44:27 AM
I always wondered if Chris looks like his profile pic.  Answer:  he does!  Same haircut, and the potential to look that dapper in a morning suit.
He does, doesn't he?  Exactly the same!  It made me laugh when I first realised.

POPPY we must do lunch next time I come to Addenbrooks its a deal xxx  :waving;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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« Reply #211 on: June 27, 2011, 01:12:14 PM »
Quote from: Sugarlump on June 22, 2011, 02:54:43 PM
Funny you shpould say that cos I have a packet of ice cream flavour oreos right in front of me... and they are yummy!!!
 :rofl; :rofl; :rofl;

Thought she posted a picture. I should have bought 2!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kristina
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« Reply #212 on: June 27, 2011, 01:46:22 PM »

Great photos !  Chris, you look exactly like your profile picture.

Sugar, I did not know you go to Addenbrooks. Do you live near Cambridge?
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
gothiclovemonkey
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« Reply #213 on: June 27, 2011, 03:40:00 PM »
I took my son to the pool, as i usually do on my days off of dialysis... We WALKED the entire way there, which is not super far because the whole town is only about a mile long but we walked nearly the entire length of it...
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Chris
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« Reply #214 on: June 27, 2011, 04:28:07 PM »
I did not walk or drive anywhere today was the best thing, I needed rest. Bad part, came home to be a maid again for parents. >:( :stressed;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
gothiclovemonkey
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« Reply #215 on: June 27, 2011, 05:49:27 PM »
teehee did u get to wear the little outfit at least?
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Chris
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« Reply #216 on: June 27, 2011, 05:53:07 PM »
Quote from: gothiclovemonkey on June 27, 2011, 05:49:27 PM
teehee did u get to wear the little outfit at least?

No, did not want to shave legs to fit the outfit  :rofl;
 
Think my parents are like little kids regarding the kitchen.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
tyefly
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Posts: 2016


This will be me...... Next spring.... I earned it.
« Reply #217 on: June 27, 2011, 06:01:01 PM »
 I finished watering everything today .....  I am feeling really good these days and now I am back to gardening...
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Sugarlump
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10 years on and off dialysis
« Reply #218 on: June 27, 2011, 07:05:34 PM »
Quote from: MooseMom on June 26, 2011, 07:23:56 PM
I just want everyone to know that Chris drove to the ends of the Earth and back just to pick up Sugarlump from her hotel, drive her all the way out to my neck of the woods so that we could all meet for lunch, and then take her shopping at the Outlet Mall.  I am really grateful that they would both take so much time to come see me; THAT's the best thing that happened to me today!

And here's the picture to prove it!!!!
Chris Sugarlump and Moosemom @ Dennys outside Chicago proving that distance is no barrier to friendship on IHD  :cheer:  :cheer:  :cheer:
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
jbeany
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Posts: 7536


Cattitude
« Reply #219 on: June 27, 2011, 07:53:42 PM »
The fireflies are everywhere tonight.  Every blade of grass has its own holiday sparkler.

I'm craving a mason jar with holes punched in the lid....
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
boswife
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us and fam easter 2013
« Reply #220 on: June 27, 2011, 07:56:55 PM »
ohhhhhh beautiful garden Tye, we're gardning this year too,, foodies and flowers :)

  and LOVE the picture Sugar!  you guys look great and so happy :)

My happy, hangen out with grandson... dang he makes me happy... hes soooooooooo funny!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
natnnnat
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« Reply #221 on: June 27, 2011, 09:51:43 PM »
Quote from: tyefly on June 27, 2011, 06:01:01 PM
I finished watering everything today .....  I am feeling really good these days and now I am back to gardening...
Looking superb tyfly!  I love those little orange and purple numbers next to your door.  Pansies?  Just lovely arent they.
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
RichardMEL
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Posts: 6154
« Reply #222 on: June 27, 2011, 10:04:25 PM »
Quote from: Chris on June 27, 2011, 04:28:07 PM
I did not walk or drive anywhere today was the best thing, I needed rest. Bad part, came home to be a maid again for parents. >:( :stressed;

wow SugarLump tired you out THAT much huh?!  >:D >:D >:D >:D >:D >:D >:D >:D >:D >:D

*hide*
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Chris
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« Reply #223 on: June 27, 2011, 10:25:37 PM »
Yes, yes she did. Knee feels better from resting and eyes, well eye not in bright light. It was fun though exploring the city and tomorrow she is leaving when the weather is now getting sunny and hot.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RichardMEL
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Posts: 6154
« Reply #224 on: June 27, 2011, 11:06:37 PM »
well yes but SL is Sunny and Hot all by herself anyway so.. what's the difference????  >:D >:D >:D >:D

 :shy;

Speaking of which I am sharing with you all SL's new official Australian horse that raced her first race the other day. It's named SIR SIDNEY, a 2YO Bay Gelding with an American sire! :)

http://www.racingvictoria.net.au/Racing/horse.aspx?horse_code=915811

yes, it came last in it's first race - but the only way is up, right SL?!!  :2thumbsup;
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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