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| | |-+  Will someone talk to me? Pleease?
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Author Topic: Will someone talk to me? Pleease?  (Read 66421 times)
galvo
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« Reply #75 on: March 17, 2011, 05:15:39 PM »

Sugarlump, Your Murphy looks a really sweet boy!

jbeany, what a brilliant idea!
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Galvo
Sugarlump
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10 years on and off dialysis

« Reply #76 on: March 17, 2011, 05:46:14 PM »

Sugarlump, Your Murphy looks a really sweet boy!


He is. We'd just shared a picnic by the river together hence him licking his lips in the photo!
If anyone got me through the last 7 years it was him always there, always looking out for me and being the
reason to make me get up and walk everyday.
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #77 on: March 17, 2011, 06:00:14 PM »

Happy Burthday Murphy!

I'll try to post my Sugar Bear's picture.  She is a wonderful companion!!!  With my hearing loss, she is also my ears!  What would we do without our furry family?
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #78 on: March 17, 2011, 09:02:02 PM »

I am enjoying this thread - so random yet normal - it's nice - it's life beyond illness.
I am volunteering at an event we do each year to raise money for childrens music programs. We find a run down mansion, bring in 20 interior and 15 exterior designers, who donate their time and talent to renovate the home. We sell tickets for the house and garden tour, also have a restaurant tent and a marketplace - it's open for 4 weeks. Its a lot of work but very successful and the group has been raising funds with a different Showcase House for 47 years - here's a short video about the house. http://www.youtube.com/watch?v=TJ7NvXyNy7c
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Yvonne
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Yvonne

« Reply #79 on: March 18, 2011, 02:33:44 AM »

I've just watch the You Tube Video, it's just fantastic what you are doing Okarol.  I wished I could visit but I am in the UK.  But will keep looking in now and again to see how it's coming on. :clap; :clap;
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Des
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« Reply #80 on: March 18, 2011, 02:36:35 AM »

You know I told you about my ball of fluff sitting on her butt, well last night I started training the "roll over" It was 2 and a half hours of laughter and fun.

She had me and my daughter roll over on the carpet with laughter. I wonder who was training who? :rofl; 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters

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« Reply #81 on: March 18, 2011, 06:21:41 AM »

Quote
She had me and my daughter roll over on the carpet with laughter. I wonder who was training who? :rofl; 

Quite, right, Des! Your ball of fluff was saying: look, I was able to get those humans to laugh and roll over for hours!

 :rofl; :rofl; :rofl;

So glad you got a kick out of this!

I'm hangning with my granddaughters in Massachusetts. I can't tell you how much fun it is to listen to bickering between them.  :sarcasm;

They usually get along. But daughter and SIL are using our visit as a time to let us do some major baby sitting. I think I will have enjoyed my dear granddaughters quite enough for a while when we leave on Monday.

 :rofl; :rofl; :rofl;

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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013

« Reply #82 on: March 18, 2011, 07:47:09 AM »

thats so funny Des,,, and so good to hear  :flower;    And WillowT,  you cracked me up..  Theres nothen more precious than those grandbabies,, and "I was born to be a grama"  <----(a stollen quote by Chook  ;) )  but i have to be carfull as to the time of day i ask to keep my grandson as when im tired, im TIRED..hehe
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sugarlump
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10 years on and off dialysis

« Reply #83 on: March 18, 2011, 08:50:32 AM »


SUGARLUMP is VERY VERY  ;D HAPPY!
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Poppylicious
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« Reply #84 on: March 18, 2011, 12:33:27 PM »


SUGARLUMP is VERY VERY  ;D HAPPY!
*raises eyebrow and awaits an explanation*

Oh, and Happy Belated Birthday, Murphy!

jbeany ... I wish I'd been around when you were handing out lottery tickets!  We don't really do anything for St. Paddy's Day in little old England, at least not in the places I've lived (of which there are many.)

I spent my afternoon wasting time at a 'make your own cartoon strip' website.  Yes, I should have been busy planning lessons for next week (I was, sort of) but condensing the whole Twilight series into three images and no more than forty words was very entertaining (and surprisingly easy!)

(porridge, in case you're wondering)

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Sugarlump
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10 years on and off dialysis

« Reply #85 on: March 18, 2011, 12:56:17 PM »

Hi Poppy!
Just a certain man made me very happy this afternoon!
I could tell you who but then I'd have to kill you !!! so it will have to remain a secret!

 :P  :P  :P  :bandance;  ;D  ;D  ;D
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
willowtreewren
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My two beautifull granddaughters

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« Reply #86 on: March 18, 2011, 01:18:28 PM »

Sugar....you can tell me... :secret;

I won't tell....  :rofl;

But so gald you are happy!  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Poppylicious
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« Reply #87 on: March 18, 2011, 01:42:51 PM »

Hi Poppy!
Just a certain man made me very happy this afternoon!
I could tell you who but then I'd have to kill you !!! so it will have to remain a secret!

 :P  :P  :P  :bandance;  ;D  ;D  ;D
Oooh, 'citing!   ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Sugarlump
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10 years on and off dialysis

« Reply #88 on: March 18, 2011, 01:43:16 PM »

You're never going to believe it
 but ...
            :secret;


Uhu!
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
boswife
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us and fam easter 2013

« Reply #89 on: March 18, 2011, 02:44:21 PM »

oh no no no no nOOOOOOOOOOOOOOOO you dont!!! dont be holden out on your homies like that!!!  spill it chick!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sugarlump
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10 years on and off dialysis

« Reply #90 on: March 18, 2011, 02:54:18 PM »

My lips are sealed but he's good  8)
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #91 on: March 18, 2011, 04:00:04 PM »

Craig (my husband) and Kenny (my son) are out the door for a boy scout campout weekend.  I LOVE these weekends for several reasons.  I do NO cooking.  I watch chick stuff on TV and keep the flipper in MY hand all weekend.  I go to bed late and get up late.  And, most importantly, I know they are off having a good time together doing guy stuff.  These weekends give them something that is only theirs.  Anyway, I'm off to watch MY shows.  Have a good weekend all!
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lmunchkin
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"There Is No Place Like Home!"

« Reply #92 on: March 18, 2011, 06:26:47 PM »

Hey Paul/karen, what kind of bikes you have? Hubby and I have 1100 v-stars.  He got rid of his but I still have mine.  I put some Hard Chrome extention pipes on mine, to make it a little louder.  I love to ride. Im not crazy about doing it alone, but sometimes it can be so relaxing. I broke my ankle by slipping on ice in January and am just now allowed to weight bear. That is goning to slow my riding a bit, but I can't wait to slap that helmet on my head and RIDE!!!!!!!!!!!!
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
texasstyle
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« Reply #93 on: March 18, 2011, 09:28:34 PM »

Today I had a great day.
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caregiver to husband using in-center dialysis 4 years
Sugarlump
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10 years on and off dialysis

« Reply #94 on: March 19, 2011, 12:10:55 AM »

STILL SMILING!

 ;D  ;D  ;D  ;D  ;D  ;D

PS. WTF we had an overnight frost and its freeeeeezzzzzing!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Posts: 2160


10 years on and off dialysis

« Reply #95 on: March 19, 2011, 04:02:07 AM »

HEY Poppy where are you?
I'm having a coffee break between bouts of housework and need someone to chat to!

Chinese, wine and rugby tonight!!!! They'll be a riot in my corner of Suffolk if Italy and Wales win!!!!

 :bandance;  :bandance;  :bandance;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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*****
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Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #96 on: March 19, 2011, 09:27:05 AM »

And now I've broken the hoover ! **** Do you think I could mend it with superglue?
Oh well .. that's that no more hoovering ever!
                                                                   :bandance;  :bandance;  :bandance;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
del
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del and willowtreewren meet

« Reply #97 on: March 19, 2011, 09:43:59 AM »

We had 10 -12 inches of snow last night!!!  Yuck. Now it is clean up time!!
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Don't take your organs to heaven.  Heaven knows we need them here.
boswife
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us and fam easter 2013

« Reply #98 on: March 19, 2011, 09:56:15 AM »

oh goodness Del, SNOW ..... NOW!  lol, i can say we did have a cloud in the sky..lol  It's so weard to me when im sitting outside in shorts, to hear of snow... 
And as for today for us..... Ball game for grandson,,then BBq at daughters, and 'ick' fights for the guys tonight... some boxing type thying..  All in all, a great day  :2thumbsup;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sugarlump
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10 years on and off dialysis

« Reply #99 on: March 19, 2011, 10:01:39 AM »

bbq sounds good!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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