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Author Topic: Waiting for a kidney transplant: patients’ experiences of haemodialysis therapy  (Read 1636 times)
natnnnat
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« on: February 15, 2011, 04:05:22 PM »

from
http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2648.2010.05460.x/abstract

moran a., scott a. & darbyshire p. (2011) Waiting for a kidney transplant: patients’ experiences of haemodialysis therapy. Journal of Advanced Nursing 67(3), 501–509.
Abstract

Aim.  This paper is a report of an exploration of the experiences of patients with end-stage kidney disease who were having haemodialysis.

Background.  The losses and lifestyle disruptions caused by end-stage kidney disease are a fundamental source of suffering for people. The hope of a transplant is an important factor in people’s ability to cope with end-stage kidney disease and dialysis.

Method.  A Heideggerian phenomenological methodology was used. A purposive sample was selected of 16 patients with end-stage kidney disease having hospital-based haemodialysis therapy in the Republic of Ireland. Qualitative interviews were conducted in 2006–2007. Data were analysed using qualitative interpretive analysis.

Findings.  The overarching pattern identified was ‘Waiting for a kidney transplant’. This pattern consisted of three themes: living in hope, uncertainty and being on hold. Participants described their experiences of living in hope while they waited for a kidney transplant. However, as the waiting time continued indefinitely, participants became uncertain, and this meant that they were unable to contemplate opportunities in the future. Moreover, the restrictions of haemodialysis therapy prevented them from performing many of the activities they had taken for granted in the past. Consequently, they described their experiences of being on hold while they waited for a kidney transplant.

Conclusion.  Nurses should engage in open and honest discussions with patients in relation to kidney transplantation so that they are able to recognize and address their concerns about kidney transplantation.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
BillSharp
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rock 'n roll will never die

« Reply #1 on: February 21, 2011, 11:42:57 AM »

Well, this just about says it all. But I know a lot about transplants, having had one in the past for 20 years, so I don't need a nurse talking to me --- I need a kidney!
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Started passing stones at age 14 (Cystinuria)
Transplant in 1989 at age 50
Transplant failed in 2009 at age 70
Hemo and transplant list
Cadaver Transplant 7/1/2011 at age 72 (zero mismatch)
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