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Author Topic: Hospice  (Read 7181 times)
Mizar
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« on: January 26, 2011, 03:37:37 PM »

 Dear Fellow, IHD Members.  I wanted to Post, that as of Monday, Afternoon, My Husband, was put on Home Hospice care, due to His Congestive Heart Failure.
 I met with several of His Doctors and they all agreed, this was the best Plan. He was told that He could continue, Dialysis, as long as He wished. He did do a Dialysis session, on Tuesday and is due for another one Tomorrow, but as of Today, He is too Weak, to stand, on His own. Hospice was here, Two Hours after, they were called and have provided, everything, We need at this point. Please keep, My Family, in Your Thoughts and Prayers.

                                                                                                                                              Mizar - AKA-  Jo-Ann
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monrein
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Might as well smile
« Reply #1 on: January 26, 2011, 03:44:29 PM »
 :grouphug;  Mizar, this is sad but at the same time I'm sure it's the best plan as you say.  My thoughts are with you and your family and please keep us posted about how both you and your husband are getting along.  This is a very tough time I know.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!
« Reply #2 on: January 26, 2011, 05:02:51 PM »
xoxoxoxoxooxoxox
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www.caringbridge.org/visit/ottomachado
Sax-O-Trix
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« Reply #3 on: January 26, 2011, 05:09:01 PM »
I am sorry to hear about your husband's health.  Hopefully the Hospice team is taking good care of him, please remember to to take care of yourself through this trying time.
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Preemptive transplant recipient, living donor (brother)- March 2011
willowtreewren
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My two beautifull granddaughters

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« Reply #4 on: January 26, 2011, 05:09:57 PM »
I want to reach out and give you a real one of these

 :grouphug;

Hospice was a blessing for my mother.

 :grouphug;

I feel so helpless.

 :grouphug;

You are in my thoughts.

 :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
glitter
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« Reply #5 on: January 26, 2011, 05:11:52 PM »
I am Sorry about your husbands health too, I hope hospice takes good care of you both, I'm sorry you have to be in this situation, I will keep you both in my thoughts... :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
del
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del and willowtreewren meet
« Reply #6 on: January 26, 2011, 05:12:24 PM »
 :grouphug; So sorry. I'll be thinking of you.  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
cariad
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« Reply #7 on: January 26, 2011, 05:26:51 PM »
Oh, Jo-Ann. I am so sad for you right now. May you and your husband be surrounded with love through this journey.

You are in my thoughts.  :grouphug; :grouphug; :grouphug;
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okarol
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« Reply #8 on: January 26, 2011, 05:53:58 PM »
Dear Jo-Ann,
It's hard to find words. I am so sorry and send you all lots of love.  :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #9 on: January 26, 2011, 06:31:16 PM »
I feel for you in your sorrow.
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Galvo
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us and fam easter 2013
« Reply #10 on: January 26, 2011, 06:31:51 PM »
A sad heart here.  Bless you dear, and may God give you courage and strength..  With love and prayers for this time   :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
looneytunes
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Wishin' I was Fishin'
« Reply #11 on: January 26, 2011, 06:45:09 PM »
Mizar, you and your husband are in my prayers.   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #12 on: January 26, 2011, 09:16:25 PM »
I feel for your family....   I wish you the best   and the best to your husbund....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
breezysummerday
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« Reply #13 on: January 26, 2011, 11:33:14 PM »


You are in my thoughts and prayers Miss Jo-Ann
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
kristina
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« Reply #14 on: January 26, 2011, 11:59:30 PM »

I am so sorry, Mizar,
and I feel for your family,
Kristina.  :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Jean
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« Reply #15 on: January 27, 2011, 12:55:40 AM »
Very sorry to hear this Mizar. You are both in my heart and my prayers.  :grouphug;
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One day at a time, thats all I can do.
natnnnat
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« Reply #16 on: January 27, 2011, 05:39:17 AM »
I hope the hospice is a good place with compassionate people so that you can spend the rest of his time together peacefully.   :grouphug;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Darthvadar
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« Reply #17 on: January 27, 2011, 05:46:40 AM »
Mizar...

I'm terribly sorry to hear this news...

I'll be thinking of, and praying for you, your husband, and all of your family as you carry this cross...

May God bless and protect you....

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
billybags
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« Reply #18 on: January 27, 2011, 05:55:23 AM »
Mizar, I am so sorry to hear this. I am thinking and praying for both of you.
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carol1987
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« Reply #19 on: January 27, 2011, 08:08:34 AM »
 :cuddle; I am so sorry.... I wish you comfort and peace at this difficult time.....
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Brightsky69
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« Reply #20 on: January 27, 2011, 11:42:31 AM »
 :'(
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
ODAT
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Nala - Mom's Cat
« Reply #21 on: January 27, 2011, 01:08:16 PM »
My thoughts and prayers are with you and your family.  :grouphug;
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As is your sort of mind, so is your sort of search: you will find what you desire.
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #22 on: January 27, 2011, 03:25:39 PM »
Please God take care of this family....

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Chris
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« Reply #23 on: January 27, 2011, 08:34:13 PM »
Sorry to hear Mizar
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #24 on: January 27, 2011, 08:54:05 PM »
So sorry to hear this news.  My caring thoughts and prayers are with you both at this time. :grouphug;  Please keep us updated.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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