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Author Topic: Transplant on Wednesday Jan. 19th @ Mayo Arizona  (Read 3611 times)
hotnspicyazgirl
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« on: January 17, 2011, 06:56:10 AM »
Hi Everybody!

I wanted to let you all know you were right when you said that after the last time I ALMOST got a kidney, it wouldn't be much longer!!! I am scheduled for a four way paired exchange this coming Wednesday on Jan 19th! It will be at Mayo Arizona. I am so excited, and very nervous. This will be my 3rd transplant! My first two last 9 years, and 12 years respectively.
I am eternally thankful to all of the donors involved in this surgery, and pray for the guidance of the surgeons hands by God. I pray for the families who are concerned if their loved one is doing the right thing by donating, and for all of the people involved in making this happen.
This is not about me, it is about the kindness, love, compassion, and of other people who appreciate life. Thank you to all of you for being here, and for sharing your stories. Although I don't post much, I do read, a lot!
Please keep my donor, my mom, and all in your thoughts and prayers on Wednesday.

Many Blessings to you! Thank you!
Deanna

P.S. Sorry I dont sound excited, it's early, and my brain hasn't woken up yet! lol I AM RIDICULOUSLY EXCITED!
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paul.karen
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« Reply #1 on: January 17, 2011, 07:20:00 AM »
These paired exchanges are a Great thing.

I wish you and your mother all the best.  This is good news and right around the corner.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
edersham
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« Reply #2 on: January 17, 2011, 07:57:14 AM »
 :clap;  That's fantastic. I had my transplant at Mayo Phoenix 10 months ago. What a wonderful place and committed, caring staff.  You are in good hands. I'm actually looking forward to going back in a couple of months just to see the great people there.  Keep us posted.

Ed
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Bajanne
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« Reply #3 on: January 17, 2011, 08:32:15 AM »
 :yahoo; :yahoo; Great news!  Please be assured that your IHD family will be with you all the way.   :grouphug; Just keep us posted.  Get someone to let us know how you are doing.  My caring thoughts and prayers are with you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jbeany
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« Reply #4 on: January 17, 2011, 08:56:00 AM »
 :bandance; :bandance; :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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« Reply #5 on: January 17, 2011, 10:33:15 AM »
 :cheer: That's wonderful! Please take care and let us know how it goes!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #6 on: January 17, 2011, 03:57:30 PM »
WOOHOO!! Another IHD transplant. Sensational news!! Hoping it all goes well.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #7 on: January 17, 2011, 04:00:14 PM »
Good For you .....   I love transplants and everyone who receives them....LOL....

   the paired donation is really working.....  its a thing of the future......  I am just now signing up at the hospital who is a part of that program....  seems like with the right donor    it doesn take very long to get one.....

 let us know how you are doing........
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
galvo
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« Reply #8 on: January 17, 2011, 04:58:15 PM »
Wonderful news, Deanna! Keep in touch.
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Galvo
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« Reply #9 on: January 17, 2011, 06:07:45 PM »
This is excellent news.  Let us know how you go!   :cuddle;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Jean
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« Reply #10 on: January 18, 2011, 12:32:24 AM »
Such great news!!!! Best of luck to you, I hope all goes well for you, and please, keep us posted.
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One day at a time, thats all I can do.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: January 19, 2011, 08:19:30 PM »
 :waving; Thinking of you! I hope all went well!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
hotnspicyazgirl
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« Reply #12 on: January 22, 2011, 06:59:16 PM »
Hi Everyone!

I had my transplant in a 4 way paired exchange on Jan. 19th. I am home as of today, Jan. 22. All of us are doing VERY well. I left the hospital with a 0.9 creatnine, and all normal lab values.

I will update the whole experience when I wake up tomorrow. Thank you for all of the great thoughts, and prayers.

Deanna :yahoo; :2thumbsup; :clap; :grouphug; :thx;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #13 on: January 22, 2011, 08:00:26 PM »
 :clap; Great!!
I have added you to the list!
Members who've received Transplants... http://ihatedialysis.com/forum/index.php?topic=4927.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Cordelia
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« Reply #14 on: January 22, 2011, 08:21:49 PM »
That is awesome news!  :2thumbsup; :yahoo;Thanks for sharing your story with us!  :clap; :yahoo;Take care! :clap;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
RichardMEL
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« Reply #15 on: January 22, 2011, 09:35:02 PM »
Home after just THREE days?!?! That's incredible!!!!!

 :yahoo; :2thumbsup; :yahoo; :2thumbsup; :clap; :clap; :2thumbsup; :yahoo; :yahoo; :bow; :bow; :bow; :bow;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
natnnnat
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WWW
« Reply #16 on: January 23, 2011, 12:52:40 AM »
 :thumbup; :thumbup; :thumbup; :thumbup; :cheer: :cheer: :cheer: :cheer:
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
galvo
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« Reply #17 on: January 23, 2011, 05:48:07 AM »
so pleased!
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Galvo
Bajanne
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« Reply #18 on: January 23, 2011, 07:21:39 AM »
 :yahoo; :yahoo; :2thumbsup; :2thumbsup; :clap;  Excellent news!!!  We are listening out for your updates!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
carol1987
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« Reply #19 on: January 23, 2011, 12:29:47 PM »
 :cheer: :cheer: :cheer: :cheer:  Fantastic Deanna!!!!! :cheer: :cheer: :cheer: :cheer:
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
kellyt
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« Reply #20 on: January 23, 2011, 02:59:14 PM »
 :beer1; :yahoo;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MakeMyDay
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« Reply #21 on: January 24, 2011, 10:31:33 AM »
Wow that's terrific news. 0.9 sounds excellent. Please share about your experience @ Mayo Arizona. Tell us about the surgeons and nephrologists. I just completed my transpant eval at Mayo.

I hope you get well soon.
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"So it's written, so it shall be done."
May 2010 : started HD
Dec 2010 : switched to PD
Jan 2011 : completed transplant eval @ Mayo Arizona
Nov 15th 2011 : Successful living donor transplant @ Mayo
Jean
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« Reply #22 on: January 25, 2011, 11:32:34 PM »
So happy for you. Wow, 3 days in the hospital, that is outstanding!!!
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One day at a time, thats all I can do.
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #23 on: January 26, 2011, 03:58:53 AM »
so happy you are doing well!!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
edersham
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« Reply #24 on: January 26, 2011, 07:47:30 AM »
Hotnsoicyazgirl,

Sounds like everything is going awesome for you. Are you on prograf and cellcept  they have worked well for me the last 11 months.  My bumps in the road have come from some of the other medications. I hope your recovery continues flawlessly.

MakeMyDay,

Regarding your question about Mayo Phoenix staff, in my opinion they are awesome. The head nephrologist manages all the tx patients and you see him frequently, both surgeons that I and my donor had were great and the tx coordinators are efficient and actually easier to reach during the off hours than during business hours. After about 6 wks they hand off your primary care to your local neph but keep consulting whenever necessary and you return to Mayo for a 4 mo and annual evaluation. If you have a problem and your local neph is on vacation you can always call the tx coordinator and mayo will deal with your issue until your neph is available again. the statistics show the average wait time at Mayo is short(19 mo) but I think that is partially influenced by the fact that they do more live donor transplants than those from deceased donors.

Best wishes
Ed
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