LarryG
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Grateful to my donor, I feel great!.
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« on: January 14, 2011, 02:54:17 PM » |
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I am coming up on 3 years waiting for a transplant. 1 out of 6 African Americans are transplanted. Was wondering how long it took for you on a waiting list for a cadaver to receive a kidney? Or how long have you been waiting? They tell me in my state it is a 5 to 7 year wait.
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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Deanne
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« Reply #1 on: January 14, 2011, 03:26:46 PM » |
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I'm just starting the evaluation process and I understand it's about a 2-year wait here (Oregon). It's very dependent on where you live. I'm lucky to live where I do. Where are you?
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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Ang
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« Reply #2 on: January 14, 2011, 08:23:44 PM » |
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in australia the average wait is about 4 years,can blow out to 7 or 8 years
had a lady at d waited 11 years, she is coming up to her 1 year kidneyversarry in the next few months
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live life to the full and you won't die wondering
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RichardMEL
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« Reply #3 on: January 14, 2011, 09:51:46 PM » |
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Just shy of 5 years for me. Hooray!!!!
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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tyefly
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« Reply #4 on: January 14, 2011, 10:19:05 PM » |
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Deanne.... I live near Portland too.... Most transplants are done thru OHSU... where right now there is a 2.7 year wait for a transplant..... OHSU is not with the Paired Donor exchange program..... Legacy is and their wait for transplant is only 12.1 months..... If you have a donor Non blood type go to legacy.... and sign up for their Paired exchange program.... I am switch from OHSU to legacy right now so that I can get sign up thru the Paired Exchange program....
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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Riki
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« Reply #5 on: January 14, 2011, 11:05:55 PM » |
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It'll be 7 years for me in May. The average wait time here is 5 years. I don't know if there's a reason why my wait has been so long, just that my name hasn't come up yet. My mom is about to start her evaluation in order to be a donor in the paired donor exchange program, so as long as there's nothing to stop her from donating, there's another option for me. I did have a friend offer to give me a kidney, but I'm not sure if she's still interested
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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LarryG
Full Member
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Posts: 149
Grateful to my donor, I feel great!.
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« Reply #6 on: January 15, 2011, 09:43:24 AM » |
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I live in Illinois the Chicago area. I know of people that have been transplanted quicker. Not sure if it is because of blood type or facility. It seems all inconsistent to me. Why should it be different if you live in different states?
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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phyl1215
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« Reply #7 on: January 15, 2011, 10:18:41 AM » |
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I'm on the list 2 yrs. In SE Ohio told the wait is 3-5 yrs. I have very high antibodies so for me it will be like winning the lottery!
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012
Learning To Dance In The Rain
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Brightsky69
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« Reply #8 on: January 15, 2011, 10:31:30 AM » |
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I wanted about 2 years for my kidney. They told me I'd probably have to wait 4 to 7 years.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
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bette1
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Posts: 316
My dear daughter
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« Reply #9 on: January 15, 2011, 08:16:53 PM » |
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I waited 2 years for my first Kidney and 4 years for my second. The wait times in Chicago can be long because there are so many centers doing transplants and they all have to share from the same pool. I'm african american with type o blood. Both of my kidney transplants were done at University of Wisconsin at Madison. Have you thought about being double listed? You can even transfer your waiting time. It's much shorter at Madison.
The best bet though is to have a living donor. What center are you listed at in Chicago?
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant #2 5/24/10
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LarryG
Full Member
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Gender:
Posts: 149
Grateful to my donor, I feel great!.
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« Reply #10 on: January 15, 2011, 08:29:36 PM » |
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I have a meeting with University of Wisconsin at Madison March 1 for evaluation. They have my records where I am listed at University of Illinois Chicago. I too am O+ positive and I am trying to find a living donor and do what ever I can to get a transplant.
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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Jie
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« Reply #11 on: January 16, 2011, 02:08:11 PM » |
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Deanne.... I live near Portland too.... Most transplants are done thru OHSU... where right now there is a 2.7 year wait for a transplant..... OHSU is not with the Paired Donor exchange program..... Legacy is and their wait for transplant is only 12.1 months..... If you have a donor Non blood type go to legacy.... and sign up for their Paired exchange program.... I am switch from OHSU to legacy right now so that I can get sign up thru the Paired Exchange program....
If just for paired exchange, it is fine to go to Legacy. Waiting times at Portland are much more complex than 2.7 years or 12.1 months. For blood types AB or A, it should be less than 2.7 years. For blood B, it is longer than 3 years. Waiting times are shorter for Legacy than OHSU. Since they use the same waiting list, you need to wonder why one has a shorter waiting time? Does Legacy use the kidneys that OHSU would not use? Apparently, the results for OHSU are much better than Legacy, which, to me, is a concern with Legacy. |
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bette1
Full Member
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Posts: 316
My dear daughter
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« Reply #12 on: January 16, 2011, 05:22:45 PM » |
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Good luck at your evaluation meeting! I hope you find a kidney soon. Ask about transferring your waiting time and see what they say.
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant #2 5/24/10
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