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Author Topic: Hi.....My name is Wifedonor  (Read 3956 times)
wifedonor
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« on: December 28, 2006, 06:40:00 AM »

Hi....my name is Wifedonor.  I have tried to post several times ....and even sent an empty post. Sorry about that.  Anyway, I am exactly as my name says.....a kidney donor to my husband.  Yes.....I have many roles:  wife, health advocate, nurse....etc.  He is scheduled for his kidney transplant for 1/02/07.  So we are having an interesting way to start off the new year for sure.  My husband was diagnosed with FSGS when he was 18....he was trying to take the physical exam for the military.  That was almost 20 years ago.  He is 37 and I am 33.  Of course he didn't pass due to the amount of protein in his urine.  That's when it all began.  From there he had a biopsy and the FSGS was discovered.  Since then he was been to a couple of doctors and on many medications.  Yet, I believe it wasn't until about Aug. 206 that he became he an "advocate" in a sense of not being in denial and afraid to the point of not "really" asking questions and just going along with the routine of the dr. visits or labs and stuff.  Oops, I forgot to mention that we met 1/17/03 at church.  We were engaged by July and married on 3/27/04.  Yes...it was a world wind....and it hasn't been boring at all.

Right now my husband has about 13% or so kidney function.  This whole process has been stressful from many aspects.  Everyday that we get closer to the surgery I find that I feel more overwhelmed.  Even though he has six other siblings.....none of them have much of a relationship with each other....that is sad.....so I was the only one tested.....and amazingly enough we were a match.  Although race doesn't matter people are amazed that we were a suitable match even though we differ in this regard.   Although the health professionals mentioned dialysis was an option my husband didn't even want to do dialysis at any point.  Of course we both did research and decided that the transplant would be the next best step.  He has been on the transplant list with our local hospital....but no call as of yet.  I believe that the only reason we are nearly as strong is because of our faith and the prayers of others.  So this journey continues to get more exciting as the days go by....

This is a great site...and I am glad that I was accepted to join.  Of course I don't know how much I will post between now and the next few days....but know that I have learned so much from all of you.

May your new year bring the things that money can't buy:  health and wellness!!!

Wifedonor
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Joe Paul
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« Reply #1 on: December 28, 2006, 06:52:50 AM »

Welcome Wifedonor, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
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Sluff
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« Reply #2 on: December 28, 2006, 07:09:02 AM »

Welcome Wifedonor,

Talk about an excellent introduction. I too have been diagnosed FSGS so I know everything your husband has been through. I've always said my kidney disease is not what has made me sick, it has been the medicine reactions that cause my symptoms of disease which others don't understand. So with that said I thank you for being a good wife, donor, friend, and caretaker to your husband.

I hope you find all the information that you need here and I hope you join the chatroom once in awhile.

I'm also happy that you have your faith, it will carry you through any difficult times, but remember we are here for you as well.

Sluff
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nextnoel
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« Reply #3 on: December 28, 2006, 07:11:16 AM »

Welcome to you, Wifedonor!  :welcomesign;  What an exciting way to begin the New Year!  I admire you for your good heart (and the good kidney you're donating to your hubby! :))  What a wonderful gift for you both!  You'll be in my prayers. :grouphug;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
paris
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« Reply #4 on: December 28, 2006, 08:54:03 AM »

Welcome. It is nice to meet you; great post. I also have FSGS - there are several of us here with it. I respect anyone who is willing to donate. Your husband is fortunate to have such a caring, giving wife.
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« Reply #5 on: December 28, 2006, 10:19:34 AM »

Welcome to our community.  We are so glad to have you here.  Please always remember that we are in this with you.  You will not be going through this time alone.  Just keep posting and let us know how you both are doing.
My prayers and caring thoughts go out to you both.
God bless you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
goofynina
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He is the love of my life......

« Reply #6 on: December 28, 2006, 12:24:33 PM »

Hi Wifedonor,  I tell you, the Lord sure works in mysterious ways doesnt he?  I love your story and although i am very sorry for what your hubby is going through, (we can all relate) I am very happy he has you.  Good luck with the upcoming transplant, our thoughts and prayers will be with both of you that day.  Keep us posted on your recoveries ok  :2thumbsup;
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....and i think to myself, what a wonderful world....

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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #7 on: December 28, 2006, 02:36:33 PM »

 :welcomesign; Wifedonor, and to you and your husband, Good Luck with the transplant.  :welcomesign;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
charee
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« Reply #8 on: December 28, 2006, 02:38:15 PM »

  :welcomesign; you have found a great site ..
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Epoman
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« Reply #9 on: December 28, 2006, 03:08:12 PM »

Welcome,

I wish you the best, and I would appreciate it if you post your story after the transplants, you know the specifics and the details of the surgery. My wife and I are the same blood type, but I never let her go get tested further, because I want her to save her kidney in case our son ever needs it GOD FORBID. Welcome to the site and Godspeed.

- Epoman
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Jill D.
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« Reply #10 on: December 28, 2006, 07:33:07 PM »

 :welcomesign; Wifedonor! I was diagnosed with FSGS in 1990 and just had a transplant on Dec 5, 2006! My sister was my donor, and we are both doing great! All the best to both of you...you are an angel to do this for your husband.
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
jedimaster
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Stainboy is....alive!!!

« Reply #11 on: December 28, 2006, 08:11:21 PM »

 :welcomesign;
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Ohio Buckeye
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« Reply #12 on: December 29, 2006, 07:30:26 PM »

Welcome to the site.
Will keep you and your husband in thought and prayer as
you go through this time.  What a way to start the new year.
Keep us posted. 
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boxman55
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« Reply #13 on: December 30, 2006, 07:07:58 AM »

wishing you and your husband all the best in the coming week Good Luck to you
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Fighter
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« Reply #14 on: December 30, 2006, 04:47:56 PM »

Wifedonor, I don't know you obviously but by this single act you are proving beyond any possible doubt that you are a good person. I wish you nothing but success and happiness and I will be happy to read about your imminent transplant stories...
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mallory
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« Reply #15 on: January 03, 2007, 11:10:21 AM »

WifeDonor, Your husband is lucky to have you, welcome to the site, I hope everything is going well.  :welcomesign;
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Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
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Zach
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« Reply #16 on: January 09, 2007, 07:42:09 AM »

Welcome Wifedoonor!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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Going through life tied to a chair!

« Reply #17 on: January 09, 2007, 02:50:00 PM »

Wifedonor.  You are a wonderful person to do this for your husband.  I'm sure you will both do fine.  You have the Lord on your side and that is what counts.  Prayers to you both!

Rerun / Moderator
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