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Author Topic: Hi from new member Kay  (Read 2320 times)
Kay
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« on: December 24, 2010, 02:55:51 PM »
Hello to all at I hate Dialysis!  I keep pressing the introduction button  - but nothing is happening so here I am on new topic - sorry!!
My husband has just started CAPD following three months on Haemodialysis - I am with him through every exchange and so far so good. My question is regarding the number of exchanges per day. If we get a late start, then it is difficult to fit in four exchanges - so on a couple of occasions we have just done three, otherwise we end up putting in a bag around midnight and then can't sleep!  With the use of the long dwell Extraneal it seems like three exchanges are enough  - we see the doctors next week so will ask  - but I would like to know if anyone else does three instead of four. 
I am looking forward to following the posts on this site - the world of Dialysis is still very new to us.
Merry Christmas folks, Kay
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galvo
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« Reply #1 on: December 24, 2010, 04:20:01 PM »
G'day Kay,  :welcomesign; and Merry Christmas! All your questions will be answered here.
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Galvo
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #2 on: December 24, 2010, 05:32:17 PM »
hello kay and welcome. sorry i am not on PD but someone else will know how to answer your question.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
looneytunes
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Wishin' I was Fishin'
« Reply #3 on: December 25, 2010, 10:06:59 AM »
Hi Kay...you have landed in a good place!  If your hubby's kt/v comes back good, then you are doing all right with the schedule you are following.  My hubby was on PD for 2 years and we used the Baxter cycler for night-time PD.  It took some getting used to (sleeping with the sound of the machine running) but was SO worth it in order to have our days freed from the exchange schedules. 

Merry Christmas to you and your hubby and welcome to IHD.  :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
ChickenLittle56
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Chickenlittle and Maria
« Reply #4 on: December 25, 2010, 07:25:21 PM »
Merry Christmas and  :welcomesign; to IHD. I am pretty sure that you can find solutions to your husbands PD problems on this site.
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
Rerun
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Going through life tied to a chair!
« Reply #5 on: December 26, 2010, 03:48:17 PM »
Hi Kay, welcome to IHD.  I'm so glad you found us!  I was on PD but it was so long ago I don't feel I can answer your question.  I do hemo now.  I hope you come back often.

Rerun, Moderator         :welcomesign;
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paris
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« Reply #6 on: December 26, 2010, 04:06:42 PM »
Hi Kay and welcome to IHD.  This is a great site and you will find so much information here. Plus tons of support.  Looking forward to reading more of your posts.  Glad you joined us.   :cuddle;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Kay
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« Reply #7 on: December 26, 2010, 04:42:23 PM »
Hello to all those IHD members who sent welcome greetings. It is comforting to know as I sit here, gone midnight, that there are people out there who understand the impact of dialysis on daily life.  I try to keep my husband in a positive frame of mind but he said tonight that he thought he would have been better off dead! We tried to pre-empt dialysis by going straight for transplant, but it was one of the tests in the build up to transplant that put us in this position - much sooner than we needed to be. The coronary angiogram dye completely ruined what was left of his kidneys (Efgr 21) and resulted in him going into kidney failure then cardiac arrest. He ended up  in ICU and we had weeks of pain and suffering because of the CPR they used to revive him. Having been placed in what is called the "Quiet Room" at the hospital - I am just so grateful he has lived to grumble about life! I hope to do my side of the tests in the new year and either give him my kidney ( by taking out antibodies as we are not a match)  or do a swap with others in our position.
Wishing all members a very happy and healthy New Year -  Kay :)
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Henry P Snicklesnorter
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« Reply #8 on: December 26, 2010, 05:58:54 PM »
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« Last Edit: October 23, 2013, 06:42:32 AM by Henry P Snicklesnorter » Logged
Kay
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« Reply #9 on: December 27, 2010, 02:50:54 AM »
 Hi Henry,
Your  message is quite inspirational! I suppose because my husband has now retired (he is 65) he is not too keen on getting up early! This of course impacts on the number of hours in which to do dialysis. I notice that you do your first exchange at  5am - we often don't get moving until 8.30am. Last night we did the fourth exchange at almost midnight and then it is difficult to sleep - so getting up in the morning gets harder.  After the holidays I will be back to work (I am  a Specialist teacher for Inclusion and an Autism trainer ) so we will have to start earlier. I think you are brilliant for just getting on with life and not letting the dilemma of dialysis deter you!
All the best for 2011,
Kay :)
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monrein
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Might as well smile
« Reply #10 on: December 27, 2010, 05:23:44 AM »
 :welcomesign; Kay.  Like all caregivers you're in a tough spot...as a patient, I thank you for caring for your husband and caring about him too.  I hope you'll find this site as supportive as so many of us do.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Kay
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« Reply #11 on: December 29, 2010, 02:16:13 AM »
Hi IHD members,
As we are new at this game, can anyone explain about the PET test. Just when I thought there was only infection to worry about, now it seems they will assess what sort of transporter my husband is. I don't want to mention it to him as he is stressed out enough  - but an idiots guide to transport rate would be very welcome.  Kay ???
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Henry P Snicklesnorter
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« Reply #12 on: December 29, 2010, 02:33:02 AM »
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« Last Edit: October 23, 2013, 06:39:28 AM by Henry P Snicklesnorter » Logged
Desert Dancer
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« Reply #13 on: December 29, 2010, 06:31:04 AM »
Hi, Kay and  :welcomesign; to IHD! There are tons of people here who do PD so you should have no problem finding answers.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
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