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Author Topic: changes to your d schedule while working  (Read 4970 times)
sullidog
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« on: November 17, 2010, 08:03:58 PM »

For those of you that work like me, when your dialysis schedule changes around the holiday do you have trouble getting time off? Like for example, On Wednesday and Friday our center is closing early which means I have to take those days off so I can dialyze, well I asked my supervisor and do to the service level we had to go to upper management and luckily they approved it, now the way I see it if I ask for the day off because of my dialysis there should of been no question as to to let me off or not, that's between life and death for me! So what do you guys think? should we be able to override our bosses decisions when it comes to our dialysis?
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Des
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« Reply #1 on: November 18, 2010, 01:11:37 AM »

Yes, I will have to take unpaid if they don't cooperate. We have no choice. It is not like a dentist appointment  that you can just re-schedule.

 :Kit n Stik; 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Desert Dancer
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« Reply #2 on: November 18, 2010, 07:40:42 AM »

Absolutely! Like Des said, this isn't like some dentist's appointment or hair appointment that can be rescheduled. It's life and death. If your bosses won't cooperate then you need to make it very clear to them what the situation is, and that your dialysis is non-negotiable and unfortunately not subject to THEIR needs.

Of course, you'll need to say this in the most diplomatic way possible. But still, you need to be clear and firm. This is your health, and your life.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
sullidog
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« Reply #3 on: November 18, 2010, 04:28:12 PM »

I stand for the same thing if your acess is messed up.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
kitkatz
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« Reply #4 on: November 20, 2010, 12:54:02 PM »

Damn right. Your life is more important than any job!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
mustaffa
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« Reply #5 on: November 20, 2010, 10:15:48 PM »

nway..we r soo lucky dat they still employed us after knowin d risks dat we r dialysis patients...most employer r not in favor appoint anyone who carried any diseases or watsoever disease while workin...rite?

mkb
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Mustaffa
1999-diagnosed with ESRD
1999-2001-Start Haemo
2001-2010-10 years CAPD (peritonitis zero)
May 2010 till now- switch back to Haemo
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #6 on: December 10, 2010, 05:43:11 PM »

ticks me off when employers discrimanate or don't bother to help out dialysis patients. yeah they don't want us on their insurance racking up bills, but at the same time they bitch about paying taxes to help people living on the system. it is like we are damned if we do or damed if we don't....i mean my gawd what should we do? it is not our fault we are sick have some GD compassion people!! I hate feeling like i should just be taken out back and shot. i mentioned to my bosses that I needed some extra support and dialysis has been rough, but of course I can't have any extra help in my classroom. then i mentioned resigning and they were all about jumping on that bandwagon..."oh sure R we will do whatever we can to get you out of your contract." jerks! live long enough and you eventually get sick.

my sister just had a baby and her husband's boss gave him $300 extra dollar bonus, pay raise, 2 paid weeks off from the job, and a bunch of instant scratch lottery tickets....wow, they don't make bosses like that anymore....must be an alien!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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