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Author Topic: my mom is now in a hospice home  (Read 2739 times)
karen547
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« on: November 15, 2010, 06:10:58 PM »
 :grouphug;
 :'( it has been awhile and I'm sorry. My mom is now in hospice. She has fought a long battle but unfortunately it looks as if she is losing strength to fight. She is in a beautiful home she was moved there today from the hospital due to medicaid and the fact she's stabilized. I am doing well on the kidney front and only have clinic once a week now! So please keep my mom and family in your thoughts and ill do the same love you all
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boswife
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us and fam easter 2013
« Reply #1 on: November 15, 2010, 06:17:28 PM »
Im sorry for you that this is all happening,(your too young to loose your mom  :'(  ) but i can say that hospice is a wonderful gift from God.  They treat thier people with utmost respect and care and it's like 'make a wish' for the patient.  My daughter is going back to work with hopice just for the fact that it is so fulfilling to all. Bless you and give you strength during this time.  Take care of yourself, im glad your doing well with your kidney, and keep up your strength and faith..  Bless your family  :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: November 15, 2010, 06:26:52 PM »
Karen, sending you love and hugs. I am sorry about your mom and I pray things go easy for her. Thank God you're doing well. It may give her some peace knowing that you're healthy.  :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #3 on: November 15, 2010, 07:23:37 PM »
 :grouphug;
So sorry, karen.  Take care of yourself.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Rerun
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Going through life tied to a chair!
« Reply #4 on: November 15, 2010, 07:26:47 PM »
So sorry Karen.  Please keep us posted.  We are here for you.

          :grouphug;
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galvo
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« Reply #5 on: November 15, 2010, 09:42:56 PM »
 :bestwishes; Karen. To you and your mum.
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Galvo
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« Reply #6 on: November 16, 2010, 12:18:35 AM »
I hope you and your mom both are much more comfortable with hospice.  They do such good and important work.  Hospitals are such dismal places...the emotional comfort that hospice can offer is usually absent in a hospital setting.  I'm glad your mom made this move.   :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Jean
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« Reply #7 on: November 16, 2010, 12:24:05 AM »
So sorry to hear this Karen. Take care of yourself and keep your chin up.   :cuddle;
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One day at a time, thats all I can do.
monrein
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« Reply #8 on: November 16, 2010, 05:11:43 AM »
I'm so glad to hear that your transplant is doing well and of course I'm sorry to hear that your Mom is losing her battle.  Thinking of you and your family Karen.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Hazmat35
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« Reply #9 on: November 16, 2010, 05:26:18 AM »
As I write this I have tears running down my cheeks.  God Bless you and your family!  We will be praying for you.  I lost my Mon 10 years ago, my Sister 4 years ago, and my Dad 1 year ago.  Lost both in-laws within the last 4 years, and a Grandmother. 

I share your pain!!!!   :cuddle; :cuddle; :cuddle;
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
Desert Dancer
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« Reply #10 on: November 16, 2010, 06:44:47 AM »
Karen, I'm so sorry to hear about your mom.  :cuddle; I'll be keeping you and your family in my thoughts.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Poppylicious
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« Reply #11 on: November 16, 2010, 09:40:12 AM »
I'm so sorry, Karen.  *huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
glitter
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« Reply #12 on: November 16, 2010, 10:05:37 AM »
Hi Karen- I am glad to hear your kidney is doing great, but I am sorry to hear your Mom is in hospice, losing a parent is difficult.   :grouphug; :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
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