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Author Topic: Hi Everyone!  (Read 2035 times)
lpshouse
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« on: November 09, 2010, 11:41:17 AM »
Hi Everyone!,

My name is Larry. I was diagnosed with PKD in 2001, and my kidney function has been going down steadily over the past nine years. My eGFR has recently reached 19, and that has triggered several things for me. I am in the process of applying to be put on the transplant list at both Florida Hospital Orlando and Shands Hospital in Gainsville Florida. I'm also scheduled for some classes in nutrition and the different types of dialysis so I can choose a method most suited to my lifestyle.

My sister and best friend's wife are both the same blood type as me, and have offered me a kidney. I hope to find one of them a close enough match before too much longer.

I know most of you have already gone through what I'm facing, and I look forward to learning from your experience.

Larry
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peleroja
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I have 16 hats, all the same style!
« Reply #1 on: November 09, 2010, 11:55:52 AM »
Welcome to the group, Larry.  Lots of good information and friends here.  Glad you joined!
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Scarlet
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Can someone wake me up please
« Reply #2 on: November 09, 2010, 12:27:26 PM »
Hi lpshouse, I am about the same point you are. I also have PKD and as of last blood work in Sept was at a 22GFR, expecting it to be below 20 by Dec at next clinic appointment.  This a great group, you can learn so much here and really let a rant off if you need to, they have been there and they all understand!

 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #3 on: November 09, 2010, 05:02:07 PM »
Welcome to our community, Larry!  You are the second Larry to join us recently!  This is a great place for information, support and encouragement.  There is so much here to read to help you make some important decisions.  I really hope that one of you dear ones is a great match.  Then you can join our Hall of Fame of Transplants.  YOu will soon find that this is much more than just a forum - it's a genuine family  :grouphug; caring and sharing.  Just keep reading and keep posting, so we will know how you are doing (in the appropriate section, of course!)





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
galvo
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« Reply #4 on: November 10, 2010, 03:07:31 AM »
G'day Larry and  :welcomesign;.
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Galvo
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Going through life tied to a chair!
« Reply #5 on: November 10, 2010, 05:31:38 PM »
We have had two Larrys in a row is there a Darrell in the crowd?

Welcome to IHD, I'm so glad you found us.  It sounds like you are in a good place if they have classes.  WOW!

Come here often and read lots.  You are taking the first step to learn about your disease and the treatment.

Rerun, Moderator          :welcomesign;
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #6 on: November 10, 2010, 05:35:22 PM »
hello larry!!!
welcome friend!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Desert Dancer
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« Reply #7 on: November 11, 2010, 11:20:09 AM »
Hi, Larry, and  :welcomesign;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
lpshouse
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« Reply #8 on: November 11, 2010, 05:53:08 PM »
Thanks for the warm welcome everybody. It's good to come here, read and learn from you all, but the best part is the family atmosphere. and the support from others. I'm lookng forward to hanging out here.
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looneytunes
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Wishin' I was Fishin'
« Reply #9 on: November 11, 2010, 07:15:41 PM »
Hi Larry and welcome to IHD...you are SO right, this is a great family to be a part of.  Post often and best wishes on your tx journey. :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
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