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Author Topic: our diatition can be confusing  (Read 3180 times)
sullidog
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« on: October 20, 2010, 04:37:29 PM »

Our diatition is saying that our numbers should be or shouldn't be at a certain number then what the neph tells us, like for example my calcium is at a 10.2 the diatition says that's hi but the neph and the nurses says it's fine, it's confusing but I think I'd rather listen to my neph then the diatition when it comes to labs, how about you does your diatition disagree with your neph on labs?
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
natnnnat
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« Reply #1 on: October 21, 2010, 02:33:11 AM »

My mother in law was in hospital a couple of weeks ago and her potassium got to "3".  The nurse said that was "dangerously low", so they put a potassium drip on her arm which made her cry, apparently it hurts like anything.  Then we saw one of her cancer team, he said that wasn't dangerous, "take that with a grain of salt", its not dangerous till it gets around 2, he said.  Yes, confusing.  She is back in hospital again now, and had a potassium drip again for a few days.  Yes, its confusing isn't it. 
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Natalya Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
billybags
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« Reply #2 on: October 21, 2010, 04:20:49 AM »

I know what you mean. At first when you go on dialysis you get over crowded with dietitians, and food plans, "you can not eat this" "you can not eat that" after a while you get to know what is good for you and what is bad. What to eat and what not too. We have a sensible dietitian guy. He says eat a little of what you fancy, do not deprive your self. If the bloods come back and some thing is up or down our nurse will tell us and then we can adjust things. I can not remember the last time we saw a dietitian. Eat sensibly, you know not to eat any thing with salt, any thing with high potassium, you know not to drink lots of fluid. Stick to a good diet, eat lots of fresh cooked food. Some times it is the tablets that send your bloods over the top, the neph should address this.
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jbeany
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« Reply #3 on: October 21, 2010, 03:59:26 PM »

Sulli, is your dietitian a general one who sees all kinds of patients, or just one for dialysis patients?  If you have a general one, she may be comparing your labs to the numbers for a healthy person.  We get a bit more leeway for what counts as "safe" levels as D patients.  I'd go with the nurses and the neph, at any rate.  Or at least ask the neph why the dietitian always gives you different answers - if she's doing it wrong, he may actually correct her.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

sullidog
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« Reply #4 on: October 21, 2010, 05:40:02 PM »

She's one that makes her rounds. She's also the one that told me that my low potassium wasn't a big deal, but it is.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
jbeany
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« Reply #5 on: October 22, 2010, 10:05:47 AM »

Okay, so she's an idiot.  Just nod politely and ignore her advice!  Your best bet is to make a list of dialysis patient "normal" ranges and start demanding copies of the real lab results so you can check them for yourself.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cookie2008
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« Reply #6 on: October 22, 2010, 08:39:33 PM »

potassium in an iv hurt so bad I made them stop, 45 min after it still hurt, I take it in pill form never again in an iv. Mine is running 3.6 right now.  When I talk to the dietitian she explains then tells me to listen to my neph.
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Started PD in 11/07
Started Hemo in 7/08
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