my story

[kimi_g89]

My name is Kimi, I am 21 years old and I am new to dialysis. Since I was 12 I knew about my kidney problems, but when I was 18 I quit going to the doctor cuz I believed that if I didn't think about it then it didn't exist. Which was completely stupid I know now. A week after my 21st birthday I got hospitalized with pnemonia and kidney failure. I had a catherter placed in my chest to do dialysis, which I hate because it makes it hard to shower. I was hoping to get a fistula put in, but I am on a blood thinner so I can't get the procedure done till I'm off it. A week after I got out of the hospital for my pnemonia, I ended back up in there cuz I have blood clots in my lungs also. I just want to get this catherter out of my chest and be able to do everything I used to. This is a hard thing to get used to, but so far I've been doing ok with the support and love of family and friends. I am glad to have found this site tho, It'll be nice having people to talk and relate to!

[Hazmat35]

 

This is a great website where you can get a lot of information and compassion; along with a lot of great people, all dealing with the same thing! 

So sorry to hear of your troubles. 

[MooseMom]

Do the blood clots in your lungs mean that you will have to be on blood thinners that much longer, thus delaying having a fistula created?  That sucks.

[galvo]

G'day Kimi and  . You'll find that your questions will be answered here and that you've got a lot of new friends.

[kimi_g89]

Thank you and I do look forward to meeting people in similar situations to talk to. I am on the blood thinner for 6 months if not longer. But I am also hoping to get a transplant in 6 months, so we'll see how it goes.

[MooseMom]

Oh, well, having the real possibility of a transplant in 6 months is a real game changer!  That would be wonderful!!  Maybe that will help you cope with the present day obstacles.  If you know you will have to put up with this stuff for a finite period of time, it makes it all easier, I'm sure.  Still, I know this is not easy NOW.

[RichardMEL]

Welcome Kimi!! What a tender young age to have to deal with this crap (I can use that word as I currently have a plumber ripping apart my toilet  ) - I'm sorry you're having a few problems. I think your denial is quite natural and I don't think anyone would blame you for that. Sometimes I wish I could just not think about it and it might all go away. I'd much rather think about girls in bikinis !! 

Seriously it's great to have you with us - many of us can relate to the sorts of thngs you're going through, and will go through, so hopefully we can all help eachother!

 

RichardMEL, Moderator

[Poppylicious]

  Kimi. 

My Blokey (husband) is on warfarin and had a fistula made a couple of months ago.  I assume though that they created the fistula knowing he was going to have to stay on blood thinners for life (like you, he had pneumonia followed immediately by pulmonary embolisms), whereas in your case if there's the possibility of you not being on them for long it's in your best interests to wait?

[kimi_g89]

I am not sure what the plan is yet, but I am on the same one and I too have pulmonaray embolisms, well thats what they told me in the hospital. They said they might hospitalize me in 3 months and do the fistula, but I'd have to be taken off the warifin and put on a heprin drip which would be like a 2 week process, if not longer. So we'll see what my doctor decides to do.

[Bruno]

Good luck, Kimi...we are all barracking for you.

[RichardMEL]

ouch. my mother had a poulmanary embolism.. that is not fun. My best wishes to you on getting that all sorted out!!!!

Such a lovely smile needs to keep being seen!!!!