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Author Topic: Did you accomplish anything today?  (Read 329083 times)
jbeany
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Cattitude

« Reply #400 on: April 16, 2011, 05:48:25 PM »

Nope, no belly button!  In order to get in and get it done before summer is completely over, the plastic surgeon isn't going to be able to participate.  Hard enough to schedule one doc, let alone 2.  But, at this point, I'm uncomfortable enough, I don't care if I look like I've been hatched anymore - just so long as I look like I have all my guts back on the inside!

I finished a take-home exam today, and went out to a fabulous dinner with friends visiting from up north.  Then I fixed them dessert at my house - cream cheese brownies with fresh strawberries.  Yum!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #401 on: April 28, 2011, 11:28:51 PM »

I spent all day in a chair at the hospital having two units of blood to bring my Hb levels up - they have sat below 70 since transplant. Everyone tells me I'll soon feel like a new woman! As long as the breathlessness when I'm walking disappears, I'll be happy. Cr down to 216 today so am accomplishing lots!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
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Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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« Reply #402 on: April 28, 2011, 11:55:17 PM »

Actually, for a change, I did accomplish something. Cleaned my entire kitchen, of course, it took me all day. You know, work 20 minutes, rest for 15. Then my brain said, lets go and wash the car, and my body said, Not a chance!!! I hope I sleep good tonight.
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One day at a time, thats all I can do.
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« Reply #403 on: May 03, 2011, 03:16:28 PM »

YES!  I saved a tiny hummingbird from the jaws (literally) of one of my cats!  :bandance;    I held him in my hands and he was soooo tiny!  His heart was beating so fast.  He moved his little feet a little, but never tried to fly away.  My husband and I gently looked him over, but couldn't see any obvious wounds or injuries, so we placed him high in a hanging plant away from the cats.  Within 10 minutes or so he few away.  Oh, I hope he is okay.   :pray;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jbeany
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« Reply #404 on: May 03, 2011, 04:41:16 PM »

Made a fab dessert - grape bon-bons - and took it along with me to Gilda's where I taught my craft workshop how to make mokume gane jewelry. 
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #405 on: May 03, 2011, 04:54:47 PM »

I drove home from West Virginia and fixed dinner. Now I'm pooped!  :rofl;
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #406 on: May 04, 2011, 07:30:32 AM »

Yesterday I accomplished the art of spending too much money.  Today I have accomplished lazy-ness.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
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Everything was beautiful, and nothing hurt.
RichardMEL
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« Reply #407 on: May 07, 2011, 05:41:57 AM »

Today (Saturday) was remarkably good for me. I woke up at 7ish, and had my meds. Despite being 6C degrees out (that's I dunno 35 or 38F or something) I took a refreshing walk around the local lake (about a 7km walk all up) and said hello to the adorable ducks and swans there. Then took my kitty to the vet for her regular checkup and flu shot (I had human one during the week) and she passed her vet inspection with flying colours even a remark how good her teeth were! :) Then came home, did some shopping, then back home, put some bets on the local races - I managed the winners of 3 races with some roughies that paid rather nicely, and even had a "fun" bet on a horse named DUSTIE DAN (for my kidney) that came 3rd and gave me some joy. Then to top it off my football team had a surprisingly great win over a well fancied oppisition and I enjoyed every single moment of it!!!!

I feel good. I feel like Danny is going well (clinic on Monday with creat results, so we shall see - fingers crossed!!!). My eye is still an issue, but I guess I am getting there with that.. or adjusting or something. I felt more confident being out and qabout at least.

So yeah, a good day. Plus yesterday I solved some work problems and was generally productive which was also pleasing for me.

SO yeah a reasonable few days. Tomorrow - well that may be something else... but I remain hopeful. I will sleep well tonight though with my award winning special immunised furry feline snuggled up close by.....
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #408 on: May 07, 2011, 06:40:48 AM »

I edited a video of a long lost event on my old radio show. I built marble race tracks with my son for a while, did the dishes, and thinking about going downtown to Greek Fest to get a gyro. Now? Hot tea and chefs on tv.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
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« Reply #409 on: May 07, 2011, 11:08:08 AM »

I caught up on missed sleep - my favorite accomplishment!  I've got a to-do list for today that I haven't started yet, but its for the whole weekend, so no rush!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #410 on: May 07, 2011, 01:07:05 PM »

Did grocery shopping, laundry, some work at school and planted flowers....tonight a late Cinco de Mayo party. Wheeee.

 :cheer:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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« Reply #411 on: May 08, 2011, 02:12:22 AM »

(technically this is for yesterday; today i will just be eating lots at the italian in honour of my BiLs birthday.)

We did our bit for charity and picked up our new little pussy-cat from the animal shelter.  I would post a picture but she's feisty and just refuses to sit still long enough.  She chirrups at us, like a little bird.  She's adorable.  Her name was Adora, but I've changed it to Dora because I just wanted to keep calling her Wizzy (Wizadora was a children's tellybox programme and character over here in the nineties) and she doesn't 'feel' like a Wizzy.

I also managed to break our five month old shower.  Well, I didn't; I went to turn it on and it had completely stopped working.  Grrr.  On Friday my hoover died.  Life is good.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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« Reply #412 on: May 08, 2011, 12:17:10 PM »

I got home from a party at 1 a.m. this morning.
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
jbeany
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« Reply #413 on: May 08, 2011, 05:00:41 PM »

Made a graduation gift - a drawstring "booze bag," complete with shot glass pockets.  I'd have gone upscale and just done a wine bag, but this isn't going to be that kind of party....Already have the shot glasses and the bottle of Sharkwater tucked in it and ready to go on Saturday to the pig roast.

Also did another sample fabric basket for my craft class on Tuesday.  Need to try one more with a simpler square bottom.  I need them as simple as possible - lots of my students are sewing-impaired.

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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

jbeany
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« Reply #414 on: June 11, 2011, 10:31:52 AM »

Up-cycled a thrift store find into a gift for my sister.  I picked up a box of hand blown glass wine bottle stoppers just after another woman set them back on the shelf.  The box just screamed, "Wedding gift with no gift receipt!"  The glass flowers were lovely, though.  I took one out of the box, and realized that the cork attachments just unscrewed.  Hmmmm....  I set them in my cart.  The other shopper looked at me and said, "Oh, those are gorgeous, but I don't drink wine." 
"Me either.  I'm going to attach screw-in rods and make garden stakes out of them.  It will look like the hand blown glass art by Chihuly that was displayed at the local botanical gardens last year, without the huge price tag."
"OH!  Why didn't I think of that!"

They turned out fabulous - I can't wait to see them tucked into my sister's flowers.



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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Ang
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« Reply #415 on: June 13, 2011, 09:48:22 PM »

got a blood test

haqve i been good or bad :stressed; :waiting; :Kit n Stik;
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live  life  to  the  full  and you won't  die  wondering
RichardMEL
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« Reply #416 on: June 13, 2011, 09:50:34 PM »

You're on Santa's list, Ang!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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This will be me...... Next spring.... I earned it.

« Reply #417 on: June 13, 2011, 10:04:39 PM »

Jbeany     those are wonderfull.....truely wonderfull....great find...

 I plant 3 apples tree's today .... I am putting them on a trellis... I attached the limbs to the lines .....  now grow!
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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cariad
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What's past is prologue

« Reply #418 on: June 28, 2011, 08:56:43 AM »

This is from yesterday, and because it consumed much of my thoughts over the weekend, I feel such an immense relief today now that it's been put to rest.

I collected my little Liot from school Friday only to have the young head teacher come over to me to discuss his behaviour. Great! Exactly what she should do if he is doing something wrong. So she starts in the usual way, that she had told him that she was going to tell me this, then she added "and it made me mad". Liot just turned 5 - crikey what could he possibly have done to make a supposedly professional teacher lose control of her emotions and actually tell a parent this? She explained that he went up to 2 different children and told them he could beat them up. I waited for the awful part. The awful part, apparently, was that one of the kids that Liot said this to was a little girl, and one was a boy that the teacher tried to point out to me but I refused to even look. The "victim" is irrelevant in this situation as he should not be saying that to anyone, and she did not need to editorialize as if she were expecting me to become as outraged as she appeared to be. She also told me that Liot denied it (duh!) but that she knew he said it because all the other kids told her he said it. (I am now picturing her angry at him, all the other kids pointing and saying he did this awful thing, and me not there to get him the hell away from this person.)

I had all weekend to think this over. We even ran into her immediate supervisor, the room's master teacher, over the weekend, but of course, not the right time. Monday morning the master teacher was not in, no teacher I knew and trusted was there to talk this out with, then I see the assistant director coming down the hall and I just grabbed her and said "C., have you got a minute? I really need to talk to someone about an issue." She listened to me speak, did not try to defend the teacher but reassured me that she was probably not even hearing what she was saying and that she knows this person fairly well and she has loads of patience and is normally very professional with kids. Then I went about my day and the master teacher phoned me and we discussed it further. I feel so much better having sorted this out, and also knowing that they all saw me advocating for him and if there had been any doubt, they now know that I will go to the mat for my child even though he does drive me crazy half the time. His teacher in the preschool room once said to me in a conference "Elliot is a wonderful child. He is not an easy child, but he is a wonderful child." That is what goes through my head when I feel he's being attacked.

Oh, and I told my parents (who have six kids) about this and when I got to the part about what Liot had actually said to these kids, my father burst out laughing. My mother said "boy, she [the teacher] hasn't heard anything yet!"
« Last Edit: June 28, 2011, 07:27:26 PM by cariad » Logged

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« Reply #419 on: July 03, 2011, 12:02:03 AM »

This sounds so little compared to yours, Cariad. *G*

I carried the little rocking chair that my parents got me for my birthday out onto the back doorstep, then sat in the sun for several hours, rocking and reading.  Mom even brought out my supper on a tray table, so I could stay outside.  When the sun went down enough that the side of the house was blocking it, and I was in the shade and getting cold, I carried it all back into the house, all by myself. *G*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
cariad
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What's past is prologue

« Reply #420 on: July 08, 2011, 02:43:27 PM »

This sounds so little compared to yours, Cariad. *G*

I carried the little rocking chair that my parents got me for my birthday out onto the back doorstep, then sat in the sun for several hours, rocking and reading.  Mom even brought out my supper on a tray table, so I could stay outside.  When the sun went down enough that the side of the house was blocking it, and I was in the shade and getting cold, I carried it all back into the house, all by myself. *G*

Not at all, Riki. Life is all about the small victories.

We have one kiddie party after the next this weekend. First one starts in 90 minutes and we were late receiving the invite, so I only this morning dashed to Target for gifts. Seems all the superhero stuff is on clearance, so I managed to stay very close to my $15/kid goal and got them what look like some great Iron Man toys. (If not, gift receipts will save the day!)

Stopped off at Brewer stadium on the way home. We are participating in that BP promotion where you collect stamps from the fuel station with each visit and when you have enough, you get a free ticket. Lucky I went today because they are selling out at a pace. I managed two free tickets to the Brewers/LA Dodgers for Gwyn and Aidan. If we can fill one more card in time, they can go to another game for free in September.

Went to the co-op since I was there yesterday and forgot milk of all things. They sell our local milk at astounding prices, so it was well worth the slight detour.

Got home so ravenously hungry that I just grabbed a cold pasta dish out of the fridge. Cleaned Aidan's baseball uniform for his final game tonight (Liot won't have to spend his evening yawning through that one, he'll be at his friend's party). Emailed a friend to arrange an after-hours playdate with our younger boys. Poor thing, her son had a little meltdown and scratched Liot in the face - for the second time earlier this week - and she is just mortified. Hopefully I was able to put her mind at ease. Elliot has had his share of violent outbursts, just not at her son, but I so understand how it feels.

Walked downtown in the blistering heat to drop off forms and a check at a local gym - finally Liot can take those gymnastics classes he keeps asking for. Those start tomorrow, and I saw two names that I know are friends of his up on the wall, so he'll probably have a familiar face to see. The rock climbing instructor wanted to tell me all about the place, and we had a lovely chat. He told me that parents can take any class for free with an enrolled child. I said Gwyn might like rock climbing and he said "Not you? You're in good shape!" Ah, there just was not a good moment to address all that is wrong with that statement, so I laughed non-committally and changed the subject. Gwyn now tells me he wants to do fencing, which they also teach. Walked home, fighting back the urge to hop on the downtown trolley that chugged past with all the old dears pointing at our modest little city. By the time I returned home, I wanted to collapse. Have to write out a few sentences on the card for the birthday boy and then I am off and running once again! I do not have the energy for this anymore and wish I knew what to do to boost that up. I guess that's the eternal question in modern life, though....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
jbeany
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« Reply #421 on: July 08, 2011, 03:33:29 PM »

Does managing to make it through the afternoon on only 2 oxy instead of the full dosage of 4 count?  That's about all I've accomplished today, besides spending way too much time playing search and find games at Playdom.com.  My evil, evil sister sent me a link to Gardens of Time.  Ahh, well, I'm still resting up from having my 12 year old nephew stay overnight to "help" me recover from surgery!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #422 on: July 08, 2011, 07:39:12 PM »

Got that belly button yet, Jbeany?  :2thumbsup;

I've been thinking about you!

Cariad, how are the boys and Gwyn doing? And you?

I'm in the midst of my insane summer teacher schedule. Not much else to report.

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
jbeany
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« Reply #423 on: July 08, 2011, 09:53:56 PM »

No belly button, Aleta!  I just have one long straight seam from the bottom of my bra line to the top of my bikini line.  They told me to live with it for 9 months or so, and if I truly, truly needed a belly button, they could add one out-patient after a year.  Or I could tattoo one on.  For now, I'm just dealing with an extra 20 pounds of edema and am impatiently waiting for the swelling to go down so I can see just how much of a tummy tuck I've been given.  They took off quite a bit of extra skin while they were rearranging.  I also don't know if any of my pants fit yet either, since I have two more weeks of surgical drains to live with before I can hope to wear anything but a baggy shift dress.  Should be interesting!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

kristina
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« Reply #424 on: July 09, 2011, 12:12:34 AM »


jbeany, I wish you good luck and a speedy recovery,

Kristina.
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