hello im new here

[babycake]

i didnt even know this site even existed untill today
 the secartary at davita dialysis told me and i thought it was so funny
i any how my name is Bonnie
 and im 46yrs old mother of 2 and grandmother of 3
 and i have had probelm with my kidneys for 27yrs,
they actually think longer
 and i have been on dialyis now for a little over 5yrs

i had a heart valve replacement 5yrs ago
 as where i found out it was a birth defect that
 doesnt show up untill your early 40s(nice to know)
 at that time before my surgery
 i had learned i also had a birthdefect
 called lawerence beild syndrom
 which it effects each person in the
different way
 but it does cause issue with the kidneys

my son is my youngest hes 23yrs old
and he had some health issue when he was a baby
 when he was about 3yrs old
 the hospitol in portland sent his studies to london
 as to find out his chromazones were rare
 they off by 2 and 3 of having ms but he doesnt have that
 they didnt say anything else about his disabilty
untill i was going in for my heart valve surgery
 is when we had learned he also has the same birthdefect
 that i have

the chromazones crossed when i got pregnant with my daughter
 so she doesnt have any issue and far as i know neither do my grandkids
i have spoken to her a few times to have them tested but she hasent.

any how with my son
 a little over 2yrs ago
 he had been sick a week before xmas
 and a few days after my mom had taken him to
 the docs and they had him admited in the hospitol
 for he phemonia
  he was rushed in icu where he went in cardic arresr
 not only did he have phemounia, but issue with his
heart lungs and only kidney
 a few yrs prior we had found out he only had one kidney
he is now on dialysis as well
 he has his days but hes doing good...

[kellyt]

Great introduction!  Welcome!  So glad you were told about this fabulous site.  You will fit in just fine.     

[galvo]

G'day, babycake and .

[Jean]

Glad you found us babycake and    to IHD.

[MooseMom]

You AND your son, BOTH on D?  Oh man, that's not a fun thing to have in common!

Welcome to our community.

[Bajanne]

Welcome to our community, Babycake!  You will find this a great place for encouragement, information and support.  You have really had more than your share of challenges.  But I am glad that you are still upbeat!  You are now part of the IHD family - a group of wonderful people.  Just keep reading and keep posting.




Bajanne, Moderator

[Rerun]

Hi Bonnie and Son, welcome to IHD.  I hope you can pass this site on to him as well.  It is a good place to get information and share common questions.

So glad you found us!   

Rerun, Moderator

[peleroja]

Welcome to the group, Bonnie.  This is a great place to find information and friends.  Glad you joined!

[Elly50]

Hi you and your family have really been through some tough times.

Kidney failure is hard on you but then to see your son go through it as well must be a nightmare. My thoughts are with you

Elly