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Author Topic: finally starting 3x week  (Read 6350 times)
texasstyle
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« Reply #25 on: September 23, 2010, 06:30:44 PM »

well, I don't think the 3 days is going very well. He is wearing his thigh high elastic socks, the kind for edema, tonight. he is getting a little better on fluid intake butthe diet is out the window. I'm also keeping in mind he's just had a pericardial window put in his heart 2 weeks ago. Will see the heart Dr. Tues. I have to wonder if this fluid is more the CHF or the kidneys. I'm getting pretty confused here. I'm curious to see how his labs went for the first full 3 day week. I'm not even on it but I HATE DIALYSIS! LOL. I certainly feel for everyone.
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caregiver to husband using in-center dialysis 4 years
boswife
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us and fam easter 2013

« Reply #26 on: September 23, 2010, 07:32:50 PM »

im with ya texas!!!  I hate it too..lol   I just want clarity and knowing what is exactly right and how much to eat for heart, kidney, pancreas, liver, .............  i just WANT TO KNOW whats exactly right and KNOW it, trust it, and follow through...  I just want to do whats right :-(  and it's hard to REALLY know for sure, and then accomplishe that..
ewe,,, guess im getting my vent on..lol
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
RichardMEL
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« Reply #27 on: September 23, 2010, 10:40:05 PM »

they may not do new labs straight away so you may not know. Anyway, and I hate to write this, but are you relying on Mike to tell you what his labs are? If he doesn't tell the unit half the stuff that's going on with him, what about you? (Again, sorry I feel quite horrid writing that thought.. I don't mean to be rude.. but the thought is there).

re the diet out the window.. he can't slacken off on stuff like potassium just because he's going another day a week. He really needs to stick to it if he doesn't want a repeat of a couple of weeks ago....
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KICKSTART
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« Reply #28 on: September 24, 2010, 03:00:18 AM »

Ban him from the kitchen !  :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
texasstyle
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« Reply #29 on: September 24, 2010, 01:49:23 PM »

Today's breakfast was eggs, in a white flour totilla wrap with pepper. That's pretty "safe" isn't it? If it is I think we're making progress. He also has a magazine he gets now about nutrition and has been interested in reading things about high blood pressure etc. I'm hoping something sparks and he takes a vested interested in his health. Glad the magazine can be a source of helpful, educational information. Fluid intake looks as if it's being motoried today too. Hmm...... Am I imagining this? lol  Sure is sleeping all day though. Once the Philles baseball comes on though...... lol
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caregiver to husband using in-center dialysis 4 years
RichardMEL
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« Reply #30 on: September 24, 2010, 06:19:04 PM »

Good source of protein there with the eggs - which he needs with hemo.

Is the magazine related to renal nutrition? Remember that a general publication may not be appropriate for dialysis patients on the renal diet. It IS a good sign though. Really happy to hear. Hoping as he settles into the 3x routine that his overall energy and health will improve and he won't need to sleep all day.

Thanks for the update :)

 :2thumbsup; :2thumbsup;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
texasstyle
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« Reply #31 on: September 26, 2010, 03:59:35 AM »

no, it's not a renal amagzine but does have a lot of information about many different health issues. I'm glad to see he's reading it. He's even brought up a couple up topic's he learned about high BP. I hoping he'll start to see health matters as not only educational, but interesting which to me, to they are. One step at a time here.....lol
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caregiver to husband using in-center dialysis 4 years
KICKSTART
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« Reply #32 on: September 26, 2010, 06:26:55 AM »

Eggs get the  :2thumbsup; ???? We are told to limit them to 2 a week ! Strange all got the same illness , all get told to do different things !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Stoday
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« Reply #33 on: September 26, 2010, 07:06:12 AM »

American eggs are different, Kicks. They have white shells, whereas ours are brown.   :laugh:

I read somewhere that the yolks were OK but not the whites.

Ya have to take the dietician's suggestions with a pinch of salt  :rofl;
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Zach
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« Reply #34 on: September 26, 2010, 09:47:46 AM »

American eggs are different, Kicks. They have white shells, whereas ours are brown.   :laugh:

I read somewhere that the yolks were OK but not the whites.

Ya have to take the dietician's suggestions with a pinch of salt  :rofl;

Actually, in the States, we have both white and brown shelled eggs.

Also, it's the whites of the eggs, not the yolks, that's best for us.
The whites are one of the best forms of protein and they are low in phosphorus.
But they do contain potassium, so moderation is again in order--and remember the binders.

 8)

http://www.nal.usda.gov/fnic/foodcomp/search/
Large Egg, whole, cooked, fried
Protein--6 grams
Phosphorus -- 96 mg
Potassium -- 68 mg

Large Egg, white, raw, fresh
Protein--3.5 grams
Phosphorus -- 5 mg
Potassium -- 54
« Last Edit: September 26, 2010, 09:49:09 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
ChickenLittle56
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Chickenlittle and Maria

« Reply #35 on: September 26, 2010, 05:30:48 PM »

Texas, I think you better off going with corn tortilla wrap. The flour has more bad stuff in it than the corn (baking powder, shortening or lard and flour made form wheat). That's what my mom puts in when she makes flour tortillas from scratch(mmmm.....delicious).

Stody, the breed of the chicken determines the color of the shell.
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
RichardMEL
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« Reply #36 on: September 27, 2010, 12:51:00 AM »

Another issue with eggs is they probably don't want you to have too much because of cholesterol concerns....

Like anything it seems moderation is the key - but I agree that an egg is a great source of protein, and I often get something with egg in it for a boost.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KICKSTART
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In da House.

« Reply #37 on: September 27, 2010, 05:37:27 AM »

Zach ..i think Stoday was being sarcastic .. :rofl;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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