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donster
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« on: August 28, 2010, 08:06:37 AM » |
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Everything around seems to get a nickname. We're still in the middle of training but when it comes home, we've decided to name our SystemOne as Billy the Ex-Urinator,  a little tongue and cheek hommage to the A&E reality/docudrama. Does your NxStage have a nickname? |
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Don Simpson
Middle, TN
NxStage Button Pusher.
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lola
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« Reply #1 on: August 28, 2010, 01:13:09 PM » |
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Wall-e
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Dan.Larrabee
Full Member
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Posts: 150
Dialysis Dan
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« Reply #2 on: August 28, 2010, 10:30:46 PM » |
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Damn it
Thats what I call it anyway........Damn it now what!!!
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AKA Dialysis Dan Feeling the best I can because of Home Hemo Doing it the best way I can by making it Nocturnal Sharing it to help everyone feel they best they can www.youtube.com/dialysisdan |
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donster
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« Reply #3 on: August 29, 2010, 04:57:12 AM » |
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Some rejected names:
R2-Pee2
Kid(ney) Rock
Billy the Kidney
Mr. Clean
Hal 9000
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Don Simpson
Middle, TN
NxStage Button Pusher.
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looneytunes
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« Reply #4 on: August 29, 2010, 06:49:09 AM » |
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Donster...I love the rejected names. I think I'll adopt R2P2 for our NxStage. |
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"The key to being patient is having something to do in the meantime" AU
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Trikkechickk
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« Reply #5 on: August 29, 2010, 12:08:56 PM » |
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Mother Sucker (yes, it is supposed to rhyme).
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monrein
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« Reply #6 on: August 29, 2010, 12:26:45 PM » |
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Mine was Little Leech aka Petite Sangsue in French.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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Des
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« Reply #7 on: August 30, 2010, 05:16:56 AM » |
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I will call mine (in centre) from now on ....... The torturnator!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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vcarmody
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« Reply #8 on: August 30, 2010, 09:12:12 AM » |
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My husband calls his "Count Vlad" which is Dracula's name.
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Caregiver to husband Chris, NxStage 11-2009
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Wayne
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Martin (the snorer) & Mack (cat w/renal failure)
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« Reply #9 on: August 31, 2010, 05:52:04 AM » |
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I call him Little Wayne
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
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JohnJ
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« Reply #10 on: November 25, 2010, 03:55:49 PM » |
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In clinic mine was called Fred.
But I was the only one who named it according to the nurses.
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And in the end. The love you take.
Is equal to the love ... you make.
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chook
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Born to be a Granma!
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« Reply #11 on: November 25, 2010, 05:42:15 PM » |
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My Baxter overnight cycler has always been referred to as "Polly" as in Polly the pump. I reckon it sounds better than The Machine!!!! And when I do manual bags, I like that referred to a "swap", not a "bag change" - sounds better. I know, semantics!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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JohnJ
Jr. Member
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« Reply #12 on: November 26, 2010, 09:05:13 AM » |
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When you do bags? How often is that? I hardly ever do bags. Maybe once every 3 months at most and that's always due to a system failure (bad conductivity, leak in tub, etc) and it's hard to keep that up now that I'm working 4 dayss (12 hours a day) a week.
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And in the end. The love you take.
Is equal to the love ... you make.
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donster
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« Reply #13 on: November 26, 2010, 11:23:17 AM » |
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We have some on hand but use pureflow 99% of the time. We most recently used bags
1. When waiting for aami/endotoxin lab results.
2. When a batch was to expire during treatment and needed less than 5 liters to finish.I switched over to 1 heated bag to finish.
Someday we will take a vacation and take our machine and some bags with us. Until then, they're for emergencies.
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Don Simpson
Middle, TN
NxStage Button Pusher.
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chook
Sr. Member
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Born to be a Granma!
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« Reply #14 on: November 26, 2010, 06:27:30 PM » |
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JohnJ, I think you are asking me when I use bags - and I think I may have confused you (sorry) - I am on PD, not haemo.
Sometimes when travelling we leave Polly (the overnight cycler) at home and I take the smaller manual bags. I'll dialyse at home overnight normally and then that afternoon, run a 1500ml bag through for 4 hours and drain, with nothing at night. The next day I might do one or two the same, and then back on Polly that night.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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chook
Sr. Member
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Gender:
Posts: 774
Born to be a Granma!
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« Reply #15 on: November 26, 2010, 06:30:10 PM » |
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 And I see from checking the top of the page I'm the one that is confused. Okay, I confess - I am not a Nxstage user and there in lies the problem. I should have kept out of this thread. Sorry, everyone
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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vcarmody
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« Reply #16 on: December 02, 2010, 08:48:50 AM » |
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JohnJ my husband is on Nxstage and we only do bags. I'm quite happy that is all our center offers. Not sure I would want to be mixing batches on top of all the other stuff we do. I think the only down thing about bags is the room you need to store them all. We get about 80+ boxes every month takes up about 4 foot by 10 foot space in my dining room.
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Caregiver to husband Chris, NxStage 11-2009
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amanda100wilson
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« Reply #17 on: November 09, 2011, 08:28:42 PM » |
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My machine is KENNI (kidneys ended now NxStage instead)
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ESRD 22 years
-PD for 18 months
-Transplant 10 years
-PD for 8 years
-NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.
Always look on the bright side of life...
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jbeany
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« Reply #18 on: November 09, 2011, 08:53:19 PM » |
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Mine was Dorothy. There's no place like home! She sat on my Pureflow named Toto (always at Dorothy's feet.) The shiny centrifuge was the Tin Man, of course. My cat, peering around the door to the room and waiting to get yelled at for trying to sneak in, was the Cowardly Lion.
Depending on the day, I was either the Scarecrow or the Wicked Witch.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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Desert Dancer
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« Reply #19 on: November 09, 2011, 10:24:58 PM » |
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For lack of anything more original I call mine 'Squeaky'... for obvious reasons.
My fistula has a name too, but I can't repeat that here.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10: Began dialysis through central venous catheter
8.25.10: AV fistula created
9.28.10: Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!
Good health is just the slowest possible rate at which you can die.
The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.
The early bird may get the worm but the second mouse gets the cheese.
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Adam_W
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« Reply #20 on: November 10, 2011, 08:03:24 AM » |
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I call mine Sir Lancelot.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007 -Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix) -Started in-centre dialysis Feb 6th 2007 (Fres. 2008H) -Started home hemo June 5th 2007 (NxStage/Pureflow) -PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now) -Started CAPD July 4th, 2008 -PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage -Kidney function improved enough to go off dialysis, Feb. 2011!!!!! -Back on dialysis (still NxStage) July 2011  -In-centre self-care dialysis March 2012 (Fresenius 2008K) -Not on transplant list yet. "Don't live for dialysis, use dialysis to LIVE" |
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lmunchkin
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« Reply #21 on: November 10, 2011, 01:34:42 PM » |
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We named ours "Perk" as in Purcolator
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home
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mcclane
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« Reply #22 on: November 10, 2011, 04:32:40 PM » |
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kn filter, just like the air filter/oil filter company, it is supposed to clean the air of particles for your engine, just like my hemo machine except it cleans the blood well before going back in.  |
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Gryphon
Newbie
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Posts: 12
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« Reply #23 on: December 17, 2011, 12:42:03 AM » |
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Queen Bathory, or Elizabeth for short... She was known as the blood queen. Sort of the female version of Dracula
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bleija
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« Reply #24 on: December 28, 2011, 10:20:12 AM » |
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i usually call mine Piece of Shit, and when its gotton me up for the third or fouth night i call it lovingly stupid Piece of Shit.... but i wouldnt trade it for in center hemo no way
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