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Author Topic: YAI (Yet Another Introduction)  (Read 8685 times)
galvo
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« Reply #25 on: July 20, 2010, 05:52:16 PM »

G'day, Dan, and :welcomesign;.
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Galvo
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What's past is prologue

« Reply #26 on: July 20, 2010, 07:52:27 PM »

If you want to be like that and get all competitive and stuff and about hair loss, mine fell out in two days, most of which was when I was attending a funeral for a work colleague. Imagine how I looked in my suit, being all somber and stuff, going down the reception line of mourning family, scrambling to come up with a nice anecdote to share with the widow and all the while, unbeknownst to me, I had thumbprint-sized polka dot chunks missing from my hair. I must have looked like an utter madman. And not one of my colleagues whispered a "Pssst. Dan--you're molting. What the hell?"

Months later it's still like that, growing perfectly except for half of my hair and half of my beard. I'd be happy to have a straightforward 1cm all over, regardless of grey racing stripes.

All right, you've won this particular battle, but stick around. I'm not done with you yet. (*sinister laugh*)
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
natnnnat
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« Reply #27 on: July 21, 2010, 06:36:41 AM »

I had read your introductory post and was interested by your research proposal. Do you have a reference chapter set up yet? I'd be curious to see it. (I'm a recovering academic.)

Hmm mm yeah there's an old literature review, but I'm reworking it.  I have a huge collection of papers, and a big fat Endnote library, which I'm refining into a collection of "renal experience" literature (the experiences of people who receive renal medicine)... there's also a lot of other literature about general patient experience (not necessarily renal patients) and also lots of great stuff from internet ethnography or about discussion boards.   So really I stand at the messy end of a recent literature explosion, and haven't incorporated the really useful stuff into summaries yet.  But I have to this month, because I'm writing up something for a conference in September.  So can I get back to you?  I have been thinking about putting stuff (i.e. some kind of overview of the renal experience literature) into the "news / articles" section soon anyway... when i get something shipshape written... or (depending on how masochistic your curiosity is) I could send you an annotated bibliography  :thumbup; :angel;

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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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