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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Transplant Discussion
I got the call!!!!
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Topic: I got the call!!!! (Read 9837 times)
Brianna!
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I met adam lambert for my make a wish!
I got the call!!!!
«
on:
July 09, 2010, 07:24:00 PM »
It's not definite yet, though. I've been active for only 3 and a half weeks about. And today I got home from dialysis and the kidney coordinator called my mom. The donor isn't brain dead yet. He has heart failure, I guess. He's under 35, and at first Shelley (transplant coordinator) said he was my age, but I don't know now. They have to run a test at 8 AM to see if he's brain dead yet (he's progressing to there) And if he is, they have to run the list again. And the only way I won't get the kidney, is if there is a double transplant person ahead of me. And there would have to be two, to take his two kidneys. But they said that isn't likely. And if he isn't brain dead, they're going to transplant one of his kidneys into me, I guess. Which would kind of suck for him. If he got better and he woke up with only one kidney!
I'm shaking so bad right now! I'm excited and nervous and so sad for the donor and his family.
I was going to name my kidney after the donor, but since they can't tell me his name, I don't know what to name him now. And I'm for sure writing a letter to the donor's family.
I don't know what else to really say! I'm just in shock right now! I was going to go inactive for a while if I didn't get the call by the 20th. Because my aunt's wedding is August 21st, and I can't be around large groups of people for a month. And I don't want to miss the wedding. But now I don't have to worry about that!
Wish me luck!!!
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: I got the call!!!!
«
Reply #1 on:
July 09, 2010, 08:43:54 PM »
Wow, I hope if this is meant to be it will. I said a prayer for the patient and his family, this is a very tough time for them.
Best wishes Brianna, please keep us posted - I will check here all night thinking about you!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Re: I got the call!!!!
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Reply #2 on:
July 09, 2010, 08:45:49 PM »
Fingers crossed for ya!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
galvo
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Re: I got the call!!!!
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Reply #3 on:
July 09, 2010, 10:42:47 PM »
All the best, Brianna!
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Galvo
Jean
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Re: I got the call!!!!
«
Reply #4 on:
July 10, 2010, 12:12:43 AM »
So hope that this works for you B. God Bless, hope one of those kidneys has your name on it.
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One day at a time, thats all I can do.
lou
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Re: I got the call!!!!
«
Reply #5 on:
July 10, 2010, 01:20:12 AM »
Wow Brianna just saw your post. have everything crossed for you! x x
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lola
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I can fly!!!
Re: I got the call!!!!
«
Reply #6 on:
July 10, 2010, 05:15:55 AM »
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www.caringbridge.org/visit/ottomachado
looneytunes
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Wishin' I was Fishin'
Re: I got the call!!!!
«
Reply #7 on:
July 10, 2010, 06:41:29 AM »
Best wishes on this Brianna. My prayers are going out to you and the donor's family.
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"The key to being patient is having something to do in the meantime" AU
RichardMEL
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Re: I got the call!!!!
«
Reply #8 on:
July 10, 2010, 06:42:16 AM »
wow! Brianna!! Only active 3 and a half WEEKS??? this is amazing if it pans out... not that I want this guy to be brain dead, but you know what I mean. How amazing if your gift comes so soon after getting on the list. What a potentially wonderful surprise for a lovely young lady! Hoping it can work out for you!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
bette1
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My dear daughter
Re: I got the call!!!!
«
Reply #9 on:
July 10, 2010, 08:28:07 AM »
Happy Dance
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant #2 5/24/10
cariad
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What's past is prologue
Re: I got the call!!!!
«
Reply #10 on:
July 10, 2010, 10:47:18 AM »
I'm thinking about you, Brianna, and hope that some positive outcome arises out of all of this for one party or the other. Please let us know how it works out. I know everyone wants you to be free of dialysis.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
Brianna!
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I met adam lambert for my make a wish!
Re: I got the call!!!!
«
Reply #11 on:
July 10, 2010, 06:12:41 PM »
Well I'm typing this in the hospital! So it's a go. I was inactive for a year, so I built up some time. And the doctors said 6 months was the time span for a kidney. Since I'm young. It's probably going to happen in the morning, or really late at night. Probably first thing morning though. I got all the blood draws and xrays. I'm waiting for them to start an iv now.
He was pronounced braindead this morning. And right now, I'm feeling more sad than anything else. I've been crying a lot for the donor and his family. I can't wait to write his family a letter.
I'll keep you all updated!
<333
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jbeany
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Re: I got the call!!!!
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Reply #12 on:
July 10, 2010, 06:17:52 PM »
His family wants you to do well, and live on with this gift.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988
Re: I got the call!!!!
«
Reply #13 on:
July 10, 2010, 06:30:43 PM »
One family's sorrow is another family's joy. Sad it has to be this way, but thankfully there is some good to come of the loss of this man. I hope all goes well Brianna - will be waiting to hear updates as you can give them. Thank you for letting us know!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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Re: I got the call!!!!
«
Reply #14 on:
July 11, 2010, 06:40:00 PM »
so wonderful with best wishes for easy surgery and the bean working straight up for you!!!
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
lou
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Re: I got the call!!!!
«
Reply #15 on:
July 12, 2010, 09:29:06 AM »
thinking of you and sending a big hug
x x
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kellyt
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Re: I got the call!!!!
«
Reply #16 on:
July 12, 2010, 01:53:56 PM »
Congratulations! Sleep well tonight and have a quick and uneventful recovery. God Bless the donor and his/her family.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
MooseMom
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Re: I got the call!!!!
«
Reply #17 on:
July 12, 2010, 02:06:00 PM »
It's a bittersweet time...
Please keep us posted, OK? I can't wait to hear more good news for you. And I'd love to hear what you write to the donor's family.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
edersham
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Re: I got the call!!!!
«
Reply #18 on:
July 12, 2010, 05:16:44 PM »
This is also the very beginning of the healing process for the donors family. The victim can become a hero in everyone's eyes who gave the gift of life as his final act. Best wishes on your recovery and I hope you woke up after the surgery already feeling better than in some time as I did 109 days ago.
Ed
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cariad
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What's past is prologue
Re: I got the call!!!!
«
Reply #19 on:
July 12, 2010, 06:03:32 PM »
Quote from: jbeany on July 10, 2010, 06:17:52 PM
His family wants you to do well, and live on with this gift.
Completely agree. Your gratitude will shine through, Brianna, in your words and your actions. Who wouldn't want to improve the life of a lovely young lady such as yourself? Healing thoughts and hugs coming your way.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
Brianna!
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I met adam lambert for my make a wish!
Re: I got the call!!!!
«
Reply #20 on:
July 12, 2010, 07:58:32 PM »
The surgery was a success! I had it done at about 10 AM sunday. The surgeon said that it was one of the most difficult transplant's he's done. Because I have so much scar tissue on my stomach. The surgery took about 3 hours. And I was in a lot of pain until that night, when all of the sudden I felt like a brand new person! I don't know how to explain it. I just felt different. A hour after the surgery, my creatine went from 9 to 5! And today my creatine is at 1.9! BUN is at 24 I think.
It was a 2/6 match. But the doctor said, I couldn't have asked for a better, more healthy kidney. I feel so great right now. I'm drinking fluids and having some jello. But no solid food yet. Tomorrow, probably. My incesion suprisingly doesn't hurt that bad! I walked from the bed to a chair this morning. And was wheeled down for a pic line in a wheelchair. And I felt great! I'm sitting in a chair right now, in fact!
As soon as I write the donor's family a letter, I'll post it here, so you all can see.
Thank you all so much for a prayers and everything. It means SO SO SO much to me.
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jbeany
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Re: I got the call!!!!
«
Reply #21 on:
July 12, 2010, 08:49:39 PM »
Wonderful news!
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988
Re: I got the call!!!!
«
Reply #22 on:
July 12, 2010, 09:58:11 PM »
Yahoooooooooooo!!!
Great news Brianna!
I have added you to the list
http://ihatedialysis.com/forum/index.php?topic=4927.0
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
natnnnat
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Re: I got the call!!!!
«
Reply #23 on:
July 12, 2010, 10:22:41 PM »
HOOrAY!!!!!!!!
Such good news.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient:
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.
Over the years: skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.
2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.
http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Sunny
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Sunny
Re: I got the call!!!!
«
Reply #24 on:
July 12, 2010, 11:24:36 PM »
Congratulations! It is so good to know you feel better already.Hope you continue a quick recovery and longevity.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
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