You know you love a kidney patient when...

[-Lady Noir-]

You know you love a kidney patient when...

everything you do is to make life easier for him, and you wouldn't have it any other way.

[Hazmat35]

When you smother them with a pillow!

                OOPS! 

                                 

That is SOOOOOOOOOOO true!  I wish sometimes, that my G/F would have the courage to smother me!

[billybags]

MomInDialysis I will add a few more: All of those you wrote I do.

I check his weight from the daily record book to see if it is going up or down. He doesn't know.
I turn over in the night and feel him, to see if he is still breathing. I hate feeling like this.

[carla13]

These are all amazing! When I was dialyising, I always felt that often my husband had it harder than me. He had to do all the worrying, he had to work every day and often come home to a wife who was too ill/tired to cook, clean, or do anything else 

All too often the stress that carers go through is overlooked, recievng little or no support, and expected to perform heroics every day. A one -off heroic act is one thing but to do the mundane and frustrating work of caring for a sick person every day is TRUE heroism.
My husband met me when my first transplant was failing, and chose to marry me even with this terrible disease that we struggle with, he visited me EVERY day in intensive care when I wasn't even conscious and when i was I couldn't really recognise him or speak to him. He then gave a kidney in a paired donation so that we could have a 'normal' life.

You guys are A-M-A-Z-I-N-G and though you are overworked, overlooked and over tired; your devotion, care and love are appreciated even if you can't see it all the time!

Hugs to you all,
carla

[Brightsky69]

carla13 - sounds like you have one awesome guy there. Does he have a brother? 

[Woofgang]

I have just read this thread and laughed, cried and seen myself in every post....especially the ones about the secret surveillance. I want to say God bless smart phones and texting. Even though i can't be at the clinic with him, we are in constant touch which helps. What did folk do before mobiles?

[Poppylicious]

What did folk do before mobiles?

I know!  My mobile goes everywhere with me; it's ridiculous.  And if I don't get a text from Blokey whilst he's at haemoD I worry (even though I know he may be in the little ward where they can't get a signal).  And if someone texts me I always feel the need to respond immediately lest they think I'm rude.  And if I text someone and they don't respond within so many minutes I start to worry about them.  Oh, and those folk with stooopid music as their ringtones?  Don't get me started ...

Mobile phones are a blasted curse sometimes!

 

[Des]

you sometimes (just sometimes) wonder how long you will live if you stop dialysis.

you sometimes (just sometimes) wonder what will happen if you just skip and do something nice like watch a movie or bake a cake or walk the dog or something else normal.

you constantly worry about what is IN the food instead of what it tastes like 

[eeyore31573]

ok crying, laughing, and reflecting all at the same time....been there done that and have the t-shirt to prove it!!!!

[Anitar28]

When you wake up a night to make sure their breathing.


When ur no where near the nxstage machine but swear u just heard it beepin.



When the empathy u feel is so bad it physically hurts.


When u talk to a dr. That u havent been too an they say u work in the medical field.

[willowtreewren]

When ur no where near the nxstage machine but swear u just heard it beepin.

I had to laugh at this one! We have a fridge that beeps if the door is left open. I don't know how many times we have heard that beep and looked at each other and thought, "what the heck did we do wrong NOW?"

 

[fearless]

you are all such incredibly beautiful people.  I wonder if you know what hope it gives me to think i might find a partner like any of you?  having struggled with kidney disease and dialysis alone for years...

(but must credit my sister for being the one who tries to understand and always wants to help)

YOU ARE BEAUTIFUL PEOPLE!

[willowtreewren]

you are all such incredibly beautiful people.  I wonder if you know what hope it gives me to think i might find a partner like any of you?  having struggled with kidney disease and dialysis alone for years...

(but must credit my sister for being the one who tries to understand and always wants to help)

YOU ARE BEAUTIFUL PEOPLE!

Fearless,

finding the right person is half luck and the other half luck, too, I think. So trust in luck, but help it out by getting out to meet folks who are interested in the same things as you.

But most of all, trust in luck.

 

Aleta

[boswife]

Ya know fearless, your right,,,,,,,, a great bunch of beautiful people.  I wish for you to find someone as loving and careing as any one of "us"        Your a beautiful person too and im glad you have your sister.  Love is Love 

And have any of you noticed how many 'bing" and "dings" are on the tv these days..  I know there intended as attention getters but ............ if your a nxStage partner, it's more than attention their getting... lol   They're getting a whole responce of some kind from us. Im getting tired of commen into the tv area to check our machine, ........... even when we're not on it,,,,,,,,,,, Even worse, when at someone elses house, it STILL makes me turn to 'fix' something.... And we hardly ever get alarms for real...lol

[fearless]

Thanks Aleta,
Trust is key - 

[willowtreewren]

Thanks Aleta,
Trust is key - 

Absolutely, Fearless. And it is so very important to find that person who you CAN trust. And worth every moment, and day, and week, and month and year.

 

[fearless]