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Author Topic: You know you love a kidney patient when...  (Read 21732 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: June 30, 2010, 09:40:20 AM »

You know you love a kidney patient when...

You know what GFR, BUN and creatinine mean.

You get excited when you find a "renal friendly" recipe.

You have a tan line from your green rubber 'Donate Life' bracelet.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Kitty Cat
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Lila & Smudgie

« Reply #1 on: June 30, 2010, 04:47:52 PM »

Also, when you're with them at dialysis and you can read AND understand the machine! LOL
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Rerun
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Going through life tied to a chair!

« Reply #2 on: June 30, 2010, 05:27:26 PM »

When you smother them with a pillow!

                OOPS! 

                                 :shy;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: June 30, 2010, 07:31:54 PM »


You know you love a kidney patient when...

You 'follow' people named RenalStuff, kidneyquest and NxStageUsers on twitter.

Your last weekend away was to the American Society of Nephrology Conference.





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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Meinuk
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« Reply #4 on: June 30, 2010, 08:10:58 PM »

You don't even know how to cook with salt

You stare at their ankles discretely to see if they are underdialyzed

You worry about their fistula when they cut their hand

You jump out of bed when you hear beep beep

You pretend not to notice when they just have to have fries and a shake

You secretly wonder if they have taken their meds, and check the bottles when they are in the shower.

You can tell when they are faking not feeling well to get out of something, and you know when they are faking feeling well in order to do something - and you let them get away with both anyway.

You secretly study everything you can about their disease, but you act dumb when they explain something to you.

You lay awake at night terrified about how alone you will feel if something happened to them, and you cry.
« Last Edit: June 30, 2010, 08:13:52 PM by Meinuk » Logged

Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
CharmedMist
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Everyday I fall more in love with you

« Reply #5 on: June 30, 2010, 08:22:38 PM »

You lay awake at night terrified about how alone you will feel if something happened to them, and you cry.


been there...



When you...

Feel guilty for feeling tired.

Have doctors tell you "you should go into the medical field."

Realize your entire life is centered in dialysis.

Stop going "out with friends" to stay home and do dialysis nightly.
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Nothing in all the world is more dangerous than sincere ignorance and conscientious stupidity.
looneytunes
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Wishin' I was Fishin'

« Reply #6 on: July 01, 2010, 07:01:08 PM »

When you....

make 3 trips to the pharmacy in a week (because they won't let you refill even a day early)

you do all the shopping alone while your loved one is impatiently waiting in the parking lot

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"The key to being patient is having something to do in the meantime" AU
MooseMom
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« Reply #7 on: July 01, 2010, 10:00:31 PM »

...seeing little blood stains on their clothing and bed linens no longer freaks you out.

...you start arguing with their nephrologist.

...you find phosphorus jokes funny...and you understand WHY they're funny.

...you start making up phosphorus jokes yourself.

...you compare fistulas.

...you compare fistulas and award prizes.

...you refer them to IHD.
« Last Edit: July 01, 2010, 10:02:42 PM by MooseMom » Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
-Lady Noir-
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Where's your will to be weird?

« Reply #8 on: July 02, 2010, 01:33:58 AM »

You lay awake at night terrified about how alone you will feel if something happened to them, and you cry.

Oh how i know that feeling!  :cuddle;


.. You know their medical history better than they do
« Last Edit: July 02, 2010, 01:41:00 AM by -Lady Noir- » Logged

Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
cariad
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What's past is prologue

« Reply #9 on: July 02, 2010, 08:13:15 PM »

My husband has never shown any signs of real worry or drive to learn about kidney failure (though he has picked up a lot of medical knowledge on the fly), but I think he could add "You are voluntarily minus one perfectly healthy kidney" to this list. :laugh:
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: July 02, 2010, 09:23:53 PM »

"You are voluntarily minus one perfectly healthy kidney" to this list. :laugh:

 :2thumbsup; :clap; :beer1;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boswife
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us and fam easter 2013

« Reply #11 on: July 03, 2010, 10:21:51 PM »

oh my goodness!!!!... you all DO know how we all feel...I laughed and i cried through reading this..........what an amazing group!!
« Last Edit: July 03, 2010, 10:26:23 PM by boswife » Logged

im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Fox_nc
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« Reply #12 on: July 04, 2010, 10:00:38 AM »

When you get admitted to the hospital and the entire staff on the kidney floor knows you and your entire family

When you go to the pharmacy and don't have to tell anyone your name
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Kitty Cat
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Lila & Smudgie

« Reply #13 on: July 04, 2010, 12:04:45 PM »

I second that Fox nc!!! That happens every single time! Plus the staff at the hopsital remembered that our daughter was expecting a baby and all gathered to see pics when she finally had him! When my hubby goes in for surgery on the 13th, I've already got his brag book packed for them to see updated pics from when she and the baby were here. lol  :2thumbsup;
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GrammasGirl
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« Reply #14 on: July 05, 2010, 11:22:34 AM »

I'm new to all this- here for my Gramma....but can I add:

you know the taste, smell, consistency, color, price, calories/ protein/phos/potass/salt mg of every single solid protein drink/shake in the free world, where to find each one and how late/early each store is open!

...and now after reading so many posts form all of you, I can add:

 "he was diagnosed" reads "we was diagnosed" and "DH had surgery" reads DH & I had surgery" to my worn eyeballs!

I find myself talking that way to Dr's and concerned friends, "we ate about 2 bites of dinner", "we had a hard time sleeping"...it is really Gramms having all these troubles- I am just her shadow- but I feel like I experience these things, too... ( I think I have exhaustion babble happening! I'll shut up now!)
« Last Edit: July 05, 2010, 11:46:13 AM by GrammasGirl » Logged
CharmedMist
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Everyday I fall more in love with you

« Reply #15 on: July 05, 2010, 05:04:00 PM »


 "he was diagnosed" reads "we was diagnosed" and "DH had surgery" reads DH & I had surgery" to my worn eyeballs!


Yes!!
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boswife
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us and fam easter 2013

« Reply #16 on: July 07, 2010, 08:54:30 PM »

Quote
"he was diagnosed" reads "we was diagnosed" and "DH had surgery" reads DH & I had surgery" to my worn eyeballs!"


Again soooooooooo funny...  Im always saying.....WE this and WE that..  It truly is a "WE" thing isnt it..





EDITED - Quote Error Fixed - Bajanne, Moderator
« Last Edit: July 10, 2010, 10:43:06 PM by Bajanne » Logged

im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Fox_nc
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« Reply #17 on: July 08, 2010, 03:07:56 PM »

... you can pour out exactly one weeks worth of pills (regardless of dosage) without counting to refil your pill box.

I caught myself doing this this week and laughed out loud - 7, 14, 28 - didn't matter - I poured a weeks worth without counting every time.  Guess I just know what a weeks worth looks like now ... not sure if I'm happy about that or not ....
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
Brightsky69
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« Reply #18 on: July 09, 2010, 06:39:20 AM »

My BF went from almost pucking when i first told him about me going on PD to now getting rid of my drain bags each morning and laying next to me when i do manual exchanges.

He's toughen up!! ;D
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
silverhead
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« Reply #19 on: July 11, 2010, 07:29:43 AM »

When in the dark of night you can reach out to that tabletop LOADED with various medications and without a problem pick out the nausea or cramp med to give her. And spend hours re-arranging them after the visiting Nurse or Doctor goes through them and never places them back in the correct "position".........

How about the confusion you feel for a couple of weeks when you hand her her morning or evening meds and things do not look quite right because the pharmacy has changed suppliers of a certain med and the pill is a different shape or color, you just know something isn't right........
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looneytunes
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Wishin' I was Fishin'

« Reply #20 on: July 11, 2010, 07:44:13 AM »

when you check the labels at a convenience store to see how much sodium/potassium/phosphates are in the snack YOU crave  :rofl;
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-Lady Noir-
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Where's your will to be weird?

« Reply #21 on: July 11, 2010, 09:34:08 PM »

when you check the labels at a convenience store to see how much sodium/potassium/phosphates are in the snack YOU crave  :rofl;


 :rofl;

I do that! Hehehehe
Logged

Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
breezysummerday
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« Reply #22 on: July 14, 2010, 04:15:15 PM »

.... you can do the pounds to kilo ratio in a blink of an eye
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
dialysismomma
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« Reply #23 on: July 15, 2010, 01:28:26 PM »

when you get up at 4 am just to make sure he is awake for treatment and worry the whole time he is gone because he wont let you go and have to sit there for for hours...

When he hollars your name and you drop what ever you are doing and run to see what he needs even if he is in the other room and you can see him.

When he wakes you up because he leg is cramping and you are happy to get up and help rub the cramp out.

When you can only sleep if you hear his fistula swishing in your ear
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aharris2
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Volcan Pacaya, Guatemala

« Reply #24 on: July 20, 2010, 10:43:05 AM »

...when he's running a fever because of some bug "the kids" brought home...
AND YOU'RE HAPPY because it sure beats the other reasons a dialysis patient might be running a fever!
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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