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Author Topic: Los Angeles man - kidney plea  (Read 3755 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: December 02, 2006, 01:26:35 PM »
Here's a local Los Angeles guy needing a kidney -
only been on dialysis a few months - http://cbs2.com/video/?id=29527@kcbs.dayport.com
- must be nice to have friends in the media!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
angela515
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« Reply #1 on: December 02, 2006, 02:10:30 PM »
If I had the option of using the media, I would.... so I can't be mad at him. Hope it works out for him.  :2thumbsup;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Zach
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"Still crazy after all these years."
« Reply #2 on: December 02, 2006, 09:57:24 PM »
It's every man, woman and child for themselves.    :'(
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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« Reply #3 on: December 02, 2006, 10:34:49 PM »
Why did they say "dialysis is not a life long treatment for him"??  It is if that's all ya got!
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Zach
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"Still crazy after all these years."
« Reply #4 on: December 03, 2006, 05:06:55 AM »
Quote from: Rerun on December 02, 2006, 10:34:49 PM
Why did they say "dialysis is not a life long treatment for him"??  It is if that's all ya got!


Actually in the interview, the guy looking for the kidney donation said his doctors told him, "... you're not really a candidate for a life-long dialysis..."
« Last Edit: December 03, 2006, 05:16:36 AM by Zach » Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
BigSky
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« Reply #5 on: December 03, 2006, 10:23:38 AM »
Quote from: Rerun on December 02, 2006, 10:34:49 PM
Why did they say "dialysis is not a life long treatment for him"??  It is if that's all ya got!


It is claimed the doctor said this to him, however I would like to know the reasoning  behind such a  statement also. ???
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angela515
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« Reply #6 on: December 03, 2006, 12:55:14 PM »
I'm wondering what makes a person not a canidate for "life-long dialysis" but they are a canidate for transplant?
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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« Reply #7 on: December 03, 2006, 12:56:59 PM »
Sometimes television reporters get the facts mixed up because most of them are generalists and few are experts at anything.  Sometime the facts are exaggerated intentionally or not such as one site that claimed a dialysis patient would die after 5 days without treatment.    
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jbeany
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« Reply #8 on: December 03, 2006, 01:05:42 PM »
Huh - such a strange choice of words.  Are any of us really good candidates for "life-long dialysis"?  I've only run across a few people happy to join the party - and I've usually had reason to question their sanity.  How do you qualify for that election primary, anyhow? 

I'd like to be the first candidate in line for a cure, but I can't figure out where the line starts. . .
« Last Edit: December 03, 2006, 02:50:42 PM by jbeany » Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Zach
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"Still crazy after all these years."
« Reply #9 on: December 03, 2006, 02:49:58 PM »
Maybe to make his "appeal" more appealing, he had to make it sound as if he has no choice ... he must have a transplant, so someone give it up.     :o
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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