marcy996
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« on: May 20, 2010, 10:20:46 AM » |
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I am a 58 year old single mom who was diagnosed with ckd 3 years ago. The cause was never determined. My current creatinine indicates that I am stage 4 but my current nephrologist believes I am stage 3 based on clearance. A few months ago I made and stuck to some dietary changes and so far I am holding steady. I will find out next month if this is still true. Sometimes it is a rough emotional ride when I think about the future and how I will juggle dialysis and help my son have a normal life. I don't have a support system and will need to figure that out when the time comes.
I am a member of another site and have tried to keep up to date with understanding my disease and treatment options. I look forward to getting to know people here.
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May God hold you in the palm of His hand..
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peleroja
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« Reply #1 on: May 20, 2010, 10:34:02 AM » |
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Welcome to our little slice of heaven. You will always find a support group right here. Glad you joined.
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Zach
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« Reply #2 on: May 20, 2010, 10:35:04 AM » |
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It's real good to have you here!  |
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.  I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology." |
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Rerun
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« Reply #3 on: May 20, 2010, 10:54:24 AM » |
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Hello Marcy and welcome to IHD. I'm so glad you found us. I've never been to any other site because this one takes care of all my needs. Mostly venting about dialysis! It sucks but here we help each other cope. You will do fine. I hope you are stable for a long time. But, keep reading and learning your options. Rerun, Moderator  |
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« Last Edit: May 20, 2010, 10:58:54 AM by Rerun »
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YLGuy
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« Reply #4 on: May 20, 2010, 10:59:21 AM » |
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Hi! Single dad of 3 ESRD. Glad you found us.
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looneytunes
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« Reply #5 on: May 20, 2010, 12:18:48 PM » |
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Hi Marcy, glad you joined us. Lots of IHD'ers who have plenty of experiences to share with you. Feel free to ask questions, vent or just read and absorb. |
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"The key to being patient is having something to do in the meantime" AU
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cariad
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« Reply #6 on: May 20, 2010, 12:43:53 PM » |
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to IHD, Marcy. I've always been told that creatinine clearance is more accurate than serum creatinine readings, so it makes sense that your doctor believes you are really only stage three. I hope you keep up the stable labs and that you feel free to use us for emotional support.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
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Bajanne
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« Reply #7 on: May 20, 2010, 02:13:46 PM » |
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Welcome to our community! It is great to have another person born in the 50's (great set of people!) I can imagine your concern at this time. But you will be fine. So far, you seem to be doing well. Keep it up. This is a great place for venting, ranting, raging or raving! Just feel free. You would have to search far to find a more supportive group of people. In fact, I consider this a real family  Just keep reading and keep posting. Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"  I LOVE my IHD family! |
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cloud393
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« Reply #8 on: May 20, 2010, 02:34:21 PM » |
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Welcome to our family of friends. You could stay at stage 3 for a long time. Especially since you are aware of what's going on and are taking measures to prevent it.
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May you live as long as you want and never want as long as you live.
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marcy996
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« Reply #9 on: May 20, 2010, 02:54:06 PM » |
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Thank you everyone for your warm welcome. It is greatly appreciated. I do have one question and I will ask it when I find the appropriate place on this forum.
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May God hold you in the palm of His hand..
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kellyt
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« Reply #10 on: May 20, 2010, 03:42:12 PM » |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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kidneyboytrip
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« Reply #11 on: May 20, 2010, 10:25:47 PM » |
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Welcome you certainly came 2 the right place n yeah its a rough ride but the more u kno about kdisease tha eaiser it will b thats a promise try reading "The handbook of dialysis" by Gutch and stoner its technical at times but full of great info gud luck n keep me posted...later
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marcy996
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« Reply #12 on: May 21, 2010, 04:38:10 AM » |
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Welcome you certainly came 2 the right place n yeah its a rough ride but the more u kno about kdisease tha eaiser it will b thats a promise try reading "The handbook of dialysis" by Gutch and stoner its technical at times but full of great info gud luck n keep me posted...later
Thanks for the info on the handbook. Do you know if it is available in bookstores or online? BTW love your kitty avatar! |
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May God hold you in the palm of His hand..
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kidneyboytrip
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« Reply #13 on: May 24, 2010, 08:46:55 AM » |
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i bought it years ago at brentannos but its in its 4 edition try a college bookstore that offers nursing if u cant find that one try the "Anna book of nephrology nursing" by core curriculum but its highly technical not to mention about 75 bucks gud luck...later
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Jean
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« Reply #14 on: May 24, 2010, 04:20:31 PM » |
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Hi there and Welcome to IHD. Good for you for wanting to learn, and this is the place to do it. Come back often and read and learn. Ask any questions you may have. Some one here will have the answers.
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One day at a time, thats all I can do.
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galvo
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« Reply #15 on: May 24, 2010, 08:57:28 PM » |
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Marcy!
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Galvo
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monrein
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« Reply #16 on: May 25, 2010, 03:45:05 AM » |
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and I look forward to getting to know you also.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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marcy996
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« Reply #17 on: May 25, 2010, 04:39:19 AM » |
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thank you everyone for your thoughtfulness in making me feel welcome.
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May God hold you in the palm of His hand..
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