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Author Topic: 3 weeks out!  (Read 1840 times)
topazbeauty
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« on: May 18, 2010, 03:15:07 PM »

So I'm almost 3 weeks out from my transplant and everything has been going great for the most part. My labs have been great. I've even out done my doctors expectations. My creatinine these last two draws has dropped to 0.9! They didn't expect me me to drop below 1.2 so that was a great surprise to have it stay so low. My white blood cell count is super high, but they are blaming that on my age, relative health (being good other than this) and the still higher doses of prednisone (15 mg twice a day). Other then that my other labs have been fine, they are still trying to get my Tac level where they want it.

My mom (donor) is doing well and gets to go home home this week, but can't go back to work until June. I have my first follow up on Thursday and hopefully get to go back to work half time next week (frankly I need the money cause I didn't qualify for short term disability).

Everything has been going really well, until this last weekend. I was managing my pain with pain pills twice a day but then Saturday came and after dinner I got hit with stabbing pain that would not go away. Long story short I ended up in the ER all day yesterday trying to figure out the pain. And of course they didn't find anything other than a slight UTI (which I've had in the past but have not ever had pain associated with it). So they are treating me for the UTI and hoping that the pain goes away with it. I'll give more updates when I have my first follow up.

Oh and if anyone is curious on pictures you can see the ones that I have up here:

http://www.facebook.com/album.php?aid=2054541&id=51601883&l=394419cafb
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: May 18, 2010, 04:09:26 PM »

Wow, big scar but it looks great! (Badge of Honor!) Best wishes to your lovely Mom - I hope your pain is resolved and you both have a speedy recovery!  :cuddle; :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
sullidog
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« Reply #2 on: May 18, 2010, 05:18:43 PM »

Glad you're doing well! Just curious why did your employer deny your STD? Did they actually think you are able to work?
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
topazbeauty
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« Reply #3 on: May 19, 2010, 09:29:22 PM »

I was denied when I started working at my current employer on grounds of existing condition. It's not that big of a deal, my work has been really great about everything else, adn I was able to use some of my sick leave and vacation to subsidize my time off. Just a little stressful for a few months, but then I should be good.

Jes
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
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