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Author Topic: Transplant update  (Read 1699 times)
topazbeauty
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« on: May 06, 2010, 08:36:54 AM »

So I'm home now and feeling much better. Still in a bit of pain but it's actually not around my incision site but more related to my Left side back, I think I'm walking weirdly and putting more stress on it in an attempt to keep the incisional pain down. Yesterday was my first day to go get labs drawn at my own lab. I am suppose to go M,W,F for labs right now. Labs for the most part when without a hitch, my creatinine is staying down around 1.2 which is wonderful!

Biggest concern right now is actually for my Mom. She is recovering at my grandparents a couple hours away and has not been eating well. Yesterday she had to go to the ER because her potassium and magnesium had dropped so low that she was ill. They gave her IVs and sent her home and today she is throwing up again, so we are waiting for the transplant unit to get back to us on if she needs to coem in and make sure everything is ok. It seems to be just gastro-intestinal issues but better be safe than sorry. It's hard for me because my grandparents won't tell me anything cause they  "don't want to upset me" which just makes it worse cause I have to call my step dad all the time to get updates on my mom. I'm trying not to worry as it seems like the pain pills are just not agreeing with her and once she gets over it she will be fine.

More to come when I have more information. First Tac level drawn on Monday so I'll update on my progress.
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: May 06, 2010, 10:58:57 AM »


I hope your Mom is feeling better soon!
Good to hear you're up and around. They say walking is the best to do as soon as you are able.
 :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #2 on: May 06, 2010, 12:33:30 PM »

Sorry to hear about your mother, hope she feels better soon.
 
As for the back pain, sounds like its from the darn hospital bed :rant;
They are notorious for that! Hope that goes away soon.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
looneytunes
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« Reply #3 on: May 06, 2010, 07:27:04 PM »

Topaz...congrats on the successful transplant.  Sure hoping your mom feels better soon. 
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"The key to being patient is having something to do in the meantime" AU
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