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Hi - I'm Noel!
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Topic: Hi - I'm Noel! (Read 4913 times)
nextnoel
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Hi - I'm Noel!
«
on:
November 24, 2006, 07:07:41 AM »
Hello all, and thanks so much for this site! I have been reading it for awhile now, and am so pleased to be allowed to join; thank you!
My name is Noel (with 2 dots over the e, but I can't figure out how to do that with this program). I am 61 (or as I like to say, "60-freakin'-1"), female, and am not yet on dialysis, but the day is coming. I was found to have high blood pressure (210/155) during a routine physical about 7 years ago (have never had symptoms of any kind), and it's been a struggle ever since to control it; decrease in kidney function has been happening gradually, but is still pretty high.
I have been happily divorced for over 30 years, have a grown daughter, and work full time in Washington, DC - a good thing for so many reasons, including that I only have access to a computer at work, although I find this site so interesting and informative that I am trying to figure how to buy a computer for home! I'm short, blond, plump (OK, I'm being kind here), and look perfectly harmless, but in reality, I'm a Force To Be Dealt With, and the older I get, the more comfortable I am letting that side of my personality show!
When my nephrologist first mentioned the likelihood of dialysis at some point, I absolutely freaked out, in my own way (I'm sure my face looked perfectly calm, but in my mind, I was screaming and running out the door, down the street, and into traffic). I was very seriously considering refusing dialysis when the time came, but I started reading up on it anyway; what I read in the usual medical literature didn't change my mind - there were too many things I needed to know and couldn't find out. Then I came across this site, and my whole attitude has changed! I have a more realistic idea of what dialysis will be, and I feel as if I will be able to advocate for myself when the time comes - I don't do "helpless" very well, and for me, knowledge = confidence!
So thanks again for the openness, humour, good will, and knowledge you all are so willing to show - that takes guts, and I'm sure there are many others who haven't yet joined that are benefitting!
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Last Edit: November 24, 2006, 07:10:20 AM by nextnoel
»
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Sluff
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Re: Hi - I'm Noel!
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Reply #1 on:
November 24, 2006, 07:38:32 AM »
Welcome to IHD Noel.
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angela515
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i am awesome.
Re: Hi - I'm Noel!
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Reply #2 on:
November 24, 2006, 08:56:08 AM »
Welcome Noel
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
paris
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Re: Hi - I'm Noel!
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Reply #3 on:
November 24, 2006, 10:17:36 AM »
Enjoyed your post. Love you sense of humor!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
nextnoel
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Re: Hi - I'm Noel!
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Reply #4 on:
November 24, 2006, 10:23:03 AM »
Thanks for the welcome - it's good to be here!
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Zach
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Re: Hi - I'm Noel!
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Reply #5 on:
November 24, 2006, 10:23:30 AM »
Welcome to the community, good to have you here!!!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
okarol
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Re: Hi - I'm Noel!
«
Reply #6 on:
November 24, 2006, 10:25:14 AM »
Hi Noel,
Welcome! There should be a club called "I'm a Force To Be Dealt With" - and I'd like to join!
You need to be tough to deal with dialysis techs!
~Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
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Living Donors Rock!
http://www.livingdonorsonline.org
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News video:
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nextnoel
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Re: Hi - I'm Noel!
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Reply #7 on:
November 24, 2006, 10:53:37 AM »
Thanks, Karol. That club sounds good to me - I wanna be President (no, make that QUEEN)!
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I can't reach the hill like I used to, but I'm not at a standstill yet!
charee
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Re: Hi - I'm Noel!
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Reply #8 on:
November 24, 2006, 01:01:32 PM »
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Home Hemo 18 months
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from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
Fox_nc
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Re: Hi - I'm Noel!
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Reply #9 on:
November 24, 2006, 01:56:51 PM »
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
kitkatz
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Re: Hi - I'm Noel!
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Reply #10 on:
November 24, 2006, 02:02:53 PM »
I want to co-president of the club of "A Force To BE Reckoned With". Welcome!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
goofynina
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He is the love of my life......
Re: Hi - I'm Noel!
«
Reply #11 on:
November 24, 2006, 04:14:15 PM »
Excellent intro Noel
Welcome to our awesome website/support group. Please feel free to post any questions, comments or concerns of your own, i am sure you have many questions regarding what lies ahead (dialysis)
And if you dont find what you are looking for, dont hesitate to ask, we would be more than happy to help you out... Looking forward to more of your posts.
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....and i think to myself, what a wonderful world....
www.kidneyoogle.com
Rerun
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Re: Hi - I'm Noel!
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Reply #12 on:
November 24, 2006, 05:39:18 PM »
Hi Noel(..over e)
Welcome to our site. You should be on a low protein diet to preserve what function you have left. If you aren't already then ask your Nephrologist.
I worked for USDA for lots of years so I know a few people in D.C. over in the Ag Building. I was there a few times for work. Spent lots of time looking through the Smithsonians. Neat City if you like history.
Glad you came aboard!
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Bajanne
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Re: Hi - I'm Noel!
«
Reply #13 on:
November 24, 2006, 10:40:03 PM »
Welcome to our wonderful community. I am so glad that you have joined us. And you have done so at the best time - before dialysis. There is so much to be learnt here (as you have already seen). I can see that you are going to be an interesting addition to our community. I am looking forward to hearing a lot from this Force To Be Dealt With.
BTW, you can make an ë by holding ALT, inputting 137, and releasing ALT.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
angieskidney
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Re: Hi - I'm Noel!
«
Reply #14 on:
November 25, 2006, 12:26:09 AM »
Hi Noel!! You should check out the chatroom sometime and the games and the .. oh heck just everything!!
Quote from: bajanne2000 on November 24, 2006, 10:40:03 PM
BTW, you can make an ë by holding ALT, inputting 137, and releasing ALT.
Epoman probably prefers sticking to letters that'll work on everyones computer though
It's all good!
*tries that ALT thing (knows that used to work on older computers before Windows)... ë WOW IT WORKS!!! THANKS Baj!!
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Last Edit: November 25, 2006, 12:30:08 AM by angieskidney
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FREE Donor List for all Kidney Patients!
diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Joe Paul
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Re: Hi - I'm Noel!
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Reply #15 on:
November 25, 2006, 01:47:17 AM »
Welcome Noel, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
Fighter
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Re: Hi - I'm Noel!
«
Reply #16 on:
November 25, 2006, 03:24:45 PM »
Hi Noël (notice the spelling, much easier on a French keyboard
)!
Happy to have you aboard, you'll know everything there is to know about dialysis when you eventually get to that point...
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anja
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Re: Hi - I'm Noel!
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Reply #17 on:
November 25, 2006, 09:50:59 PM »
Noël, glad you have joined our community, you will continue to benefit from it as you already have. Attitude is so very important and knowledge can make you have powerful confidence! Stay strong!
Anja
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nextnoel
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Re: Hi - I'm Noel!
«
Reply #18 on:
November 27, 2006, 06:32:12 AM »
Thanks, everybody! What lovely welcomes - you guys sure know how to make a newbie feel at home!
Rerun, your low-protein diet advice is good. I was diagnosed around the time my daughter, Marie, went vegan, and she was learning to cook lots of healthy non-meat, low protein dishes. Fortunately for me, she remembered what I had tried to teach her about sharing, and for a few months, she made me the exclusive beneficiary of her cooking overflow. My GFR actually went up about 7 points! I'm not quite as good about it now that I do most of my own cooking (and succumb to fast food sometimes), but I still tend to stay away from meat, and go light on the eggs & cheese.
BTW, I'm too dumb to do the 2-dots-over-the-e even with instructions. I hold ALT, input 137, input e - and get a drop-down menu! Meantime, I have copied someone else's successful "ë", and I won't worry overly about it - it seems as if you all know who I am, anyway!
Thanks again!
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I can't reach the hill like I used to, but I'm not at a standstill yet!
sandman
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Re: Hi - I'm Noel!
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Reply #19 on:
November 27, 2006, 08:07:32 PM »
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mallory
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Re: Hi - I'm Noel!
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Reply #20 on:
November 28, 2006, 11:22:49 AM »
Welcome, Noel! Wow, believe it or not, my first boyfriend's name was Noel. I hadn't thought about him in a long time. I was in first grade, after all, but I was sure he was the one for me. Then I made the mistake of throwing his new cowboy hat in the creek and we were finished.
Glad you're here, great first post!
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
- Jerry Garcia
angela515
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i am awesome.
Re: Hi - I'm Noel!
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Reply #21 on:
December 07, 2006, 08:51:00 AM »
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
jasperkat
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Re: Hi - I'm Noel!
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Reply #22 on:
December 07, 2006, 10:52:35 AM »
Welcome Noel!
I am also new to the Membership. I lurked for a while. Never stop advocating. I am the bane of their existence in my husband's dialysis unit. I question everything. Given that they can remember which arm the fistula is in I figure it is necessary.
Jasperkat
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jedimaster
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Stainboy is....alive!!!
Re: Hi - I'm Noel!
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Reply #23 on:
December 08, 2006, 07:28:24 PM »
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