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Author Topic: Flouride treatments and kidney disease  (Read 2095 times)
MooseMom
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« on: March 31, 2010, 03:29:47 PM »
I've started going to a new dentist.  I hadn't been to one in 6 years, and I needed to see one for my pretransplant evaluation.  My teeth and gums are now all nice and shiny, and the hygenist wants to give me flouride treatments.  Because I'm now so paranoid about anything that comes near me because you never know what mysterious substance might make my kidneys explode (starfruit, anyone?), I'm wondering if regular flouride treatments are problematic in any way for a kidney patient.  Anyone know?  Thanks.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
monrein
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« Reply #1 on: March 31, 2010, 03:32:51 PM »
http://www.fluoridealert.org/health/kidney/

Based on this, I think I'd pass on those.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #2 on: March 31, 2010, 03:41:32 PM »
Oh, for God's sake!  Well, see, paranoia pays off.  I don't know about Canada, but water here in the US is flouridated, but no one has ever said anything to me about the dangers of flouride.  My neph has never mentioned it...no one.  Does anyone out there not drink flouridated water or use flouridated water during dialysis?  Has anyone here on IHD EVER had a conversation with ANYONE about the dangers of flouride?

I guess this is money saved at the dentist's office!

Does this mean that along with most other foods and liquids, now we have to avoid water?  Jeez, I'm surprised any of us are alive!
« Last Edit: March 31, 2010, 04:02:00 PM by MooseMom » Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
KarenInWA
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« Reply #3 on: March 31, 2010, 09:04:25 PM »
MooseMom - this is exactly why I have a water cooler in my kitchen!  I get Crystal Springs water delivered to my home in 5 gallon jugs.  Sadly, I live in a state that is in a bugdet crisis and will soon be charging a 1 cent/oz tax on all bottled water.  The governor thinks bottled water is not needed and is a "luxury" item.  Ummmmm, what are people supposed to do in an emergency???

I drink my bottled water and cook with it.  I also use it for to make ice cubes.  I understand that one can purchase a water-filtering system for the whole home, which may be even better.  I haven't looked into it, but I did notice that at the store, the permanent water filters on the shelf have different "levels".  I would assume that the higher levels would filter out the fluoride.  Good subject to research...

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
calypso
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« Reply #4 on: March 31, 2010, 10:04:32 PM »
You do realize that bottled water is usually just tap water from another state right?
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Stoday
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« Reply #5 on: April 01, 2010, 12:45:05 AM »
Quote from: calypso on March 31, 2010, 10:04:32 PM
You do realize that bottled water is usually just tap water from another state right?
Not in Europe, where the bottle must state the water's origin, as "Mineral Water" or "Spring Water".

When Coca-cola tried to sell Dasani (tap water) in the UK it bombed and they gave up.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
KarenInWA
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« Reply #6 on: April 01, 2010, 05:49:25 AM »
Crystal Springs water is not tap water.  The price I pay (before that regressive state tax kicks in) is minimal, and quite worth it to me.

Case in point - I can have a glass of my Crystal Springs water sit out for a long time and it tastes just as good as it did when I first got it from the cooler.  Can I say the same with the water from my tap?  Not a chance.  After tap water has been sitting out for a while, it tastes wretched.  Also, when the ice cubes melt in my drink, it doesn't taint the drink with that nasty melted ice cube taste that I used to get.  I don't know how to explain that taste, but I can say I sure don't miss it!

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
MooseMom
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« Reply #7 on: April 01, 2010, 07:54:59 AM »
Does everyone drink some sort of bottled water?  Really, my neph nor my renal dietician have ever mentioned this.  I use a Brita filter, but I have no idea if it removes flouride.  Do all of you use a housewide filtering system?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
monrein
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« Reply #8 on: April 01, 2010, 09:26:23 AM »
A reverse osmosis filter will remove the fluoride, Brita won't.  Boiling water just concentrates the fluoride apparently. This is all new info for me too MM but I do have osteoporosis (from osteopenia to moderate osteoporosis in the last year before transplant) and so plan to look into a household filtering system.  At the cottage I use bottled water that we pour into a non-leaching plastic container.  I also plan to ask my dentist about this but I'm not thinking of panicking...that just leads to functional paralysis in my experience.  I drink lots and lots of Toronto tap water, I like the taste, but I'll change my habits if need be.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
sullidog
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« Reply #9 on: April 01, 2010, 05:38:53 PM »
This is a good question. I think I will ask my dialysis care team. Now what I do know is I just got my first cleaning in 6 years the other day and they didn't give me floride, and the topic of it never even came up.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
MooseMom
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« Reply #10 on: April 01, 2010, 10:12:30 PM »
Quote from: sullidog on April 01, 2010, 05:38:53 PM
This is a good question. I think I will ask my dialysis care team. Now what I do know is I just got my first cleaning in 6 years the other day and they didn't give me floride, and the topic of it never even came up.
Troy
I really hate to say this because I don't like sounding skeptical, but I have a feeling that the hygenist was just trying to sell me something.  I meant to ask my neph about it today at my regular appt, but I forgot; I was too stressed out.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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