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Author Topic: 0 of 6 antigen match living donor transplant  (Read 4974 times)
BASSMAN
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« on: March 29, 2010, 06:54:21 PM »

I would like to know your outcomes if you have had a 0 of 6 antigen match, living donor transplant.  I have read a lot of different information that says a 0 of 6 living donor transplant is better than a cadaver transplant.  This is what I am facing with my donor.  Please share your outcomes if you would please.  Thank you in advance!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
monrein
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« Reply #1 on: March 29, 2010, 07:40:50 PM »

That is exactly my situation, having had a 0 of 6 antigen match transplant from my sister-in-law on February 23rd 2009.  All has gone extremely well to date, creatinine has been in the normal range the entire time, including during the time I was readmitted for a second surgery to remove my 1st transplant, 2 months after receiving my new kidney.

My first transplant was a 6 of 6 cadaveric transplant and lasted me just over 23 years.  The other salient issue with any living donor transplant is of course the fact that it can be scheduled as opposed to waiting on the list for as long as it takes to get the call.

Best of luck.  There are never any guarantees, but based on my experience so far I"m very satisfied with the information given to me by the hospital. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #2 on: March 29, 2010, 07:51:33 PM »

I was told the same thing - 0/6 living is better than a 6/6 cadaver.  You would take more medication with a 0/6, I believe.  Is that right, Monrein?  Monrein has had such wonderful success with her transplants.  She takes great care of herself and her kidney.  You could do the same.  My vote is for the living 0/6.   Good Luck!     :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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« Reply #3 on: March 29, 2010, 08:04:14 PM »

I don't know about more meds but here's what I take for anti-rejection....Cellcept 500mg twice a day, Prograf 4mg in the morning and 3mg at night, and 5mg of prednisone.  Pretty standard I think, right?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #4 on: March 29, 2010, 08:35:40 PM »

I take 500 mg of Cellcept twice a day and I'm at 3/2 for Prograf (1 mg capsules).  I started at 4/4 and have gone down to 2/2, but my Prograf level was in the 4's about a month or so back so he raised it back up to 3/2.  My level is now in the 7's, so my guess is we'll stay there for a while.  I'm dropping to 1 mg of Prednisone April 1st and then off May 1st.  We'll see if anything changes then.  I'm hoping to stay off the Prednisone, though.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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Might as well smile

« Reply #5 on: March 29, 2010, 08:59:18 PM »

I'm on pred for life.  Been on since 1985. Everyone at the TGH is on it as far as I know.  I don't sweat it...no choice.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
BASSMAN
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« Reply #6 on: March 30, 2010, 04:35:22 AM »

Wow, terrific!!!
I am committed to taking care of myself.  My wife is willing to give me a kidney and that places the responsibility to do all I can to take care of it on me.  We are an 0 of 6 match.  It is encouraging to hear of your success!!!  She still has several tests to go.  Fingers crossed!
« Last Edit: March 30, 2010, 04:36:32 AM by BASSMAN » Logged

Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
lola
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I can fly!!!

« Reply #7 on: March 30, 2010, 06:48:01 AM »

My brother-in-law is on year 7 with his.....and he and his wife(donor) are both doing great.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: March 30, 2010, 09:28:13 AM »

Wow, terrific!!!
I am committed to taking care of myself.  My wife is willing to give me a kidney and that places the responsibility to do all I can to take care of it on me.  We are an 0 of 6 match.  It is encouraging to hear of your success!!!  She still has several tests to go.  Fingers crossed!

 :2thumbsup; Good luck!! (We need a crossed fingers smiley.)  :)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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