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Author Topic: 1 donor down :(  (Read 2365 times)
topazbeauty
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« on: March 20, 2010, 05:40:52 PM »

So my dad finally got out for his appointment (it only took the hospital 2 weeks to call him and get him in as opposed to my 2 months). He came out on Monday and everything seemed to be going welll. The tests went without a hitch and then he headed home that night. Thursday we got the results of the CT scan...and my seemingly easy donor dissapeared. It seems that he has kidney stones in his left kidney so he's disqualified to be a donor  :'( . It was hard news, and my Dad is taking it pretty bad, but I'm more worried about the time lines now. UW only approves donors once a month and then it takes 6-8 weeks to plan the surgery. I don't want to sound ungrateful, because I know that I should be happy that I have options, but the thought of missing the approval deadline by a week and having to wait another month is just hell on me. And I don't understand why they can approve recipients weekyl but donors only monthly, it's the same group of people! So frustrating!

OK, thanks for the rant.
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Jes 23
MPGN-1 '98
Remission for 10 years!
12/1/2009 - permacath placed and first round of Hemo
12/2/2009 - transplant center recieved all my documents! Waiting for appointment
2/2010 - approved for transplant
3/18/2010 - Dad not approved due to medial reasons
4/28/2010 - Living tranplant from Mom
Romona
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« Reply #1 on: March 20, 2010, 05:45:46 PM »

 :grouphug;
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kellyt
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« Reply #2 on: March 20, 2010, 07:33:39 PM »

That's crazy!  Sorry about your Dad.  They declined my Husband because he "might someday, possibly, maybe" get kidney stones.  ???  My clinic would only test one donor at a time, but as soon as one was declined they would schedule the next as soon as the donor was ready.  Once my donor was accepted they said to pick a day, but that they only did transplants on the "1st Wednesday of the month".   What?  We were accepted the end of Sept and they said Oct was taken, so we grabbed Nov. 5th.  I thought that was crazy, but when my friend had a donor accepted right after me they told him they didn't just to the 1st Wednesday.  Whatever.  Anyway, he was able to get Dec. 3rd or something.  If they had gone by the other rule he would have had to wait until Feb.  But then again he was 75, so maybe they made an acception.  Who knows.

Keep on keeping on.  Get your donors lined up.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: March 20, 2010, 09:52:40 PM »

Weird, I know people who have donated, even with kidney stones. Some centers just won't do it. You may decide to consider a different transplant hospital at some point. So sorry, I know it's such a disappointment.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sunny
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Sunny

« Reply #4 on: March 21, 2010, 12:07:49 AM »

sorry for your disappointment. I'll bet your Dad is too.I hope it  works out with another of your donors
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
RichardMEL
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« Reply #5 on: March 21, 2010, 03:20:49 AM »

I am guessing that recipients can go onto the cadaveric list and well there's also more recipients than donors (sadly).

Also donation is seen by some as an elective procedure, so there's less of a hurry to work through that. Here it's a monthly approval meeting as well.

Before you know it the month will be over. At least you have a goal to work towards and sooner rather than later you will be able to work through your options. That is a Good thing. Hang in there - when it's meant to happen it's meant to happen.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
calypso
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« Reply #6 on: March 27, 2010, 08:51:45 PM »

Gee I would think the mortality rate is a lot higher for hemodialysis patients than for kidney stones but what do I know?
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"The very powerful and the very stupid have one thing in common. Instead of altering their views to fit the facts, they alter the facts to fit their views ... which can be very uncomfortable if you happen to be one of the facts that needs altering.
-Doctor Who, "Face of Evil"

"The trouble with the world is not that people know too little, but that they know so many things that ain't so." - Mark Twain

"Darkness cannot drive out darkness; only light can do that. Hate cannot drive out hate; only love can do that." -Martin Luther King Jr.
-Lady Noir-
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Where's your will to be weird?

« Reply #7 on: March 28, 2010, 12:11:57 AM »

Far out, sorry to hear that  :(

I got declined to be a donor for Mike because apparently my kidney's aren't that great either! What are the odds?!
His Mum has been doing the tests for a year and 4 months. Still haven't finished.
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
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