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Author Topic: I should be on the list soon!  (Read 2458 times)
marie
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Just living life day by day!
« on: March 19, 2010, 09:21:10 PM »
I've FINALLY gotten all of my test out of the way. Now just waiting for my letter to tell me if I'm on the list or not .... :)   I'm nervous and excited all at the same time.  :yahoo;
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-Diagnosed with ESRD mid Sept. of 08
-Started Dialysis mid Sept. of 08

 My kidney's failed a month after I gave birth to my beautiful daughter becaused the doctors mis-diagnosed me when I had gallstones which went into my pancreas causing pancreantitis. Now im just waiting to be put on the transplant list :)

I'm very thankful to have a chance to see my lil girl grow up !!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: March 19, 2010, 09:47:13 PM »
 :clap; That's great marie. How long did the evaluation take? Good luck!!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #2 on: March 20, 2010, 12:28:15 AM »
 :thumbup; Best of luck to you Marie. Hope it comes along soon.
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One day at a time, thats all I can do.
galvo
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« Reply #3 on: March 20, 2010, 03:15:48 AM »
Best wishes!
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Galvo
RichardMEL
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« Reply #4 on: March 20, 2010, 03:23:02 AM »
Hope it comes soon, and then that magical call as soon as possible afterwards. You're too cute to be on dialysis!! (unlike me!!) :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MooseMom
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« Reply #5 on: March 20, 2010, 09:43:28 AM »
Oh, that is fantastic!  Well done you!  PLEASE let us know when you receive that Magic Letter!  I can't wait to see your post!  Good luck!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Wayne
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Martin (the snorer) & Mack (cat w/renal failure)
« Reply #6 on: March 25, 2010, 11:20:07 PM »
Wish you luck!   :bandance;
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
Rivy
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« Reply #7 on: March 26, 2010, 11:29:12 AM »
 :2thumbsup; Hi Maria!  Wow! you'll get that letter soon...and that's not the only wait..I finally got on the list after three years of doing dialysis..I did receive the letter after me making an effort to go to the office every week to see what's going on..Now I'm on the list after receiving the letter and it's been a wait, hoping that the phone will ring to tell me that it's good news and they have a kidney for me..That's the hoping for and the waiting when everytime the phone rings, think it's that kidney list agent calling...It's just a fustrating wait..I called time this week to say that I'm still here and wanted to know about the stautes.  They told me to stay patient and healthy so when they do call.   I just hope it's soon...Good luck and let us know what happens...
 :clap;
Rivy
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marie
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Just living life day by day!
« Reply #8 on: March 27, 2010, 04:01:54 PM »
Still haven't heard anything yet .... its been 2 weeks so far. Does anybody know how long it takes? I hate waiting on things like this lol     :puke;
Logged
-Diagnosed with ESRD mid Sept. of 08
-Started Dialysis mid Sept. of 08

 My kidney's failed a month after I gave birth to my beautiful daughter becaused the doctors mis-diagnosed me when I had gallstones which went into my pancreas causing pancreantitis. Now im just waiting to be put on the transplant list :)

I'm very thankful to have a chance to see my lil girl grow up !!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: March 27, 2010, 08:11:46 PM »

Looking back I would have called more. It doesn't hurt to check in and ask "Is there anything missing that could delay my being listed?" Some centers only bring patients before their committee once a month for approval, and you could ask if this is the case.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #10 on: March 28, 2010, 02:24:20 PM »
Congratulations!   :yahoo;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
BASSMAN
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« Reply #11 on: March 28, 2010, 03:18:05 PM »
I received my letter 8 days after completion of the evaluation.  It wouldn't hurt to call at this point.  You have waited long enough that you won't seem pushy.
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
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