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Author Topic: howdy  (Read 1902 times)
suzyq73176
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« on: March 18, 2010, 05:29:24 PM »
Well Hello. My name is Sue.  I am a 33 year old mom of three.  I that landed me 9 year old twins and a 15 year old.  I was diagnosed in 2006 with ESRD.  I began hemo and shortly after PD.  I have endured several surgeries since then including the placement of a Shiley cath and peritoneal cath, I had most of my parathyroids removed and had wounds debreided during a six month hospital stint for calciphylaxis.  I also suffered seizures that landed me in ICU.

I am currently awaiting transplant at MGH.  I would love to hear from others in my shoes.  I wish everyone the best of luck.

Sue
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Rerun
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Going through life tied to a chair!
« Reply #1 on: March 18, 2010, 05:34:31 PM »
Sue, I'm so glad you joined our site.  Sounds like you have had a bad time of it.  I hope you get a transplant soon.  Where are you from?  Where is MGH? 

Looking forward to your posts!!

Rerun, Moderator              :welcomesign;
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monrein
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Might as well smile
« Reply #2 on: March 18, 2010, 05:37:35 PM »
 :welcomesign;  Sue.  Glad you joined and I look forward to hearing about more of your experiences with ESRD.  Lots of information and support here.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
galvo
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« Reply #3 on: March 18, 2010, 08:49:39 PM »
 :welcomesign; Sue. Glad you've joined us. Is the M for Melbourne?
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Galvo
Jean
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« Reply #4 on: March 18, 2010, 11:31:03 PM »
 :welcomesign; to IHD Sue, glad you joined us. Not glad for your circumstances of course, just that you found the best web site ever.
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One day at a time, thats all I can do.
suzyq73176
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« Reply #5 on: March 19, 2010, 06:21:57 AM »
Thanks for all the welcoming wishes.  The M in MGH is for Massachsuetts General Hospital.  I live in Worcester County, Mass.
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looneytunes
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Wishin' I was Fishin'
« Reply #6 on: March 19, 2010, 06:43:48 AM »
Hi Suz and welcome to the IHD gang... :welcomesign;  Lots of great folks on here that have been on similar journeys as you.  I am a caregiver to my husband who is on clinical hemo right now after a 2 year stint on PD.   Hope your transplant comes soon and I'm looking forward to geting to know you. 
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"The key to being patient is having something to do in the meantime" AU
MooseMom
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« Reply #7 on: March 19, 2010, 03:35:16 PM »
Dear oh dear, what a story!  This site is a godsend.  Welcome!  There are so many people here who can give you all kinds of support.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kellyt
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« Reply #8 on: March 19, 2010, 03:40:35 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #9 on: March 22, 2010, 01:49:49 AM »
 :waving; Hi Sue,
Man, that's a lot to go through for such a young woman and I am sure your experience is valuable to other members on the forum. I hope things stableize for you and you get a kidney soon. I'll bet those kids keep you busy!
Welcome!
okarol/admin

 :welcomesign;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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