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Author Topic: I am back online...  (Read 2134 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« on: February 22, 2010, 03:45:16 PM »
I moved to Pennsylvania two weeks ago. I just got internet installed today. One big change here in PA is that I decided to change to nocturnal dialysis. I go for eight hours three times a week, Sunday, Tuesday and Thursday nights. King Leon sends his royal love to you.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Sluff
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« Reply #1 on: February 22, 2010, 03:47:21 PM »
Good to see you back Mike. Hope King Leon is enjoying the new castle.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: February 22, 2010, 03:58:56 PM »
Wow, big changes for you and His Highness. Do you like your new place? I can't wait to hear how nocturnal goes. Do they turn the lights off, can you wear jammies, does anyone snore?? LOL Inquiring minds want to know.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wenchie58
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Always carrying the big silly grin!
« Reply #3 on: February 22, 2010, 04:12:10 PM »
Welcome back!   :flower;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
monrein
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Might as well smile
« Reply #4 on: February 22, 2010, 04:15:13 PM »
 :waving;  Hey Mike.  Good to see you back.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #5 on: February 22, 2010, 04:16:46 PM »
You're back!!   :yahoo;    Hope the move has gone smoothly.  Good news about the nocturnal.  Let us know how that goes.   Wishing you many happy years in your new home,  and welcome back to your old one   :2thumbsup;    :grouphug;       My Willow sends best wishes to King Leon.   :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
twirl
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« Reply #6 on: February 22, 2010, 05:05:37 PM »
a royal purr to King Leon
 :cheer: :cheer: :cheer:
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Chris
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« Reply #7 on: February 22, 2010, 05:31:05 PM »
Hey Mikey
Welcome back
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Mimi
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For any who do not like me I use - prayer.
« Reply #8 on: February 23, 2010, 12:43:16 AM »
Welcome back to IHD!!!  Wondered where you were.

Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
kitkatz
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« Reply #9 on: March 04, 2010, 09:03:57 PM »
Do you feel better doing nocturnal? I sure do!   Welcome back!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
galvo
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« Reply #10 on: March 04, 2010, 09:07:09 PM »
 :welcomesign; back!







EDITED: Fixed smiley tag error-kitkatz,Moderator
« Last Edit: March 04, 2010, 09:09:43 PM by kitkatz » Logged
Galvo
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #11 on: March 04, 2010, 09:09:17 PM »
 :welcomesign;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
thegrammalady
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« Reply #12 on: March 07, 2010, 01:31:59 PM »
this may be late, but i'm not on line much.

WELCOME BACK! you were missed. you're gonna love nocturnal. when was the last time they told you to go home and have some cantaloupe?????? or some ice cream?????? nocturnal makes all the difference in the world.  sardines for king leon  :cheer:
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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