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Dialysis: General Discussion
Duke University Hospital incident
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Topic: Duke University Hospital incident (Read 6842 times)
plugger
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Duke University Hospital incident
«
on:
December 26, 2009, 02:28:34 PM »
I just wanted to mention one of our patient advocates,
Larry Hall
, who already has seen more than his share of trouble now had to deal with the Duke University emergency room, a 12 hour wait, and 6 hours of driving back and forth. We've decided to make this public and are waiting on a response from Duke.
click_for_Duke_University_incident
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
okarol
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Re: Duke University Hospital incident
«
Reply #1 on:
December 26, 2009, 04:45:37 PM »
Maybe it's my computer but those links don't seem to work.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
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Living Donors Rock!
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paris
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Re: Duke University Hospital incident
«
Reply #2 on:
December 26, 2009, 05:27:22 PM »
They don't work for me either. Nor does the one in the signature line.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rerun
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Re: Duke University Hospital incident
«
Reply #3 on:
December 26, 2009, 05:51:01 PM »
Maybe they are fixed now. I got it.
I hope you get some sort of compensation..... like no bill would be nice. Why should tax payers have to pay for that treatment or your insurance.
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paris
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Re: Duke University Hospital incident
«
Reply #4 on:
December 26, 2009, 07:53:45 PM »
It worked this time.
Duke is one of the biggest hospitals in the Southeast with a good reputation. It does serve the indigent and those without insurance, so their emergency room is always overcrowded and the wait times are long. Doesn't excuse the behavior of the staff, though. Seems like the patient shouldn't have been sent to the ER but sent directly to the right department via his doctor. My granddaughter was in the children's ER for 8 hours the other night, most of it waiting for the right doctor to see her. ER's are not a place for quick service, but the service should be good.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
plugger
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Re: Duke University Hospital incident
«
Reply #5 on:
December 27, 2009, 06:20:28 AM »
I apologize for the downtime. We have been having server problems, I'm asking the host company to move the site to a different server - might take a few days, but the site is back up for now.
I was a little surprised too, to find out it was Duke Larry had problems with - but nobody deserves to be treated like that. We will see what they have to say about all this.
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
plugger
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Re: Duke University Hospital incident
«
Reply #6 on:
December 30, 2009, 12:48:58 PM »
I did want to mention I have some good news and some bad news. Larry, one of our patient advocates, has had his surgery moved from the end of January to the beginning of the month -
http://dialysisethics2.org/forum/index.php?topic=481.0
.
The bad news is we are getting the run-around in obtaining a response. So Carl Ginsburg, a lawyer/journalist friend, has graciously offered to help. We like to settle these matters with less fanfare, but Duke seems to be insisting. So if they want to meet one of our heavy-hitters - so be it.
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
cariad
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What's past is prologue
Re: Duke University Hospital incident
«
Reply #7 on:
December 30, 2009, 09:37:36 PM »
Good luck with this incident, Plugger. I will be interested to hear Duke's response. This type of treatment from medical facilities is downright traumatizing. I hope the hospital will own up to the mistakes that were made and offer to work with your organization to remedy the situation and prevent any recurrence.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
plugger
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Re: Duke University Hospital incident
«
Reply #8 on:
January 02, 2010, 08:58:35 AM »
I guess before they can straighten out things like their emergency room, they will have to figure out things like faxes
Larry's_thread
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
cariad
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What's past is prologue
Re: Duke University Hospital incident
«
Reply #9 on:
January 02, 2010, 07:48:24 PM »
Not a very encouraging turn of events. Note to self: do not require emergency medical attention in Durham, North Carolina.
Keep on them, Plugger and colleagues....
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
plugger
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Re: Duke University Hospital incident
«
Reply #10 on:
January 03, 2010, 06:49:12 AM »
Larry's surgery date got moved up, so we are very happy about that. We have to wonder though what is going on with their administration and where are their priorities? - not the ER apparently.
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
plugger
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Re: Duke University Hospital incident
«
Reply #11 on:
January 11, 2010, 05:10:09 PM »
Larry made it through surgery, but I understand he is in the ICU:
http://dialysisethics2.org/forum/index.php?topic=481.15
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
plugger
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Re: Duke University Hospital incident
«
Reply #12 on:
January 12, 2010, 05:05:44 AM »
We did get this update:
"Larry just called. He is fine and feeling better. I received a text message from a family member that he was going to ICU. It appears that he did better than expected and is now in his room. He did not have to go to ICU as previously thought.
Larry wishes to thank all of those who kept him close to their hearts."
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
fc2821
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Re: Duke University Hospital incident
«
Reply #13 on:
January 12, 2010, 11:36:15 AM »
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cariad
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Re: Duke University Hospital incident
«
Reply #14 on:
January 12, 2010, 11:43:22 AM »
Great news, Plugger!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
plugger
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Re: Duke University Hospital incident
«
Reply #15 on:
January 13, 2010, 05:43:56 PM »
Larry continues to recover. I'll add we've decided to post pictures of Larry's arm - a picture is worth a thousand words:
http://dialysisethics2.org/forum/index.php?topic=481.30
Warning: it isn't for the squeamish.
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
rookiegirl
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Re: Duke University Hospital incident
«
Reply #16 on:
January 13, 2010, 07:47:45 PM »
I'm glad Larry is recovering. I don't know much about hemo. Why is his arm swole like that? Is there something underneath his skin?
Any response from Duke on how bad Larry was treated. I started at Duke and was referred to Wake Baptist where I had my transplant.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
plugger
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Re: Duke University Hospital incident
«
Reply #17 on:
January 14, 2010, 05:36:25 PM »
I would have to talk to Larry to make sure I'm not assuming, but I do know his DaVita clinic was using the wrong needles - they were using button-hole needles, when he didn't have a button-hole access. I understand though this messed up his graft, he said the button-hole needles were duller.
I would like to think Duke is a better hospital than what we have seen - maybe if you can get access to a doctor that doesn't run off on you, you might be alright.
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
greco02
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Re: Duke University Hospital incident
«
Reply #18 on:
January 14, 2010, 06:02:10 PM »
One of the links I just looked at mentioned a fax sent to the wrong number. The OCR takes complaints regarding HIPAA /confidentiality concerns. I am proud I work for a Hospital with a very high level of customer service and excellent patient care. I do agree with the comment about the ER. With all the unemployment, and here in San Diego add the problem of being a border town our ER's are full of people with colds, flu's, UTI's, etc etc. The seriously ill have the best chance of being seen quickly if they go to the ER via ambulance.
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plugger
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Re: Duke University Hospital incident
«
Reply #19 on:
January 17, 2010, 06:09:06 PM »
We have let Duke know we haven't been exactly happy with their customer service. But now it does look like their medical staff has come through! I talked to Larry and he is out of the hospital and it looks like he is coming along fine!
http://dialysisethics2.org/forum/index.php?topic=481.30
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
Zog
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Re: Duke University Hospital incident
«
Reply #20 on:
January 26, 2010, 01:03:35 PM »
My wife is stuck over at Duke now. We have interesting stories about Duke's ER, etc. They get a little arrogant over there, but then don't all doctors. We got stuck in the ER for 12 hours one night over there. We heard an interesting story from some old lady who was there because her allergies were acting up. They prescribed Allegra at 3:00 AM for her. She shouldn't have been there clogging up the system. Don't go to their ER at night unless it is in an ambulance. You are better off calling a nurse at DaVita or your doctor most of the time.
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
plugger
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Re: Duke University Hospital incident
«
Reply #21 on:
January 26, 2010, 01:25:19 PM »
I do hope they get their problems straightened out!
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
plugger
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I only look like a sheep - but I ain't
Re: Duke University Hospital incident
«
Reply #22 on:
January 28, 2010, 05:14:34 PM »
CMS and the State of North Carolina pay a visit to Duke University:
http://dialysisethics2.org/forum/index.php?topic=481.30
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Proud member of DialysisEthics since 2000
DE responsible for:
*2000 US Senate hearings
*Verified statistics on "Dialysis Facility Compare"
*Doctors have to review charts before they can be reimbursed
*2000 and 2003 Office of Inspector General (OIG) reports on the conditions in dialysis
*2007 - Members of DialysisEthics worked for certification of hemodialysis
technicians in Colorado - bill passed, renewed in 2012 and 2019
*1999 to present - nonviolent dismissed patients returned to their
clinics or placed in other clinics or hospitals over the years
On my tombstone: He was a good kind of crazy
www.dialysisethics2.org
Zog
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Re: Duke University Hospital incident
«
Reply #23 on:
January 28, 2010, 05:41:20 PM »
Did Dr. Lawson make that fistula for Larry? It took 3 surgeries at Duke to get Jenn's working okay with him. It made us wish we never got her first one ligated after transplant.
Who has been sticking it, Davita Durham West?
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
paris
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Re: Duke University Hospital incident
«
Reply #24 on:
January 28, 2010, 05:48:52 PM »
Unfortunately, Duke is used by many as their only source of medical treatment. It is similar to Wake Medical Center in Raleigh. They care for all the indigent and uninsured. So the ER can be a horrible place to get quick treatment. I had a similar experience - 12 hours wait and my doctor had called ahead. Zog, I am in Raleigh. If there is anything I can do for you, let me know. Be careful of the ice and snow that is coming. Let us know how your wife is doing. I am sorry it has been so hard.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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