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karen547
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« on: November 24, 2009, 11:23:54 AM » |
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I had yet another seizure during treatment! I was really upset and angry and didn't hold back my feelings! I just basically had had enough yesterday and then had a seizure to top it all off! The NP was about ready to send me to the ER, but I put an end to that! I basically said ''why send me to the ER to wait 6 hours to find out i had a seizure when i know that already??? Just call my mom!'' I then just let everything out, which i didnt care about. I should not have had to start dialysis to begin with and now I GET seizures from it! I just want a kidney for goodness sakes!
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Hanify
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« Reply #1 on: November 24, 2009, 01:00:24 PM » |
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Seizures are horrible and scary. Are they taking off too much fliuid??? Ask about setting the machine so it takes off more at the beginning and then less at the end. Can't remember what it's called.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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tubes
Sr. Member
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Gender: 
Posts: 598
Miss you so much Susie. Will always <3 you!
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« Reply #2 on: November 24, 2009, 01:08:44 PM » |
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It's called a Profile.  I'm very sorry to hear about the seizures Karen. I don't know what would cause then as I'v never experienced one myself. I hope it is figured out soon or you get a transplant even sooner. Take care, Robert |
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"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."
1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
- on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
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looneytunes
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« Reply #3 on: November 24, 2009, 01:40:53 PM » |
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Oh Karen..how scary that must be. I hope they figure out what causes them so that something can be done for you.
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"The key to being patient is having something to do in the meantime" AU
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willowtreewren
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« Reply #4 on: November 24, 2009, 01:50:52 PM » |
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 I know this must be awfully upsetting.  Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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pamster42000
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« Reply #5 on: November 24, 2009, 05:04:44 PM » |
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Are you taking any medications to control the seizures? Are your blood values all in good range?
Maybe you should see a Dr....I would be very concerned, seizures are very hard on the body. They could cause enough harm where maybe you won't be able to get a transplant. Don't play games with this...OK!
I can tell by your post you are very angry and upset about being on dialysis. You can't let your emontions take over..you have to understand when you need help. Something is causing the seizures....please go to a Dr. and get tests done.
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« Last Edit: November 24, 2009, 05:30:19 PM by pamster42000 »
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Maker
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« Reply #6 on: November 24, 2009, 06:43:02 PM » |
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So sorry Karen, I have had 2 and they are terrifying! Interestingly, I had them on 2 different occasions when I was in the hospital because of CKD. Both were attributed to electrolyte imbalances from the CKD. I pray you get some answers  |
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- Lori
33 years old
Diagnosed February 2007
Started In-Center Hemo October 2009
Trying to qualify for a living donor transplant
"I can do all things through Christ who strengthens me" Philippians 4:13
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billybags
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« Reply #7 on: November 25, 2009, 03:43:47 AM » |
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Karen, so sorry to hear about that, on top of every thing else, you do not need this. Hope you are feeling better.
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karen547
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« Reply #8 on: November 25, 2009, 04:08:14 AM » |
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I am on Keppra for them. I admit I havent always taken them, but will from now on!
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pamster42000
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« Reply #9 on: November 25, 2009, 06:30:04 AM » |
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dwcrawford
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« Reply #10 on: November 25, 2009, 06:46:02 AM » |
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Your anger, fear and concern are all natural and part of the process. Embrass it and learn from it.
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Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
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marie
Newbie
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Gender: 
Posts: 47
Just living life day by day!
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« Reply #11 on: December 06, 2009, 08:37:11 AM » |
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I know how you feel. I've had 3 seziures while on the machine, and many more at the hospital. They probably wanted you to go to get your labs checked to see if your meds were low. It really sucks.
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-Diagnosed with ESRD mid Sept. of 08 -Started Dialysis mid Sept. of 08 My kidney's failed a month after I gave birth to my beautiful daughter becaused the doctors mis-diagnosed me when I had gallstones which went into my pancreas causing pancreantitis. Now im just waiting to be put on the transplant list I'm very thankful to have a chance to see my lil girl grow up !! |
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