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Des
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« on: November 24, 2009, 06:13:11 AM » |
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Hi,
My left kidney will be removed the 12 Jan in the Donald Gordon Hospital, Johannesburg.(you will find them on the net) I will be in hospital for about a week and "D" will then kick in.
I will have to redo my transplant workup tests 2 weeks after this op. and only then can we apply to government to have authorization for a non-relative transplant My donor will have the rest of her tests done during the same period. This authorization can take anything from 6 weeks to 3 months...
I am so scared....
Please keep me in your prayers.
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« Last Edit: November 24, 2009, 06:14:17 AM by Des »
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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billybags
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« Reply #1 on: November 24, 2009, 07:12:53 AM » |
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Des I will keep you in my thoughts, I hope all will go well for you. Hey you will be having it on my Birthday will certainly think about you, being scared is perfectly normal.
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Hanify
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« Reply #2 on: November 24, 2009, 01:15:30 PM » |
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Oh wow Des. Yes - scary. However it's exciting too and another step on the way!! Thinking of you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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looneytunes
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« Reply #3 on: November 24, 2009, 01:38:19 PM » |
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Des...I can sure understand being scared but what a great step on the road to transplant! I'll keep you in my thoughts and prayers. It's so wonderful you have a donor and bless her for being willing!
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"The key to being patient is having something to do in the meantime" AU
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YLGuy
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« Reply #4 on: November 24, 2009, 03:53:50 PM » |
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Of course I will keep you in my prayers. Do we have a way of knowing how you are doing while you are in the hospital? I don't want to worry for a whole week.
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lizabee
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« Reply #5 on: November 24, 2009, 03:58:04 PM » |
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Thoughts and prayers, I had my right out in September...good luck!
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galvo
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« Reply #6 on: November 24, 2009, 04:08:35 PM » |
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Good luck!
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Galvo
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willowtreewren
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« Reply #7 on: November 24, 2009, 04:11:10 PM » |
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Des,  I really understand being scared. I don't like surgery and I have been through so many. But this will be a good positive step in your whole treatment plan. And when that old kidney comes out, you'll have a nice cozy place ready for your new one! So, think about those lovely days to come, dear, and feel the hugs surrounding you from all of us who care about you.  Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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cariad
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« Reply #8 on: November 24, 2009, 07:16:57 PM » |
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I would be scared, too, Des. I will be thinking of you all throughout, and wishing you the best of luck.
You can do this. You are moving forward and reclaiming your life.
Take care. (flowers, balloons, hugs)
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
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jennyc
Full Member
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Gender: 
Posts: 388
First day of school 08'
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« Reply #9 on: November 24, 2009, 07:18:47 PM » |
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2003 January - acute renal failure
March/April - Started PD
2009 October - PD failing, First fistula put in.
Cadaveric Transplant 27/1/2010
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Des
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« Reply #10 on: November 25, 2009, 06:25:55 AM » |
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Thoughts and prayers, I had my right out in September...good luck!
How long were you in theatre and how long in hospital? Did you have a catheter in your bladder? Did you have a drain in your wound? How big was the wound? Where was the wound? How soon after could you walk? How soon were you allowed back at work and driving? Sorry, but these questions are just the beginning! hehehehe |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Des
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« Reply #11 on: November 25, 2009, 06:28:13 AM » |
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Thankyou all so much for all your prayers and well wishes. I really appreciate it.
I am not so scared for the operation I think I am just scared about he whole "lifechanging" thing.
Ylguy, I haven't got a "plan" yet on how to contact IHD while I am in hospital. I will get someone to post either here or on FB for me. I will let you know.
Thanks again.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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dwcrawford
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« Reply #12 on: November 25, 2009, 06:43:13 AM » |
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Des...Des.. Des....
Just thinking about you and have to know it will all be OK. We will chat on FB before though...Dan
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Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
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galvo
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« Reply #13 on: November 25, 2009, 02:27:02 PM » |
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Wishing you all the very best.
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Galvo
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whiskeyfrank
Newbie
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Posts: 46
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« Reply #14 on: November 27, 2009, 05:15:02 AM » |
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Des
Best of luck , im sure it will go well for you.
You had some questions this may help!!!
I had both out at the same time on the 2nd October. 3 Hours in theatre. 2 drains, removed after 2 days, catheter removed after 2 days. I left hospital after 7 days, Walking (badly) after 5 days. I was driving after 4 weeks. Back at work after 5 weeks, 3 days a week to fit in with dialysis. Walking normally after 14 days. 43 clips removed after 10 days.
The Scar is 24" long and from one side to the other and 1 inch above my bellybutton. But i had BOTH removed and they were massive kidneys to remove so not normal size scar.
Good luck.
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PKD - diagnosed 1986 Fistula added July 2009 Bilateral Nephrectomy Oct 2009 Fistula Failed Oct 2009 HD started Oct 2009 Live donor from mum Jan 4th 2010 mum and me both great Started a blog on my condition from stable now to Living Donor transplant (hopefully) My Blog - http://pkddiary.blogspot.com/ |
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Des
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« Reply #15 on: November 27, 2009, 05:31:37 AM » |
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Thanks.... maybe I shouldn't have asked  |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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whiskeyfrank
Newbie
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Gender:
Posts: 46
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« Reply #16 on: November 27, 2009, 09:16:59 AM » |
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compared to what they told me it was a walk in the park, they said 21 days in hospital (21 days with no sleep then, snorers!) and 8 weeks at home in bed and no driving or work for 3 months. No chance!!! got to earn a living!!
Its not even that i was fit before the op, i wasnt i was really quite ill so im no superhero.
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PKD - diagnosed 1986 Fistula added July 2009 Bilateral Nephrectomy Oct 2009 Fistula Failed Oct 2009 HD started Oct 2009 Live donor from mum Jan 4th 2010 mum and me both great Started a blog on my condition from stable now to Living Donor transplant (hopefully) My Blog - http://pkddiary.blogspot.com/ |
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YLGuy
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« Reply #17 on: January 19, 2010, 08:42:09 PM » |
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Thinking of you Des.
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YLGuy
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« Reply #18 on: January 20, 2010, 08:05:17 AM » |
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Des posted on FB:
Thanx all I came out of the hospital today,have lots of pain and very tired but otherwise iam doning okay will catch up later...
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cariad
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« Reply #19 on: January 20, 2010, 09:33:17 AM » |
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Looking forward to your return to the forum, Des. Home you get lots of rest and some great pain pills.   |
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
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