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Author Topic: Worst night so far on dialysis  (Read 3454 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« on: October 08, 2009, 09:28:08 PM »

Tonight sucked. First stick had bad flow, clotted, and had to be removed. Second stick worked for about 30 seconds and then infiltrated very painfully. I still have my permacath. We connected to that. It was clotted. Needed to add altaplace and sit in the chair an extra 30 minutes. I was basically in tears for the first two hours. I took some xanax and that seemed to kick in at that point. I don't know how much longer i can deal with this crappy fistula. It seems to infiltrate every other time. Sorry for the rant, but I needed to blow off some steam.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Wallyz
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« Reply #1 on: October 08, 2009, 10:17:57 PM »

It's not necessarily the fistula that is crappy.  Ask for the person that teaching sticking at your center, develop a plan with her (it usually is a woman) and them try.
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Jess21
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« Reply #2 on: October 09, 2009, 12:08:18 AM »

 :grouphug; Mikey
Wallyz is right..it may be the techs sticking.  I went to a clinic that didn't know anything about buttonholes...they never had a patient with them.  During that about 6 months, I vary rarely got stuck twice, normally about 4 times to get dialysis working, clotted many a needle, clotted machine twice, ended up at the access center twice.  Went back to my previous center, had absolute clear sailing.  Make sure you inquire about who is sticking you!
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
okarol
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« Reply #3 on: October 09, 2009, 02:03:24 AM »

Awww Mikey, that's awful.
I agree, get a seasoned nurse to try the first time. And take xanax before you go.
Do they recommend aspirin to minimize clotting?
Best wishes  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #4 on: October 09, 2009, 04:31:45 AM »

So sorry to hear it's been so difficult Mikey.  I hope things get better and fast.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: October 09, 2009, 04:52:59 AM »

Never apologize for ranting. Isn't that what we are here for?

If we can't rant here, then where can we???

I understand how frustrating this is.  :grouphug; :grouphug;

Good advice has already been given. I hope that you can get this all sorted out. Will be thinking of you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lizabee
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« Reply #6 on: October 09, 2009, 05:55:33 AM »

Sorry to hear about all the troubles, hopefully things will work better soon
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dwcrawford
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Getting the heck out of town.

« Reply #7 on: October 09, 2009, 06:04:29 AM »

OMG yes, hand pick the nurse or tech that sticks you.  I had same problem until about 3 weeks ago when i got my doctors involved and  they  (we) raised all kinds of hell.  Now it is Viv or D or else nobody.  I feel for you.  That part is hell but amazing how it gets better as soon as  you get someone who knows what they are doing.  Good Luck. 
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
KICKSTART
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In da House.

« Reply #8 on: October 09, 2009, 07:25:02 AM »

Hmm i ve got all this to come , so i feel for you going through it. I hope you can pick someone you trust to put the needles in for you , we dont get that choice !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
okarol
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« Reply #9 on: October 17, 2009, 01:42:47 PM »


How are you doing Mikey?  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Lillupie
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« Reply #10 on: October 21, 2009, 11:43:28 AM »

What? What do you mean you dont have a choice of who sticks you?? THAt is insane?? I dont have a fistula. I have been on hemo, and know people on hemo that they only allow a certain person to stick them. I mean you are the one getting the needles and I think you have a right to choose the person who is there that you feel the most comfortable with. I mean all the techs have different levels of experience.

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #11 on: October 21, 2009, 04:07:21 PM »

Just an update: The fistula is doing much better, thanks. My last three treatments went well with both needles being used and no infiltrations. The nurse even showed me how to she spins the needle if needed. (If the lumen pushes against the wall of the vessel and causes the pressure to go up, she solves the problem by spinning the needle.)
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
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