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Author Topic: Hi from India  (Read 3927 times)
kamalshah20
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« on: September 26, 2009, 06:36:00 PM »
Hi all,

I am a 34 year old from India. I was diagnosed with kidney disease (Hemolytic Uremic Syndrome) in July 1997. I was on hemo for about a year and a half, had a failed transplant and was on PD for the next six years.

I was caught on a beach during the December 2004 tsunami, somehow managed to save myself after which I had a series of tunnel and exit site infections and peritonitis and had to stop PD.

I am now on nocturnal home hemo, six nights a week, 7 hours each night. I use a Fresenius 4008S.

I work full time on developing applications for the iPhone and the Mac.

Thanks
Kamal
http://kamaldshah.com
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Kamal
http://kamaldshah.com
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1 on: September 26, 2009, 06:38:41 PM »
Wow, what a lot of things you've had to deal with!  Welcome to ihd.  Look forward to your input.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Meinuk
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« Reply #2 on: September 26, 2009, 06:45:24 PM »
Kamal,

It is wonderful to see you on IHD!  Your blog is a great read!

Best,

Anna Bennett
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: September 26, 2009, 06:47:48 PM »
Hi, Kamal,
Welcome to IHD!

I visited your Web site as I have been a Mac user since February 1984 when they first came out!  :2thumbsup;

Enjoyed your blog.

There is lots of shared wisdom here on IHD. Hope to hear more from you!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Razman
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« Reply #4 on: September 26, 2009, 06:58:21 PM »
  Thanks for joining.  You may be around the world but dialysis and kidney disease immediately brings you into the family.   Please stay in touch. 
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Zach
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"Still crazy after all these years."
« Reply #5 on: September 26, 2009, 08:52:00 PM »
It's great that you have joined our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kidneydoc
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« Reply #6 on: September 26, 2009, 09:56:23 PM »
Good show welcome Kamal we met on yourblog before. Imagine running into you here :)
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All Kidney News

Information on kidney disease in clear easy to understand language. Topics covered include:
Chronic Kidney Disease
Kidney stones
Herbal medicine and the kidney
Dialysis Info
Kidney News
Romona
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« Reply #7 on: September 26, 2009, 10:02:58 PM »
 :welcomesign;
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Jean
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« Reply #8 on: September 26, 2009, 11:57:58 PM »
Welcome Kamal, to IHD, we look forward to hearing more from you.
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One day at a time, thats all I can do.
willieandwinnie
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« Reply #9 on: September 27, 2009, 04:55:53 AM »
 :welcomesign; Kamal. So glad you joined us and we hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #10 on: September 27, 2009, 05:07:02 AM »
 :welcomesign;  glad you joined us here.  I spent about 5 months in India in 1975 and am only sorry that my immunusuppression since transplant keeps me nervous about returning.  I loved traveling in Southeast Asia.  I too find your blog interesting and I'm quite sure that you are so far our only member who got a PD infection from a tsunami.  What a scary time that must have been.  Hope to see you posting here regularly.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #11 on: September 27, 2009, 05:19:58 AM »
Welcome Kamal and "Hungi" (The only word I know in Punjabi)   ;D

I read your Tsunami story.  How scary and how blessed you are to be here.  I'm surprised that you didn't get an immediate infection.  After your morning on the beach when did you get to do your next exchange?  Weren't your supplies contaminated?  Fascinating story.

Welcome to IHD           :welcomesign;

Rerun, Moderator
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napala turki
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Have to plan for living
« Reply #12 on: September 27, 2009, 06:21:22 AM »
Assallamu'alaikom bro Kamal,

Welcome to IHD.... you have a great website....  :clap;

Regards & Wassallam.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #13 on: September 27, 2009, 09:00:26 AM »
Welcome to our community, Kamal!  Tum kase ho? (my little piece in HIndi)  So glad that you found us.  This is great place for informtion and support.  Everyone was talking about your blog, so I had to go and take a look.  Interesting!  I hope you realise that you now have a new international family :grouphug; caring and sharing.  Looking forward to hearing much more from you.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kamalshah20
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« Reply #14 on: September 27, 2009, 08:15:38 PM »
Wow! so many responses! I am so overwhelmed.

Thanks so much all of you for welcoming me here.

It is actually my birthday today. I couldn't have asked for a better gift!

Thanks again!

Kamal

http://kamaldshah.com
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Kamal
http://kamaldshah.com
kamalshah20
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« Reply #15 on: September 28, 2009, 04:50:41 AM »
Hi Rerun,

I did my next exchange that evening. The bags were all sealed. So, I assumed they would not be contaminated.

Again, I am not really sure that the water really caused the infection because the infection started a few months after the tsunami.

Thanks
Kamal
http://kamaldshah.com
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Kamal
http://kamaldshah.com
monrein
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« Reply #16 on: September 28, 2009, 04:56:22 AM »
  kamalshah,    जन्मदिन मुबारक हो (janmadina mubārak ho)
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Krisna
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« Reply #17 on: January 01, 2010, 10:35:55 PM »
 :welcomesign; Kamal!  My name is Krisna.  (My dad had friends who were Hindu and named their daughter that and he thought it was pretty so he named me that.  I like it!)  In November it was 30 yrs since my kidneys failed for reasons unknown.  I wish you luck in finding another kidney that will work for a long, long time!
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
kamalshah20
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« Reply #18 on: January 02, 2010, 08:16:03 PM »
Thanks so much Monrein! I just saw this message now. Sorry for the late reply.

Hi Krisna. What a lovely name!

Thanks
Kamal
http://kamaldshah.com
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Kamal
http://kamaldshah.com
rocker
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« Reply #19 on: January 02, 2010, 08:30:24 PM »
Ha, well, I have to say "Welcome from a fellow developer."

As for what I do, well, you know those meetings where everyone introduces themselves and says what they do?  I always used to say "...and I program in any language for which I can get a compiler and a reference sheet."   :)
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kamalshah20
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« Reply #20 on: January 03, 2010, 05:31:18 PM »
Hi Rocker!

Thanks!
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Kamal
http://kamaldshah.com
kellyt
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« Reply #21 on: June 05, 2010, 03:02:49 PM »
Somehow I missed your introduction.  Welcome!!!   :waving;  I hope you're doing well.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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