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Author Topic: I will be leaving town  (Read 12806 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #25 on: September 27, 2009, 11:31:11 AM »

Yes, we will take a few days to visit the UK before I head back.  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kristina
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« Reply #26 on: September 27, 2009, 02:09:46 PM »

Are you going to stay in London?
If so, would you like to meet?
Kind regards from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27 on: September 28, 2009, 08:57:30 AM »

Got to the airport at 5:40 am only to find out our new flight is cancelled. They rebooked us COACH thru Chicago, then Paris, with standby for Business class. I wonder if we'll ever get on the plane. We are now scheduled to leave at 11:00 am but its delayed too. ARRRGGHH!  :banghead;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #28 on: September 28, 2009, 09:03:47 AM »

To bad you can't switch carriers, but also hope they refund your money quickly for the price difference between coach and busieness (Is that the new word for 1st class?). I'd pull out the medical necessity card if they put you 2 in different seats ;D :2thumbsup; To bad you can't use the diabetic card though, but luckily you don't have that one.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
lola
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I can fly!!!

« Reply #29 on: September 28, 2009, 09:05:36 AM »

OMG!!!!!!!!!!!!!!!!!!! :Kit n Stik; :Kit n Stik; :Kit n Stik;
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monrein
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Might as well smile

« Reply #30 on: September 28, 2009, 02:33:45 PM »

That is no way for an airline to start anyone's adventure...especially not Jenna's...I mean, she's been waiting a long time already to get adventuring.

Next post better be about the wonderful flight you're having with VIP treatment and all stops pulled out.   :cuddle; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Slywalker
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« Reply #31 on: September 28, 2009, 05:23:37 PM »

How wonderful for you and Jenna.  I am so happy that she is able to take this great journey.

Have fun.

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glitter
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« Reply #32 on: September 28, 2009, 09:01:17 PM »

The trip sounds marvelous, )airlines sound like idoits- it ought to be illegal. Take lots of pictures!!!!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Mimi
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For any who do not like me I use - prayer.

« Reply #33 on: September 28, 2009, 10:08:07 PM »

Oh lucky, lucky you two.  Have a wonderful time.

Happy flying!!!!
Bye, bye!
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: September 29, 2009, 03:03:57 PM »

 :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
We are in Paris! Jet lagged but happy to be here. I cannot remember anything but will check back soon!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #35 on: October 01, 2009, 06:35:52 AM »

 :cheer: :cheer: :cheer: :cheer:

Yipppeeeeeee!
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
RichardMEL
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« Reply #36 on: October 01, 2009, 08:18:01 AM »

The joys of frequent flyer mileage awards.

Glad you FINALLY got there Karol. You've been victims of the horrible cutbacks all carriers are making - thus making less options for everyone when things go awry.

Anyway hope you enjoyed your flight across the pond and definitely hope you got into Business. If not they owe you those miles back.

Anyway you're there and that's what counts!!! Have several lattes and French pastries for me!!! :)

How wonderful!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #37 on: October 05, 2009, 08:13:06 AM »

Hello or should I say Bonjour!
Jenna and I are still in Paris. Today we finally got her signed up for French language classes and some cooking workshops.
We have been all over with our friend who lives here, she's been great. We have had some fabulous food at cafes and restaurants - it's a good thing we are walking hours and hours per day or I would weigh 900 lbs.
I have limited time on the computer as I am sharing it with Jenna, but I have uploaded some photos, if you want to take a look click here http://www.flickr.com/photos/karolfranks/sets/72157622368800561/
Last night we went to Notre Dame. We lit candles for Goofynina, JBeany and our IHD family. We aren't Catholic but figured it couldn't hurt!
We still hope to make it over to London but there's been so much here to keep us busy we haven't made a plan.
Today it rained which was nice for a change. I better go have coffee now or I'll need a nap.
Best wishes to you all!
 :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kristina
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« Reply #38 on: October 05, 2009, 11:06:46 AM »

Your photos of Paris are fantastic! They give the feeling of Paris as it really is.

I love the wonderful decorative ironwork on balconies etc., in Paris, they are so beautiful and many of them are in cast iron!
At Versailles there is one of the most wonderful decorative Iron Gates by Louis Fordrin at the "potager du roi"
and there is a (very rare) Church in Paris, constructed in Cast Iron (L'Eglise Saint-Eugene) in the Rue du Conservatoire.

Have you walked to the Musee d'Orsay over the Bridge? You may notice many little padlocks
with different initials written on them. They are put there by couples, as a sign of their relationship.
A very sweet idea, almost a little like "La Boheme".
The Musee d'Orsay itself has one of the most beautiful Restaurants in Paris, in the style of "La Belle Epoque", very impressive
and it has one of the great art collections. The Rodin Museum also exhibits now works by Camille Claudel.

One of my favourite pictures is the one of Jenna and yourself with the Eiffel Tower on the left in the background,
you both look very relaxed and happy.
My other favourite is Jenna with her very "Parisienne" hat and Jenna with "Alfred".

Best wishes from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
thegrammalady
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« Reply #39 on: October 05, 2009, 11:36:16 AM »

i have been following all your facebook pictures. makes me feel like i'm there. glad you're having such a fantastic time.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
lizabee
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« Reply #40 on: October 05, 2009, 05:24:58 PM »

Sounds like a great trip, enjoy!
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Poppylicious
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« Reply #41 on: October 10, 2009, 01:41:11 AM »

Your photographs of Paris are divine and making me so desperate to return there!  It looks like you're having an amazing time soaking up the culture and atmosphere of everyday Parisian life.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
rose1999
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« Reply #42 on: October 10, 2009, 08:29:59 AM »

Thanks for sharing these photos Karol, it is SO good to see you and Jenna having such a wonderful and well deserved time together.  Much love to both of you  :cuddle;  :cuddle;
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Wattle
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« Reply #43 on: October 11, 2009, 11:55:25 PM »

 :flower;  Enjoy every last minute Okarol.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #44 on: October 11, 2009, 11:58:22 PM »


Thanks.
Jenna seems comfortable, even though she's a bit nervous about her intensive French class that starts today.
I need a few more croissants and coffees before I leave!
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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