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Author Topic: Twirl, where are you?  (Read 9247 times)
willowtreewren
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My two beautifull granddaughters

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« on: September 19, 2009, 07:46:23 AM »
Hey, Twirl,

I tried to PM you, but your box is full! I'm worried about you. Is everything okay? Do you need anything?

Sending hugs   :grouphug; :grouphug; and good wishes.

 :flower; :flower;

Aleta




TOPIC MOVED to appropriate section - Bajanne, Moderator
« Last Edit: September 22, 2009, 08:15:20 AM by Bajanne » Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.
« Reply #1 on: September 19, 2009, 07:53:40 AM »
Yea, Twirl.  Haven't seen you online in a while.  Are you ok?  Did you eat some bad mountain oysters?
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
kimcanada
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« Reply #2 on: September 19, 2009, 08:10:54 AM »
Oh Twirl


We haven't gabbed in ages, you getting shy now?  :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: September 19, 2009, 11:24:28 AM »
twirlie girl, your sunny disposition is missed!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #4 on: September 19, 2009, 11:43:02 AM »
Twirl??

                                 :welcomesign;
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kitkatz
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« Reply #5 on: September 19, 2009, 11:52:30 AM »
OKay Twirlie girl. Come back to us.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #6 on: September 19, 2009, 01:42:35 PM »
This is odd of her. Anyone email her, texted, or call her?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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« Reply #7 on: September 19, 2009, 05:34:56 PM »
A little birdie says she is out having some fun.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willieandwinnie
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« Reply #8 on: September 19, 2009, 06:34:59 PM »
Come out where ever yor are twirl.  :waving;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Rerun
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Going through life tied to a chair!
« Reply #9 on: September 19, 2009, 08:31:02 PM »
Quote from: kitkatz on September 19, 2009, 05:34:56 PM
A little birdie says she is out having some fun.

                   :yahoo;  How come you didn't invite us??
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pelagia
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« Reply #10 on: September 19, 2009, 08:43:30 PM »
And worst of all is that her box is full (again) and I can't send her a message!  :waiting;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Ang
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« Reply #11 on: September 20, 2009, 03:47:05 PM »
i  have  had  contact  with  twirl,


she  is  having  a time  out
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live  life  to  the  full  and you won't  die  wondering
willowtreewren
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My two beautifull granddaughters

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« Reply #12 on: September 20, 2009, 04:00:37 PM »
Thanks, Ang.

It is hard not to worry when someone kind of disappears.

Twirl, we are thinking of you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #13 on: September 20, 2009, 04:47:06 PM »
Thanks Ang for letting us know.   We all need to take a time out now and then.   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MIbarra
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Stopping to smell the bluebonnets
« Reply #14 on: September 20, 2009, 05:06:24 PM »
Come back and share your fun Twirl!
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Cadaver transplant April 29, 2007
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #15 on: September 20, 2009, 05:12:18 PM »
 :cuddle; Take the time you need twirl... just don't forget who loves you...  :-*
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #16 on: September 20, 2009, 11:47:33 PM »
I have been instructed from his royal highness, King Leon, to pass royal love to Twirl.

The king has spoken!
Logged
06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Jean
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« Reply #17 on: September 21, 2009, 12:06:33 AM »
Good for you Twirl, enjoy yourself.  :thumbup;
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One day at a time, thats all I can do.
dwcrawford
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Getting the heck out of town.
« Reply #18 on: September 21, 2009, 05:59:47 AM »
I have one of those sweet and loving messages for you too Twirl.

GET YOUR BUTT BACK HERE!  We got fish to fry.  (no idea what that means)
Logged
Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
twirl
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« Reply #19 on: September 21, 2009, 03:52:04 PM »
I am still here in Conroe, Texas -- down the street from the Woodlands
I am just in a mood -- I can not explain it --
three patients I know have died at dailysis -
Heather only turned 30 last April --
she just had a kidney and pancreas transplant and a few months later her heart stopped -
another one died Friday right after I left -
the other one died a few weeks ago
thanks for all you thoughts
they mean tons to me
cheryl
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monrein
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Might as well smile
« Reply #20 on: September 21, 2009, 04:03:36 PM »
It's always so hard to lose people and it's so close to us personally.  Your "mood" sounds totally understandable.
Glad to see you back here at any rate and I send you a big hug.   :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #21 on: September 21, 2009, 04:05:04 PM »
Oh, goodness. That is such a downer.  :grouphug; :grouphug;

Just keep in mind that we luv ya here. Take care of yourself, Twirly girl.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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Posts: 9219


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« Reply #22 on: September 21, 2009, 04:37:47 PM »
 :waving; Twirl

Sorry to hear about what has happened, cheer up soon.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kimcanada
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Posts: 2802


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« Reply #23 on: September 21, 2009, 04:44:04 PM »
Twirl

I know just what you are feeling;  last winter in my unit 4 people passed in a matter of weeks.

It was so hard, it gets you down, but I have faith in you that you won't be down for long, plus we will miss you to much.
Thinking of you Fwirl

Fim  :cuddle;
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MIbarra
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Stopping to smell the bluebonnets
« Reply #24 on: September 21, 2009, 05:24:00 PM »
 :cuddle; Hugs, Twirl!
Logged
Cadaver transplant April 29, 2007
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