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Author Topic: Dialysis is not as bad as....  (Read 34614 times)
kitkatz
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« on: September 15, 2009, 10:32:02 PM »
I borrowed this from Okarol in an earlier thread....

Going before a firing squad
Getting kicked in the nuts 3 times a week
Being chased by blood sucking beasts through the gates of hell
Losing your entire family to the plague
Getting swallowed by a whale



Now add your own...
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Wallyz
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« Reply #1 on: September 15, 2009, 10:42:37 PM »
Running a cheese grater over your elbow.
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Des
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« Reply #2 on: September 15, 2009, 11:04:11 PM »
slamming your finger in a drawer...... so that the nail later falls off
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kitkatz
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« Reply #3 on: September 15, 2009, 11:08:11 PM »
shark bite
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #4 on: September 15, 2009, 11:23:59 PM »
2 sharks circling you.
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One day at a time, thats all I can do.
Wattle
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« Reply #5 on: September 15, 2009, 11:42:03 PM »
Dialysis is not as bad as....

NOT doing dialysis.   8)
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
iketchum
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« Reply #6 on: September 16, 2009, 05:20:28 AM »
Losing your legs to diabetes.
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willowtreewren
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My two beautifull granddaughters

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« Reply #7 on: September 16, 2009, 05:34:31 AM »
Quote
Dialysis is not as bad as....

NOT doing dialysis.   8)

You can say that again (and again, and again)!!!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
dwcrawford
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Getting the heck out of town.
« Reply #8 on: September 16, 2009, 05:59:46 AM »
aging....

and then again there is aging while on dialysis so...

But then again, dialysis is simply a major nuisance.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
girliekick
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« Reply #9 on: September 18, 2009, 10:12:42 AM »
Dial-ysis Vs Dial-up  (J/K)
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-Christmas '03 get news of esrd
-June '08 start hemo
-Thanksgiving '08 pd surg
-Feb '09 Stop hemo and manual exchanges
... start cycler
Setp 3 '09 On UNOS list (27th b day)
Dec 09 peritonitis
dwcrawford
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Getting the heck out of town.
« Reply #10 on: September 18, 2009, 02:25:45 PM »
Dialysis is lots of fun.  But it is not nearly as much fun as having a root canal or a colonoscopy.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: September 18, 2009, 02:54:41 PM »
Dialysis is not as bad as ...
the months before you knew what was happening,
the crappy feeling,
zero energy,
shortness of breath.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Zach
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"Still crazy after all these years."
« Reply #12 on: September 18, 2009, 08:00:52 PM »
... a poke in the eye with a sharp stick!   :o
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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Going through life tied to a chair!
« Reply #13 on: September 18, 2009, 08:06:22 PM »
Dialysis is not as bad as having your toe nails pulled out.
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mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #14 on: September 18, 2009, 08:51:16 PM »
Dialysis is not as bad as a radical nephrectomy
Dialysis is not as bad as kidney cancer
Dialysis is not as bad as the alternative...
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
jpearce
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« Reply #15 on: September 19, 2009, 07:24:49 AM »
2 bone marrow test
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diagnosed lupus - June 2007
Lupus nephritis resulting in dialysis- Jan 2008
On the waiting list for transplant May 2009
kimcanada
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« Reply #16 on: September 19, 2009, 08:13:05 AM »
Quote from: Zach on September 18, 2009, 08:00:52 PM
... a poke in the eye with a sharp stick!   :o
:rofl;

Thats what I was going to say!!
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dwcrawford
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Getting the heck out of town.
« Reply #17 on: September 19, 2009, 08:26:06 AM »
Go ahead and poke me in the eye.  Just get it over with!
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
monrein
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Might as well smile
« Reply #18 on: September 19, 2009, 09:26:50 AM »
...as other types of organ failure that have no life sustaining technologies.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Des
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« Reply #19 on: September 21, 2009, 06:45:49 AM »
Quote from: dwcrawford on September 19, 2009, 08:26:06 AM
Go ahead and poke me in the eye.  Just get it over with!

I am with you.... just poke me in the eye.... at least its only once?
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Jessmomto3
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Logan's mom!
« Reply #20 on: September 22, 2009, 01:04:09 PM »
Quote from: monrein on September 19, 2009, 09:26:50 AM
...as other types of organ failure that have no life sustaining technologies.


such a good thing to remember! 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
pamster42000
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« Reply #21 on: September 22, 2009, 06:28:40 PM »
not having the option to recieve dialysis.
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dwcrawford
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Getting the heck out of town.
« Reply #22 on: September 22, 2009, 06:39:06 PM »
as we imagine it will be, before we start dialysis.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
RichardMEL
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« Reply #23 on: September 22, 2009, 07:26:01 PM »
I've been poked in the eye - with a very large needle.

I was 7 years old. Imagine the doc telling you to "sit very very still and try not to blink" as this bloody big needle comes closer and closer and closer and.....

yep, dialysis is better than that!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Stoday
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« Reply #24 on: September 23, 2009, 06:37:11 PM »
I don't yet know how bad dialysis will be but I'm sure it won't be as bad as haveing a TV camera stuffed up my jacksie.   :sir ken;
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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