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I Hate Dialysis Message Board
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Dialysis: Spouses and Caregivers
Feeling Positive, Thank You
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Topic: Feeling Positive, Thank You (Read 2916 times)
Poppylicious
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Feeling Positive, Thank You
«
on:
September 09, 2009, 08:54:00 AM »
I wasn't sure where to post this but as it's the section I've been browsing through most it seemed the sensible place!
I've spent much of this afternoon just browsing, and I have laughed lots, cried more, and learnt so much more than I have in the last few months from anywhere else. In my head I've already cleared out the only inbuilt cupboard in the house ready for home dialysis supplies, plus I've already (mentally!) disposed of my computer (it's ok, Blokey has his own and I have a laptop - we're nerdy geeks!) to make way for a little tellybox, and a fabulous chair (and all the medical bits, obviously) in what is currently The Office but may soon become The Renal Unit.
I've realised that my Blokey isn't the only kidney patient who doesn't want to join this forum (I mentioned it last night and he changed the subject), nor is he the only one who can't come to terms with it. It's ok for him to feel shattered when he gets in from work and it's ok for me to want my own space and Me-Time. I've also realised that it's fine for me to be mad and angry about the whole situation, and mad and angry at other people when they fail to realise the enormity of it all (but that's another thread!). And even mad and angry at him and his attitude!
Tonight I'm looking forward to giving my Blokey a massive hug, just because I don't do it enough ... but that won't be until he gets home from dialysis at 11pm.
So, thank you. I'm looking forward to ranting, raving and laughing here. And learning heaps more! I now know that if I'm feeling low this is the place I should visit, even if I don't post often (I'm shy) ... just reading what other folk have to say gives me a good positive outlook and some strength. You're all amazing, you know?!
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
paul.karen
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Re: Feeling Positive, Thank You
«
Reply #1 on:
September 09, 2009, 09:00:37 AM »
Welcome to your new second home.
Glad you came out to talk and play...
This site did WONDERS for me and got me totally out of my denial stage.
Ps. I hate dialysis
But like this site
P&K
Logged
Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
monrein
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Might as well smile
Re: Feeling Positive, Thank You
«
Reply #2 on:
September 09, 2009, 10:59:18 AM »
You sound like you've settled right in nicely here and you won't be sorry. Your blokey might get sick of hearing about your new friends who aren't avoiding anything but hey he'll get used to us.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
billybags
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Re: Feeling Positive, Thank You
«
Reply #3 on:
September 09, 2009, 11:39:29 AM »
Hi Poppylicious I love your picture, did you draw this your self?
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willowtreewren
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My two beautifull granddaughters
Re: Feeling Positive, Thank You
«
Reply #4 on:
September 09, 2009, 01:01:37 PM »
Quote
You're all amazing, you know?!
Poppy, you are one of us now, so you are amazing, too!
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
thegrammalady
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Re: Feeling Positive, Thank You
«
Reply #5 on:
September 09, 2009, 01:34:37 PM »
i love your positive attitude.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
paris
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Re: Feeling Positive, Thank You
«
Reply #6 on:
September 09, 2009, 02:40:46 PM »
You put into words, what many of us feel - no matter if patient or caregiver. I think you fit right in with this group!
We all need a safe place to vent, scream and cry and luckily there are many here who will listen.
I like your writing style.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jean
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Re: Feeling Positive, Thank You
«
Reply #7 on:
September 09, 2009, 07:26:59 PM »
Atta Girl, Poppy, now you are on the right track. I am glad for you.
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One day at a time, thats all I can do.
Des
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Re: Feeling Positive, Thank You
«
Reply #8 on:
September 10, 2009, 07:15:41 AM »
We loves you too....
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Poppylicious
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Re: Feeling Positive, Thank You
«
Reply #9 on:
September 11, 2009, 06:34:25 AM »
Thanks guys! I've been feeling happier all week about the situation, but it helps that Blokey has been quite happy this week too.
Tomorrow we're having my Mother-in-Law, Brother-in-Law and his girlfriend over for a BBQ and we'll be telling them the bad news that the doctors have all but given up throwing new treatment in Blokey's direction, and dialysis will now be for life (transplant pending). It may result in an unhappy posting at some point over the weekend as my MiL is a very negative woman ... Tsk!
Quote from: billybags on September 09, 2009, 11:39:29 AM
Hi Poppylicious I love your picture, did you draw this your self?
No, I'm afraid I'm not that artistic billybags. My brother drew it and I have 'borrowed' it. I'm not sure it's supposed to be me but it looks like me (in a very vague and odd way), so ... !
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
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