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Author Topic: Not goodbye, just au revoir  (Read 7732 times)
rose1999
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« on: August 24, 2009, 11:52:32 PM »
I'd just like to say a big thank you to everyone who has supported me (on here and in PMs) throughout Dad's illness, not just these past few weeks since he passed away, but over the last 2+ years.  You are truly wonderful, caring people. Although I have never met any of you I really feel that you are good friends of mine and I have shared things with you that I could not share with anyone else.

I'm not leaving you (I couldn't just walk away) but I need to take some time out, we have the funeral today and then I have a lot of paperwork to cope with (as you can imagine) as Mum is not really emotionally up to coping with it all. I also want to take her away for a few trips, just gentle quiet times together where we can relax and restore our batteries.  So please don't worry if I don't post so much for a while, I will still check in and see how you are all doing and I will post when I can.  I care about you all and I don't want to lose touch, I'm just having a breather (hope that means the same in the USA etc as the UK!!).

I will be back soon, I couldn't stay away long, but I just didn't want any of you worrying that something had happened to me if I disappear for a little while (look how concerned we all are about David13) .  Maybe I'm flattering myself to think you'd notice  ;) but I know Karol always worries about all of us (bless you for that Karol).

My love and prayers are with you all,
see you again soon
Rose xxxx  :grouphug;
« Last Edit: August 24, 2009, 11:54:17 PM by rose1999 » Logged
kitkatz
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« Reply #1 on: August 25, 2009, 05:12:11 AM »
Rose, take your time and come back when you can. You have dealt with lot over the past two years. Good luck and god speed,
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
willieandwinnie
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« Reply #2 on: August 25, 2009, 05:42:30 AM »
 :cuddle; Rose, we will be here waiting. Hope you and your Mom get some much deserved rest.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #3 on: August 25, 2009, 06:09:15 AM »
 :grouphug; :grouphug; :grouphug; :grouphug;
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Darthvadar
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« Reply #4 on: August 25, 2009, 06:12:29 AM »
Rose...

I look forward to your return....

I hope today goes well, and I'll be thinking of you....

Enjoy your little breaks, and say 'Hi' to your mum for me....

May God bless and protect you...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
monrein
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« Reply #5 on: August 25, 2009, 08:30:04 AM »
All the best to you Rose and of course to your Mum.  Enjoy your time together and relax to the max.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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« Reply #6 on: August 25, 2009, 08:41:58 AM »

Sweet Rose, you're so thoughtful - I would worry - you know me well!
We're with you always.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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paul.karen
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« Reply #7 on: August 25, 2009, 08:45:28 AM »
 :thx; to you to for all you have done and shared with us.
Until we chat again i hope you and your mother can find the closure and rest you are both well due. 
:waving; Till we meet up again Rose.
 :cuddle;
P&K
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Curiosity killed the cat
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dwcrawford
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« Reply #8 on: August 25, 2009, 09:05:08 AM »
Rose This is so thoughtful of you to remember to say au revoir during you difficult time.  I hope you come back rested, refreshed and anew. 
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
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« Reply #9 on: August 25, 2009, 10:16:51 AM »
Rose, its very easy to be supportive to you, take your time, do what you have to do, and know we will be here :)
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« Reply #10 on: August 25, 2009, 01:24:13 PM »
Not to make you feel guilty...but, we will miss you.  However, you NEED this break at this time.  Relax, regroup, refresh, and spend some quality time with your mom.  We'll see you when you get back.
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« Reply #11 on: August 25, 2009, 01:40:44 PM »
I'll be thinking of you, rose as you navigate this period of your life.

 :flower; :flower;
 :cuddle;

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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« Reply #12 on: August 25, 2009, 03:14:25 PM »
Rose, thanks for letting us know.  I hope you and your Mother get much needed rest.

                                     :flower;
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thegrammalady
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« Reply #13 on: August 25, 2009, 03:24:46 PM »
thanks for letting us know, yes, we would have noticed if you were gone. enjoy your travels and the time spent with your mother. take all the time you need, we'll be here when you get back.
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« Reply #14 on: August 25, 2009, 09:07:51 PM »
Rose, take as much time as you need. Getting away and relaxing wil be good for the both of you.

Enjoy your time away.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
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Guide Dog by end of July 2012
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Lifes Adventures -  Priceless

No two day's are the same, are they?
Jean
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« Reply #15 on: August 25, 2009, 11:37:37 PM »
How sweet of you to let us know Rose. Take Mum and have a wonderful R & R . We will talk to you when you come back to say hi.
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One day at a time, thats all I can do.
Romona
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« Reply #16 on: August 26, 2009, 01:21:58 PM »
 :grouphug;
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Epofriend
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This is what happens in Vegas!
« Reply #17 on: August 26, 2009, 03:08:04 PM »
Rose, Happy trails. It has been such a sad time for you. I hope the breather does you and your Mom a lot of good. You will be missed, looking forward to your return and reading stories of your adventures.

 :grouphug;
Rolando and Alene
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MIbarra
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« Reply #18 on: August 26, 2009, 03:39:13 PM »
 :cuddle;
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Cadaver transplant April 29, 2007
paris
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« Reply #19 on: August 26, 2009, 05:44:47 PM »
Our lovely Rose,  I will keep you and your Mum in my prayers as you go through this time of healing.  You will be missed, but we will be here waiting and anxious to hear all that you have been doing.  We love you dearly   :cuddle;
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This will be me...... Next spring.... I earned it.
« Reply #20 on: August 26, 2009, 09:15:54 PM »
Nice of you to share your story.....   Good luck to you ....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
pelagia
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« Reply #21 on: August 27, 2009, 04:42:06 AM »
I hope you and your mum will find the rest you dearly need.  Don't forget to get some sunshine, breathe deeply whenever possible and find other ways to let some of the weight off your shoulders.   :guitar:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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« Reply #22 on: August 27, 2009, 05:20:08 PM »
You have always been a very special family member. :grouphug;  We totally understand that you need this breather. So just do what you have to do.  And then please come back :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paddbear0000
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« Reply #23 on: August 29, 2009, 06:19:23 AM »
I'm so sorry to hear of your father's passing Rose. I know I haven't been around much lately, but don't worry, you'll be missed! And I'll be keeping you and your Mom in my thoughts and prayers.  :cuddle;
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rose1999
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« Reply #24 on: August 30, 2009, 10:17:32 AM »
Just called by to see how my IHD family are and to say THANK YOU so very much for all the support and good wishes, I'm still feeling fragile and still snowed under with 'red tape', letters and forms to sort but I do think of you all. Mum is doing OK, obviously distraught but being very brave bless her.   See you again soon. Rose xxxxx :grouphug;
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