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tyefly
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« on: August 21, 2009, 08:48:44 PM » |
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Ok..... I feel like I have just roofed a house or hiked 10 miles or something..... just about everyday my body feels really bad....its hurts all over... like my muscles have been over used..... that is not the case.... my body feels like I have the flu with no fever.... every inch hurts... even my toes... I have noticed this for several weeks now.... Are these the signs of to many toxins..... or is this just old age stuff....
Sometimes when I really need to get things done I will take a couple of saved pain pills and then I feel really good.... but I cant take them everyday........ right..........
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Logged
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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Jean
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« Reply #1 on: August 21, 2009, 11:31:58 PM » |
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Wow, I wish I could help you with that. But, for several weeks? Might want to call your Dr.
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One day at a time, thats all I can do.
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Wallyz
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« Reply #2 on: August 21, 2009, 11:49:26 PM » |
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It could be a sign of under dialysis, or it could be a sign you are taking off too much water. Try to raise your dry weight and run for an extra 1/2 hour each session.
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Logged
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KICKSTART
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« Reply #3 on: August 22, 2009, 07:56:24 AM » |
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Get your Phosphorus checked !!!! every one of those symptoms is a sign of high phos !  |
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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tyefly
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« Reply #4 on: August 22, 2009, 08:27:38 AM » |
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I am not on dialysis yet...... my GFR is 11 and I my fistula is only 5 weeks old..... last blood test showed phos at 5.1.... going to starting to eat more tums..... I do take bumex ( diuretic ) and I am still urinating pretty good..... I cant sleep well... I was up untill 2am last night and now up at 6am....
So if this is what phosphorus can make my body feel like I am not likeing this... . small headache all the time, and my body feels like someone beat me up......I am going to start eating more tums and I guess I better visit the food list and really start a better diet of low phos foods....... see if this helps....
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Logged
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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KICKSTART
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« Reply #5 on: August 22, 2009, 10:53:02 AM » |
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Yeah ive just had all the symptoms , you ache all over , feel like you have been digging a field over ! Deffo high phos . |
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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Restorer
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« Reply #6 on: August 23, 2009, 08:37:15 PM » |
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I felt like that in the couple weeks before I had to be admitted for emergency dialysis, especially the muscle soreness and joint pain.
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- Matt - wasabiflux.org- Dialysis Calculators| 3/2007 | Kidney failure diagnosed | | 5/2010 | In-center hemodialysis | | 8/2008 | Peritoneal catheter placed | | 1/2012 | Upper arm fistula created | | 9/2008 | Peritoneal catheter replaced | | 3/2012 | Started using fistula | | 9/2008 | Began CAPD | | 4/2012 | Buttonholes created | | 3/2009 | Switched to CCPD w/ Newton IQ cycler | | 4/2012 | HD catheter removed | | 7/2009 | Switched to Liberty cycler | | 4/2018 | Transplanted at UCLA! |
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tyefly
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« Reply #7 on: August 23, 2009, 10:23:27 PM » |
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Guess I'am getting closer to do dialysis...... I was really hoping to get a transplant first...... just listening to Kickstart.... makes me think twice....
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Logged
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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KICKSTART
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« Reply #8 on: August 24, 2009, 02:32:04 AM » |
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Try and adjust your diet , i did and my symptoms seem to have gone for now (are you also getting itchy ? ) |
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Logged
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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tyefly
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« Reply #9 on: August 24, 2009, 08:07:14 AM » |
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I am going to spend some time really looking at my diet...... and take the tums for binders..... The biggest problem I have is the water weight.... I gained three pounds since saturday.... and I think its because I didnt take any water pill yesterday as I needed to drive to another town which as three hours away..... on those days that I have to go somewhere and I dont take the water pills and then I gain alot of water.... I dont feel well, feel bloated and fat..... now today I will take some water pills (bumex) and then I will start loosing the water and then the body pains will come back..... I think I have more body aches from the water pills or from loosing the water... and that is what makes me sore.... then I get the cramps... and the cycles starts again......... Crazy.... Even if I dont eat I can water weight..... can loose weight like that........
Wish it would just get better.......
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Logged
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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KICKSTART
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« Reply #10 on: August 24, 2009, 09:06:34 AM » |
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Ah many many years ago when i used to take water tablets i used to get the most awful cramps as they took fluid off and i agree they are a pain to take if you have to go anywhere !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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