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Author Topic: Dialysis at Sea  (Read 9277 times)
maritza0486
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"Pple cant do evrythin but every1 can do somethin"

« on: August 12, 2009, 04:12:20 PM »

Anyone ever been on the dialysis cruise? I have a flier and was planning to schedule a vacation for next year. I was just wondering if anybody experienced it yet and if they enjoyed it or not.   :bandance;
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #1 on: August 12, 2009, 04:15:10 PM »

http://ihatedialysis.com/forum/index.php?topic=12535.0 related thread
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
dwcrawford
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Getting the heck out of town.

« Reply #2 on: August 12, 2009, 04:15:42 PM »

I sent for materials, etc. and gave them to the center social workers.  Several people in the center have been and love it save it is quite expensive.  Trying to decide is it is worth it or not at a minimum of $400 per sesions times two weeks (that one I want) plus all else involved.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #3 on: August 13, 2009, 12:11:32 AM »

Shouldn't your insurance pay for the amount you would normally spend?  Does it work that way?
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
dwcrawford
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Getting the heck out of town.

« Reply #4 on: August 13, 2009, 05:45:49 AM »

not according to the  center's social worker.   why do they call them social workers.  they never throw parties.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
marti824
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« Reply #5 on: August 13, 2009, 07:10:00 AM »

I checked in to the dialysis at sea cruises, and yes, it was very expensive.  the same cruise that "normal" people could buy for $699.  was $1600 for me and my cabin mates.  then they expected you to pay for the treatments up front, though they did tell me that my insurance would reimburse me for them.  So, for the three of us, it was going to cost upwards of five thousand dollars, i didn't think it was worth it.  I've been on cruises before, and they are absolutely the best way to travel, but, we have bills to pay too.  if you go, have a wonderful time
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dwcrawford
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Getting the heck out of town.

« Reply #6 on: August 13, 2009, 07:17:12 AM »

i'm sorry for the disappointment.  I doubt I'll go.  It is a lot of money.  My primary insurance id medicare and it doesen't pay.  my secondary insurance will pay only the balance of what medicare approves.  That's nothing.  Although it has been highly recommended.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
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