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Author Topic: Odd family link to kidney disease  (Read 2797 times)
paris
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« on: August 12, 2009, 02:56:08 PM »

I was looking at family geneology today. We have a very detailed family tree and it includes lots of extra information.  I just read that my great grandfather died of Brights disease.  The term isn't used any more. It is the name of an English physican. But, Brights disease is now called glomulernephritis  ----Wow, did I spell that wrong!!  Anyway, just thought it was interesting since I have always been told there is no history of kidney disease.   Does that back my reasoning for not wanting my children to donate to me?   :rofl;    Back to the geneology to see what other diseases there is lurking in my genes ----just kidding!  LOL
« Last Edit: August 12, 2009, 03:00:04 PM by paris » Logged



It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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« Reply #1 on: August 12, 2009, 02:58:29 PM »

My great-grandfather too Paris.  His youngest daughter, one of my grandmother's two sisters, was just 10 days old when he died.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: August 12, 2009, 04:20:40 PM »

Wow that's a pretty detailed family history Paris!

Found this:
Chronic Glomerulonephritis: Often, chronic glomerulonephritis seems to result from one of the same conditions that cause acute glomerulonephritis, such as IgA nephropathy or membranoproliferative glomerulonephritis. Sometimes, acute glomerulonephritis does not resolve and instead becomes chronic. Occasionally, chronic glomerulonephritis is caused by hereditary nephritis, an inherited genetic disorder. In many people, the cause of chronic glomerulonephritis cannot be identified.

From: http://www.merck.com/mmhe/sec11/ch144/ch144b.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #3 on: August 12, 2009, 04:36:27 PM »

Thanks, Okarol.  My family loves details!!  I can tell you when they came over to America, who fought in the Civil War and if they were wounded.   :rofl;  I was reading the obituaries and it is the first time I read any mention of kidney issues.  I know, I am bored today.  This all was prompted because a long lost cousin of some sort left a message yesterday asking if I was related to the Linamen family and he was looking for any information I might have.  He knew my Mom, but I don't remember him at all.  You know how it goes, you look up one thing online and pretty soon four hours have flown by!! 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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