I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 05, 2024, 07:37:10 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Introduction
| |-+  The IHD Family - Our Members
| | |-+  "KIMCANADA NEEDS YOUR HELP"
0 Members and 3 Guests are viewing this topic. « previous next »
Pages: [1] 2 Go Down Print
Author Topic: "KIMCANADA NEEDS YOUR HELP"  (Read 10502 times)
kimcanada
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2802


WWW
« on: July 29, 2009, 10:50:32 AM »

Hi IHD, I am pissed and can't take it anymore, in the last two days, my training has been postponed two times from August 4th to August 10th to September 8th...

Then an hour ago my nurse called me and bumped me from my day shirt to afternoons, there was no asking , there was no inquiring if that was OK with me , nope we need your chair , so sorry...

Well I did a video and I am PISSED, I need your help you pass the link of this video on, the one thing the health care hates here is bad press, PLEASE HELP ME FORWARD MY VIDEO ON.

THANKS
Kim


http://www.kimhoben.com

Logged

**********************
**********************
http://www.kimhoben.com
**********************
**********************
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #1 on: July 29, 2009, 11:19:49 AM »

That sucks, Kim. Can you upload the video to YouTube?

Aleta
Logged

Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
breezysummerday
Full Member
***
Offline Offline

Gender: Female
Posts: 355


« Reply #2 on: July 29, 2009, 12:28:17 PM »

 Kim:

After all the arraignments you've made and in one fell swoop they are brushed
aside!!  Bull$hit!!  Go to the center at your usual time and demand to see the
person in charge!  Let them know in person just how you feel.  No!  this is not
accecptable treatment.  arrgghh I feel for you :stressed;
Logged

caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
paul.karen
Elite Member
*****
Offline Offline

Gender: Male
Posts: 2115


« Reply #3 on: July 29, 2009, 12:33:09 PM »

Sorry to read this.
I can see changing your training maybe once things happen.  But from a week to a month is crazy.
As for your day to day stuff.  WTF.  You are a person with a life or trying to have a normal life as you can.  This doesnt help at all.  I would go just to see who has your seat.
I hope you find a good resolution.
Logged

Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Romona
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3777

« Reply #4 on: July 29, 2009, 01:25:32 PM »

 :grouphug;
Logged
cariad
Elite Member
*****
Offline Offline

Gender: Female
Posts: 4208


What's past is prologue

« Reply #5 on: July 29, 2009, 01:38:40 PM »

I feel your frustration, Kim! You make your case excellently in the video.

Nice work, and good luck!

 :grouphug;
Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Wenchie58
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1655


Always carrying the big silly grin!

« Reply #6 on: July 29, 2009, 02:18:07 PM »

Kick ass and take names Kim!  Wish I could come up and help you.  (Prolly get deported)!

 :cuddle;
Logged

Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
twirl
Member for Life
******
Offline Offline

Gender: Female
Posts: 8960


« Reply #7 on: July 29, 2009, 02:24:33 PM »

Kimmie -- how do I forward your video on?
day shift -- was that mornings
and now you have afternoons and don't you have to drive for an hour or longer?
and aren't you starting dialysis where you stick yourself at home? and they are screwing you over on the training?
are you with Davita?
and so sorry about this, Kimmie
Logged
monrein
Member for Life
******
Offline Offline

Gender: Female
Posts: 8323


Might as well smile

« Reply #8 on: July 29, 2009, 02:44:09 PM »

Kim, can you insist that the social worker get involved here?  I would ask her to watch the video, in which you are calm but obviously holding back and then I would let him/her experience the full extent of your feeling like the rug is constantly being pulled away from beneath you.  Don't hold back on letting her/him know all the things you've both done to accommodate kidney disease, all the control you've lost and list every single area.  Tell him/her that you feel you're losing your mind by being on hold this way.  Don't blame anyone, like nurses, for not caring about anything but their schedules, just stick to how everything that's happened is affecting you as a human being.  Can't plan, can't sleep, feel like a ship in a storm, feel like crying, feel like throwing things, interfering with relationships, ...bring everything back to YOU and ask if she/he can't possibly advocate on your behalf.  Really focus on the feeling of utter loss of control and your need as a person to at least be able to count on some kind of firm plan.  Really highlight the issue with your visitors not coming to visit due to all the schedule upheavals and how you feel as though you've lost both summer AND fall because of burps in the system.

Thinking of you.  :cuddle;
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #9 on: July 29, 2009, 03:58:04 PM »

Kim,
I am so sorry you have to go through this. I cried through your video - your frustration and disappointment is absolutely understandable, and heartbreaking. Isn't it tough enough to rely on dialysis as life support, but, as you said, to have no say or control over how your treatments are doled out?? I have shared your video on my facebook and twitter.

If anyone else who has facebook wants to distribute her video you can go to my facebook and click on SHARE where I have posted the link - and it will post it to your page too.

You can also go to YouTube http://www.youtube.com/watch?v=VOIEdddhN68 and share the video by signing in. Scroll down to SHARE. You can email it to friends, show it on myspace, facebook, etc. You can also post a comment there for Kim.
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kimcanada
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2802


WWW
« Reply #10 on: July 29, 2009, 04:43:01 PM »

OH boy did I need this nice words of wisdom, today sucked like no other sucked...

Andrew let me cry and scream for about an hour then we got down to business... I am not going to let this go away, I am making a list of failings in the system now and getting ready to get in contact with my government offical.  I will never believe that they bumped me, My daughter is getting back from Europe next Tuesday and I was heading to airport to get her, now I can't ,,, It's not even the really big things its everything.

Thanks OKarol for posting the link

Kim
Logged

**********************
**********************
http://www.kimhoben.com
**********************
**********************
David13
Member for Life
******
Offline Offline

Gender: Male
Posts: 12712


A meow massages the heart.

« Reply #11 on: July 29, 2009, 04:46:43 PM »

Go get 'em Kim!  I am so mad when I think of how they treated you.  You have been more than patient and you deserve some answers.  What right did they have to give your time slot away with no notice? 

I think there have been some very good answers posted here in regard to youtube, Facebook, etc., as well as contacting the social worker. 

I am sending you a big hug.   :cuddle;
Logged

“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
MIbarra
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1590


Stopping to smell the bluebonnets

« Reply #12 on: July 29, 2009, 04:54:53 PM »

I'm so sorry! It is all so ridiculous. As a dialysis patient your life already feels so out of your control and then for them to make decisions without your input just makes it worse!

I really hope they catch enough cr** that things change for you!
Logged

Cadaver transplant April 29, 2007
glitter
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2288


« Reply #13 on: July 29, 2009, 06:21:58 PM »

This sucks girl, I will share you on facebook. I don't know what to say- you're being treated horribly, I hope this helps get you some attention.
Logged

Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Wattle
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2306


« Reply #14 on: July 29, 2009, 08:36:38 PM »

Oh Kim,

This whole mess just sucks. I agree with Monrein. Get your social worker involved. Try to stay calm and let the social worker be your advocate. They can move mountains when they want too! Also I agree with speaking to your local government official.

Try to stay strong and stand up for your rights. Thinking of you.   :cuddle;
Logged

PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
paddbear0000
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2384


Dogs & IHDer's are always glad to see you!

WWW
« Reply #15 on: July 29, 2009, 10:33:45 PM »

Kim, I know you will remain strong throughout this ordeal. You have an entire online support system behind you! I have posted your link on Twitter, my Facebook page and sent the link to everyone that joined my Kidney Walk Cause on Facebook.  :cuddle; :cuddle; :cuddle;
Logged

********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
rose1999
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1893


« Reply #16 on: July 29, 2009, 11:21:06 PM »

Kim, seeing your video really got to me, I will forward it to my whole address book and share it on Facebook. I wish there was more I could do to help  :cuddle;
Logged
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114


« Reply #17 on: July 29, 2009, 11:44:11 PM »

Kim, your video brought a lump to my throat. God Bless you and I hope your video goes worldwide and kicks some  :sir ken;
Logged

One day at a time, thats all I can do.
paddbear0000
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2384


Dogs & IHDer's are always glad to see you!

WWW
« Reply #18 on: July 30, 2009, 02:03:44 AM »

Kim, seeing your video really got to me, I will forward it to my whole address book and share it on Facebook. I wish there was more I could do to help  :cuddle;

Ooo...I didn't even think of that! Family and friends, watch out!
Logged

********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
kimcanada
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2802


WWW
« Reply #19 on: July 30, 2009, 04:59:34 AM »

Thanks again for all your support everyone...

The youtube link is  http://www.youtube.com/watch?v=VOIEdddhN68

Please share this video with your contacts.

Logged

**********************
**********************
http://www.kimhoben.com
**********************
**********************
RichardMEL
Member for Life
******
Offline Offline

Gender: Male
Posts: 6154


« Reply #20 on: July 30, 2009, 05:26:13 AM »

This is absolutely rotten! I can't believe they just shafted your regular spot without asking you about it or anything. I mean our guys will bend over backwards to arrange things as best they can to fit everyone in. The thing that also annoys me is that they have treated YOU like nothing... that this new patient is somehow more important than you. Good grief... at our unit if a new patient came along and there wasn't a spot on their preferred day.. well tough.. that's the way it is. Gee, that is just horrible for you and I am so sorry you have been shafted like this. I agree get the word out there and take it to the highest levels you can! It is very unfair on you and you're being treated so badly :(

 :grouphug; :grouphug; :grouphug; :grouphug;
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
David13
Member for Life
******
Offline Offline

Gender: Male
Posts: 12712


A meow massages the heart.

« Reply #21 on: July 30, 2009, 05:29:34 AM »

Thanks again for all your support everyone...

The youtube link is  http://www.youtube.com/watch?v=VOIEdddhN68

Please share this video with your contacts.



Will do, Kimmie!  We are with you all the way!   :grouphug;
Logged

“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Ken Shelmerdine
Elite Member
*****
Offline Offline

Gender: Male
Posts: 1646


Life's a bitch and then you go on dialysis!

« Reply #22 on: July 30, 2009, 05:48:56 AM »

I was very touched by your video. The way you are being treated is scandalous to say the least.  :grouphug;
Logged

Ken
kimcanada
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2802


WWW
« Reply #23 on: July 30, 2009, 06:21:27 AM »

Thanks again... the link................  http://www.youtube.com/watch?v=VOIEdddhN68
Logged

**********************
**********************
http://www.kimhoben.com
**********************
**********************
del
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2683


del and willowtreewren meet

« Reply #24 on: July 30, 2009, 06:29:24 AM »

Kim it really upset me to see your video. Take monrein's advice and go to the social worker and explain how it has affected your life.  Kick and scream if you need too!!!  My advice is to not just go to government officials - the public doesn't hear about it then!!  Call the media - they love stories like this. Send them a copy of your video.  Call and call until you get somebody to listen to you.  Government officials have a way of trying to cover things up - the media doesn't!!   :cuddle; :cuddle;
Logged

Don't take your organs to heaven.  Heaven knows we need them here.
Pages: [1] 2 Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!